Lmst

My first Sydney Badge #tennis match this afternoon and besides the joy of playing 4 sets in the heat and sun a good (winning) result. May play again #MLTC

As part of the discussion Prof Avery has invited Alan Griffiths - who has multiple long term conditions and who takes 14 pills per day. He talks about how these define him (or not) and which elements are the most challenging.

“It’s not the conditions that are the hardest part, it’s what I have to do to manage all of them, every day. Especially through some of the hardest times in my life.”

#PioneerAIM #AIMRSF #MLTC

A panel discussion featuring five speakers, with a mix of men and women. The setting is an indoor space with a presentation visible in the background, addressing interventions in polypharmacy and prescribing for multiple long-term conditions.

Our last speaker in this session is Krish Nirantharakumar Co-PI Optimal at the University of Birmingham. His talk is focused on Utilising an informatics consult to improve prescribing.

His team are building tools to visualise and analyse the prescribing of multiple long term conditions. The tool can also start to predict what conditions might emerge over time!

#PioneerAIM #AIMRSF #MLTC

A panel discussion is taking place with four speakers. A presenter - Krish - is speaking from a podium, while three seated panelists listen. A large screen in the background displays information related to the DIGIPATH Study: Learning Health Systems for LMIC knowledge.

Mike Barnes of Queen Mary University is having us ponder even how you define something like a “long term prescription”? What is long? What if someone switches medications? How long a gap is enough to note?

The AI-Multiply team are taking a longitudinal approach and using #AI and data science tools to follow prescribing data over time for individuals and then summarising them across cohorts.

#PioneerAIM #AIMRSF #MLTC

A panel discussion taking place in a conference room. A speaker - Mike - is at a podium addressing an audience, while four panelists sit on stage with a presentation about polypharmacy challenges displayed on a screen behind them.

Our next speaker Lauren Walker, Co-PI DynAIRx is presenting on “Using real world data to identify and plan interventions to minimise polypharmacy and transform prescribing in multiple long term conditions”

The team have been engaging with clinicians to ask what AI tools would be useful for them? They all emphasised the importance of transparency in how any tool makes its recommendation / decision.

#PioneerAIM #AIMRSF #MLTC

A professional event panel featuring a speaker - Lauren - at a podium, with four seated panelists. There is a slide titled "Structured Medication Reviews” on the big screen behind them.

There are multiple dimensions of challenge if you live with #MLTC and we are now turning to a deep dive into one of them: #polypharmacy - taking multiple medications for those multiple conditions.

We’re honoured to have Prof Tony Avery who is the National Clinical Director for Prescribing for NHS England chair the discussion and present an introduction including recommendations for systematic and cultural improvements within the NHS.

#PioneerAIM #AIMRSF

A speaker stands at a podium during a panel discussion on polypharmacy, with four panelists seated nearby. A screen in the background displays information about Tony Avery from the University of Nottingham.

We have a double presentation at the end of this session: Simon Fraser PI MELD-B & Lynn Laidlaw PPI representative.

Their presentation is titled: Lost in translation? Looking for the lived experience of multiple long-term conditions in data

They share how the team moved away from talking about #burden to talking about the #workload of living with #MLTC. Their #PPIE contributors were allowed to make a difference to the project. And as Lynn says “language matters”.

#PioneerAIM #AIMRSF

A conference panel with five speakers, including a man - Simon - and woman - Lynn - presenting at a podium. There are four additional panelists sitting in chairs, with a presentation displayed on a screen in the background. The setting appears to be a modern indoor venue

Next up is Jane McDermott from the NIHR Policy Research Programme Policy Research Unit in Healthy Ageing at the University of Manchester.

Her talk is titled “Raising the Bar in Policy Research - Lessons learnt from the NIHR Policy Research Unit in Health Ageing”

She’s sharing the broad network of stakeholders who feed into policy research, and #mobilising #knowledge as a pathway for #scaling #impact.

#PioneerAIM #AIMRSF #MLTC

A panel discussion taking place in a well-lit conference room. A female speaker - Jane - stands at a podium, engaging with the audience, while four other panelists are seated beside her. A screen in the background displays her talk title

Hajira Dambha-Miller is presenting her team’s work on “Understanding the impact of multimorbidity and social care needs in England and Wales from the Cluster - AIM study”.

She opens her talk sharing the story of a patient of hers (she’s a GP as well as a research scientist) whose social care challenges outweigh and exacerbate her physical and mental health challenges. We must understand the social context of the people living with #MLTC.

#PioneerAIM #AIMRSF

A speaker - Hajira - stands at a podium addressing an audience during a panel discussion. Four panelists are seated, engaging in a discussion about the impact of multimorbidity and social care needs in England and Wales. A presentation is visible in the background.

We’re back from a delicious lunch and jumping into a discussion of #Impact. How can we bridge the gap between research, policy, people and practice?

Duleep Allirajah, CEO of the Richmond Group is getting us started with a talk on “The Task Force for Multiple Long-Term Conditions: Priority setting and progress to date”

#PioneerAIM #AIMRSF #MLTC

A speaker - Duleep - presents at a conference session, standing behind a podium. Four panelists are seated nearby, with a presentation slide visible in the background discussing "Research and evidence gaps." The event takes place in a bright, modern venue.

Our last speaker in this session is Cathie Sudlow who is leading a review of #HealthData in the UK. Her talk is focused on “Building a UK data infrastructure at scale”

It is a real honour and exciting to hear some of the preliminary key messages.

Her talk is highlighting how hard it is to combine data from so many different sources - health records, images, research projects, wearables, census etc etc

#PioneerAIM #MLTC #AIMRSF

A presentation slide discussing the importance of health data in the UK. Key messages include the safe use of health data to improve lives, public support for data utilization, obstacles in accessing and analyzing health data, and the need to recognize health data as critical national resource

Next speaker is Bruce Guthrie who is keeping us focused on how routine data - while incredible valuable - is an imperfect record of what happened and when it happened!

His talk is titled: Through a glass, darkly: reflecting on data challenges in multiple long-term conditions research #MLTC

#PioneerAIM #AIMRSF

A speaker - Bruce - presents at a conference while three panelists sit on stage. A screen displays content about "Routine data challenges," highlighting issues with data accuracy.

Back from our first coffee break (the mini quiche was delicious!) and we’re discussing how we can leverage the UK’s unique health data assets to catalyse AI research in multiple long term conditions #MLTC.

Wonderful to get started with the fantastic Chris Orton describing how we in the #AIMRSF have supported the 8 research consortia to manage and analyse their data effectively, reproducibly, and sustainably at scale.

#PioneerAIM

A conference panel featuring a speaker - Chris - at a podium and three seated panelists discussing "The AIM data journey – Challenges, insights, lessons learnt." The setting is modern with large windows and a presentation screen in the background.

Next up we get to hear from one of the #ExpertsByLivedExperience - Alix - and two researchers - Amy Wilkins and Lizzie Renfy. Another expert by lived experience - John - has sent comments that Mon read out because his mobility conditions have flared up so he’s unable to attend in person.

He’s here online though. Making sure we are allowing EVERYONE to join a conference featuring people who are more vulnerable than others is a huge priority to me and the #AIMRSF team.

#PioneerAIM #MLTC

A panel discussion taking place in a conference setting. Three speakers - Amy, Alix, and Lizzie - are seated on stage, with one speaker (Mon) at a podium. A projector displays the title "Celebrating and recognising excellence in 'Patient and Public' engagement and involvement" along with panelist information

Mon played this beautiful video from the #DECODE project: Develop and Enhance the Care coordination for people with intellectual disabilities and multiple long term Conditions (DECODE).

https://www.youtube.com/@DECODEproject

A hugely moving set of interviews with people who are #ExpertsByLivedExperience and living with #MLTC describing how welcome they felt and how they have made such a positive difference to the research project.

#PioneerAIM #AIMRSF

Next up is Mon Fletcher who is introducing our session on Celebrating and recognising excellence in patient and public engagement and involvement #PPIE

She’s sharing collages of photos from just a few of our amazing contributors who are #ExpertsByLivedExperience.

“Research sometimes sits on dusty shelves and is too far away from the people who would actually benefit from the work.”

#PioneerAIM #AIMRSF #MLTC

A woman (Mon) is presenting at a conference with a clear backdrop and empty chairs on the stage. The screen displays information about patient and public engagement.

Collage of images displayed on a screen, featuring people engaged in various activities, presentations, and discussions related to research projects. The backdrop includes logos from academic institutions and event settings, showcasing teamwork and collaborative efforts.

The image displays a collage of various community engagement activities related to health. It features groups of people working together, discussions at tables, and a wall displaying drawings. Prominent elements include sketches and comments about health journeys, showcasing collaborative efforts

“The #AIM programme is ahead of other areas in #HealthDataScience in thinking about the benefits of #interdisciplinary collaboration to solve real world problems.”

“Early career researchers #ECRs are our leaders of tomorrow. We must invest in their success by providing career pathways for research in multiple long term conditions #MLTC”

A fantastic interview of Professor Lucy Chappell, Chief Scientific Adviser to the Department of Health & Social Care #DHSX & CEO of #NIHR.

#PioneerAIM #AIMRSF