Chronic pain flareup has hindered my ability to cook so for the duration I need to order prepared stuff to eat
@mutualaid @mutual_aid @MutualAidVisibility @disability @blackmastodon @edendestroyer
120 would cover I think?
https://www.paypal.me/longbongsilver
https://Cash.app/longbongsilver
https://venmo.com/u/longbongsilver
#MutualAidRequest #disabilitycrowdfund #disabledmastodon #showupforwishes #NEISvoid #emergencycrowdfund #disabilityaid #blackmutualaid
It's really aggravating how just writing a blog post - even a completely non-stressful one! - raises my heart rate.
I've hardly done anything and now I need to go lie down and destimulate.
the biologic I'm on now seems to be helping. that said, I'm entering into a flare. it's an improved experience bc the 24/7 fatigue/pain is a lot better. but the flares still happen. (but they're more noticeable bc of less omnipresent pain.) #NEISVoid
Classic cartoon showing how even the everyday activities (eat, get dressed, shower) can be "out of reach" for ME/CFS patients. Thanks for sharing this one again!
#MEcfs #LongCovid #POTS #Fibromyalgia #ChronicIllness #NEISvoid #Disability
Ok, this one is giving me big feelings, so I guess bear that in mind fellow POTSies? The whole "40 years of symptoms massively improved by a couple of half hour procedures" thing. But it's worth a listen.
> The POTScast: Vascular surgeons Robert Hacker and Deena Chihade on venous compressions, stenting, and POTS
Episode webpage: https://the-potscast.castos.com/episodes/vascular-surgeons-deena-chihade-and-robert-hacker-on-venous-compressions-and-stenting
Between toxic mould, Seasonal Affective Disorder, and my chronic illnesses flaring (not to mention the day to day poverty, ableism and queerphobia I live with) this winter is a struggle.
You can help! Please share + contribute if you have the means. Every single boost or $ counts 💓 Thank you!
See next toot for details about my Winter Survival Fund.
https://www.PayPal.me/RebeccaEsther
#NEISvoid #helpfolkslive2026 #MutualAidRequest #DisabilityCrowdfund #TransCrowdfund
Fellow #EDS havers: Do you have wheelchair recommendations? I need something comfortable but affordable, and which isn't too difficult to wheel in (eg I dont have to use too much arm strength). #ChronicIllness #NEISvoid
It is So Tedious being forever sick. #NEISvoid
What happened to #neisvoid? Where is the person who started it? I forgot her name but she left twitter when the new owner came along.
I feel that escape to a better place soon might be possible. BUT if it doesn’t happen I’ll be crushed beyond anything I can imagine.
What’s that quote? Paraphrase: It’s not the despair. I can handle the despair. It’s the hope that kills you.
Except I’m gonna die if I don’t escape so yeah.
No really, my doctor said so. I’ll die if I stay here. I’m already far sicker than I was a year ago because I keep getting exposed to Covid. And that’s the 1% of problems if you’ve been following. My profile is full unhappy and abuse stories if you haven’t been following & want a deleting read. I’ve even had my story published.
#SevereME #LongCovid #ChronicPain #Endometriosis #Neisvoid #ChronicIllness #Hypothyroidism #POTS #Dysautonomia #NarcissisticAbuse #Abuse #Narcissist #Neglect i got everything except what I need.
woke up with a terrible head cold. I’m in the phase of being under the weather where I am only able to imagine worst case scenarios. it’s also second last day of prednisone on a decreasing dose so “normal“ body aches are probably returning. #NEISVoid
