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Jan R. Boehnkejrboehnke
2025-04-29

A (24 studies) synthesises evidence around the impact of adopting different perspectives when valuing child & adolescent
link.springer.com/article/10.1

Results show that differences in mean values arise with different perspectives on severe child . These differences are influenced by factors such as health state severity and valuation method. Uncertainty remains regarding the optimal choice of preference elicitation and anchoring methods.

Jan R. Boehnkejrboehnke
2024-08-22

Core outcome sets for trials of interventions to prevent and to treat in adults in low and middle-income countries
gh.bmj.com/content/9/8/e015120

In the works since early 2020 w , 50 qualitative interviews in 10 countries, Delphi study & consensus meetings.

Enormous thanks to all who made this possible!🙇

Summary of core outcomes 👇 incl. earlier seminal work in .

Slide with three column table. The first column presents the core outcomes of COSmm (Smith et al., 2018) Health-related quality of life Mental health Mortality For multimorbidity prevention studies in LMICs COSMOS (Vidyasagaran et al., 2024) suggests Health-related quality of life Adverse events Development of new comorbidity Health-risk behaviours For multimorbidity intervention studies in LMICs COSMOS (Vidyasagaran et al., 2024) suggests Health-related quality of life Adverse events Adherence to treatment Health-care cost (out of pocket)
Jan R. Boehnkejrboehnke
2024-07-08

One of my PhD students is currently conducting a and found within their ~6.3k screening hits seven retracted papers.
❤️

Stated retraction reason:

3x integrity of journal or (Hindawi)

2x errors & update published

1x error & no update published

1x no ethics approval

As already with errata / corrigenda, this is extremely heterogeneous and not all retractions are equal.

Jan R. Boehnkejrboehnke
2024-04-30

Quality of Life Research 05-2024

link.springer.com/journal/1113

of people w heart failure in

rdcu.be/dF2sX

of people living w mental illness in Africa

link.springer.com/article/10.1

seven issues to go...

PaquitoBernardPaquitoBernard@masto.ai
2024-02-27

Working on a #SystematicReview and #metaanalysis 🌪️
I have a basic problem with 'esc' package

When I want convert (un)standardized beta to r, I can't use vectors with esc_beta or esc_B , but it is ok if I convert beta in d or g.

I want convert numerous Beta in r.

Ideas ? :rickroll:

#rstats #meta #academia #research #SysReview

esc package
Jan R. Boehnkejrboehnke
2024-02-27

Quality of Life Research 03-2024
link.springer.com/journal/1113, incl.

A of in emergency laparotomy
link.springer.com/article/10.1

comparison of @promisNIH 29/global physical and scores
link.springer.com/article/10.1

and using unsupervised IRT models for assessing sample heterogeneity
link.springer.com/article/10.1

Jan R. Boehnkejrboehnke
2024-02-22

A (n=16 studies) of patterns in electronic health records shows and cardiovascular patterns in all studies, and other patterns relating to musculoskeletal, respiratory, and gastrointestinal diseases in some studies:
journals.sagepub.com/doi/full/

It is likely due to the type of data used, but the included studies are only from seven countries (and only one MIC).

Jan R. Boehnkejrboehnke
2023-12-20

A very good piece of news that came just in time for Christmas:

Andrew Dyer, whom I had the honour of co-supervising at , has defended his PhD! 🎉

If you want to have a first peek at his work on alcohol and , you can have a look at this that was published earlier this year:
onlinelibrary.wiley.com/doi/10

Screenshot of a Tweet by Andrew Dyer (@AndrewDyer10) saying: "Very happy to say that on MondayI successfully defended my PhD! Thank you so much to my supervisors Paul Toner, Dr David Curran, & Jan R Boehnke. Thank you to professors Jaime Delgadillo & Martin Dempster for a great viva discussion, & to convenor Pauline Adair #PhDone " (some Twitter handles replaced by names) Four attached pictures, top left front of Andrew's PhD; top right text repeating some of the facts and stating the title of the PhD thesis, "Alcohol-related Quality of Life in Young People: Development and Initial Validation of a New Targeted Outcome measure"; bottom left, Andrew in front of presentation slides (#SPR2023) looking concentrated at the audience, and with either a pointing or conjuring gesture with is right hand; bottom right, myself, Andrew and Paul Toner in front of Waverly Station, Edinburgh.
Jan R. Boehnkejrboehnke
2023-11-03

You would like to engage with conference content?

How about reading the 2022 article of the year finalists?

1) Association btw 24h movement behaviors and in children
rdcu.be/dpqJY
🎉

2) Perceived benefits and limitations of using patient‑reported outcome measures in clinical practice with individual patients
rdcu.be/dpqKK

3) and HRQL among the oldest old
link.springer.com/article/10.1

Jan R. Boehnkejrboehnke
2023-09-23

In -s , Carolyn Schwartz provides an insight into her development as a researcher
isoqol.org/the-story-behind-th

Reflecting on research experiences with people living with Multiple Sclerosis, she realised that what was important to patients did not form a consistent hierarchy of domains for each patient over time. This led her into research and she discusses her most recent on the importance of the phenomenon in :
jpro.springeropen.com/articles

Jan R. Boehnkejrboehnke
2023-09-18

Last week "Quality of Life Research" published 6 papers:
link.springer.com/journal/1113

For example,

A showing widespread use of measures in studies w Indigenous people, but little evidence on their measurement properties
link.springer.com/article/10.1

A comparative assessment of such measures in China
link.springer.com/article/10.1

And the elicitation of a for the Swedish Capability-Adjusted Life Years instrument
link.springer.com/article/10.1

Jan R. Boehnkejrboehnke
2023-09-15

A from the " – in Sync Working Group" analysed 150 studies
link.springer.com/article/10.1

Apart from the interest in the psychological phenomenon, the relative size of such effects compared to intervention effects (e.g., in link.springer.com/article/10.1) is very important for in research (see also doi.org/10.1007/s11136-023-033).

Therefore an interesting descriptive finding: it was possible only for 105 of these studies to calculate -s.

Jan R. Boehnkejrboehnke
2023-08-10

Fifty-nine studies were included in this on the costs of
link.springer.com/article/10.1

i) annual costs of per person ranged from I$*800 to I$150,000

ii) increased country GDP per capita was associated with higher costs

iii) morbidity-dyads including conditions are among the most costly (I$36,840)

Important future research: The included studies mostly focused on direct costs and countries.

*I$ 2021 International Dollars

Jan R. Boehnkejrboehnke
2023-08-07

Last week "Quality of Life Research" published 7 papers:
link.springer.com/journal/1113

For example,

effectiveness of verbal instruction vs video-based education for caregivers of head & neck patients
rdcu.be/diEFn

of psychometric quality of instruments reporting in survivors of critical illness
link.springer.com/article/10.1

Estimating the disutility of relapse in
link.springer.com/article/10.1

Jan R. Boehnkejrboehnke
2023-07-25

What can offer for research? Why is simply translating questionnaires rarely enough for international research efforts?

published last week excellently illustrates the problems:
onlinelibrary.wiley.com/doi/fu measuring

Two other examples I like a lot:
pubmed.ncbi.nlm.nih.gov/263192 in
and
pnas.org/doi/10.1073/pnas.1721 for broader issues.

Jan R. Boehnkejrboehnke
2023-07-11

August issue of Quality of Life Research:
link.springer.com/journal/1113

It opens w -s of assessing
in people living w bladder cancer (link.springer.com/article/10.1)
and impact of urinary tract infections (link.springer.com/article/10.1).

Also:

comment on draft guidance on core patient-reported outcomes in cancer -s
link.springer.com/article/10.1

Ethical and practical issues of data sharing in care-based child health research
link.springer.com/article/10.1

+20 more

Jan R. Boehnkejrboehnke
2023-07-06

Routine outcome data are a valuable source of evidence.

Using the REporting of studies Conducted using Observational Routinely-collected health Data statement this finds that the reporting quality was largely not great:
bmcmedresmethodol.biomedcentra

The use of will not improve the study (if only used at writing stage). But readers will be in a much better position to understand the research!

* journals.plos.org/plosmedicine

Jan R. Boehnkejrboehnke
2023-06-29

I moderated a panel on "Measuring in ways that matter: Leveraging content and context in outcome assessments" at .

Effects of an ecological momentary intervention for early intervention
academic.oup.com/schizophrenia

Response compliance in ecological momentary assessment research in borderline personality disorder
jmir.org/2023/1/e44853

What works for whom in goal setting with young people?
bmcpsychology.biomedcentral.co

Panel title as well as panel contribution titles and contributors as follows: Measuring in ways that matter: Leveraging content and context in outcome assessments Moderator: Jan R. Boehnke, University of Dundee Discussant: Andrew Page, The University of Western Australia Using qualitative interviews and e-Delphi expert consensus to develop a new targeted quality of life outcome measure for young people who drink alcohol Presenting author: Andrew Dyer, Queen's University Belfast Zooming in: Micro-level processes in a compassion-focused ecological momentary intervention Presenting author: Jessica Gugel, Central Institute of Mental Health Study features and response compliance in Ecological Momentary Assessment Research in Borderline Personality Disorder: A Systematic Review and Meta-analysis Presenting author: Antonella Davanzo, Pontificia Universidad CatĂłlica de Chile & Millennium Institute for Depression and Personality Research Considering the impact of mental health and wellbeing outcome measures on the mechanisms of therapy and research Presenting author: Jenna Jacob, Anna Freud
Jan R. Boehnkejrboehnke
2023-06-06

Quality of Life Research, July issue published:
link.springer.com/journal/1113

Opened by a of instruments measuring the quality of dying and death in Asian countries:
rdcu.be/ddRIE

the issue features several pieces on properties of various instruments in different contexts and versions, e.g.,


link.springer.com/article/10.1

link.springer.com/article/10.1


link.springer.com/article/10.1

Jan R. Boehnkejrboehnke
2023-04-17

In 's newsletter:
Quality of Life Research's 3 most downloaded papers (published in 2019-21) in 2021, titles & links:

1) A of quality of life research in medicine and :
link.springer.com/article/10.1

2) Quality of life under the COVID-19 quarantine:
rdcu.be/c97dV

3) The impact of lockdown during the COVID-19 pandemic on and SocialHealth of children and adolescents:
link.springer.com/article/10.1

More:
isoqol.org/news-from-quality-o

References to the three most downloaded papers (published in 2019-21) in Quality of Life Research in the year 2021: Haraldstad, K., Wahl, A., Andenæs, R., Andersen, J. R., Andersen, M. H., Beisland, E., Borge, C. R., Engebretsen, E., Eisemann, M., Halvorsrud, L., Hanssen, T. A., Haugstvedt, A., Haugland, T., Johansen, V. A., Larsen, M. H., Løvereide, L., Løyland, B., Kvarme, L. G., Moons, P., Norekvål, T. M., … LIVSFORSK network (2019). A systematic review of quality of life research in medicine and health sciences. Quality of Life Research, 28, 2641–2650. Ferreira, L.N., Pereira, L.N., da Fé Brás, M. et al. (2021). Quality of life under the COVID-19 quarantine. Quality of Life Research, 30, 1389–1405. Luijten, M.A.J., van Muilekom, M.M., Teela, L. et al. (2021). The impact of lockdown during the COVID-19 pandemic on mental and social health of children and adolescents. Quality of Life Research, 30, 2795–2804.

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