Oh yeah...migraine time, on a day when I'd planned to run many errands.
That checks out :(
Took a muscle relaxant, we'll see if it helps. It might mean no driving but there's not point in sitting around in pain. I can't drive in this much pain anyways.
I have had a migraine/spinal pain for over a week that I just cannot shake. Some days are better than others, but overall it's just terrible.
Sent hubby out to the drugstore to try some muscle relaxant as every other kind of pain med I have attempted hasn't worked.
It's not often, every few months or so, that I get this specific kind of pain that just lingers.
Hopeful this might give me a smidge of relief.
(no suggestions unless you've lived with pain for 10+ yrs)
I saw this posted to a private FB group but I'm not sure who the creator was?
Hashtags:
#neisvoid
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#ChronicIllnessMemes
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #POTS @pots
Interview with Brian Hughes, professor of psychology and University of Galway in Ireland | David M Tuller
from the video's description:
"My friend and occasional co-author Brian Hughes, a psychology professor at the University of Galway, in Ireland, has just published his latest book: “Psychology’s Quiet Conservatism: How a Supposedly Woke Science Promotes Capitalism and Protects Privilege.”
Alright #ChronicIllness and #NEISvoid friends. It is time.
Please hit me with your wheelchair recommendations, avoid list, and things to research.
I think I am interested in a manual active chair with a focus on foldable/portability.
Feel free to boost.
Don't wanna listen to audiobooks it'll be too loud.
Don't wanna watch TV, it's too much light and motion.
Don't want to try to sleep because tinnitus is loud and what if I can't?
Don't want to meditate because I am SO BORED of that shit.
Before I am gone. I want to protect myself and my patients. Call me over reactive if you want. But I don’t see anyone stopping this train before it destroys more lives. #CovidAware #MCAS #NEISVoid
My business spotlight with the GBSA was released today. They sounded very excited about it, but it got little engagement today on IG.
I need help spreading this more. Could anyone help with this? Thank you!
www.instagram.com/p/DPUQ2sNj-Bs/
#NEISVoid #CovidAware #SeattleSky #SignalBoost
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I can't decide what to do about my progesterone refill.
I take oral progesterone daily as part of menopause HRT.
I used to get it compounded since in the US the manufactured product had chickpea in it and I'm allergic to chickpeas.
The pharmacist I talked to at a compounding pharmacy here in BC said I could get a manufactured version that just has sunflower (or was it safflower?) oil in it. It might be okay for me in terms of allergies. The other ingredients looked not great, though - titanium dioxide, I guess as a colorant.
Of course, the manufactured product is cheaper than getting it compounded.
Should I try the manufactured stuff?
Doctors suck. #NEISvoid
I'm thinking I need a medical alert bracelet. I know what sorts of things need to go on them and I'm curious what you personally prioritized about yourself and your health and put on yours. No details, of course, just broad strokes to help me think about my needs.
ETA: Since my doctor recently summed me up as "medically complex" I think I'll turn this question over to her.
With my back being fucky, it’s given me a lot of time to think.
There isn’t a lot I can do at present except stay in bed most of the time even if I would otherwise have the energy to move around and do things. When I do attempt to get out of bed and do things, my spine and hips start to scream again and that isn’t a good time for anyone. So I’ve been laying in bed and watching a lot of Scandal on Netflix again, since we got our subscription renewed a bit ago.
While I watch TV and sling memes and work on things online and around the house where I am able, it’s gotten me thinking a lot about the nature of rest as well as what it means to be reasonably able to do something. See, I am technically able to do a lot. I have the skills, knowledge, and in many cases, technical mastery necessary to perform many tasks. Whether I’m able to actually do these things, especially all at once or in a short amount of time without hurting or exhausting myself, is a completely different story, especially now. I think that’s how ability, in a compassionate world, should be defined: whether or not a person can accomplish a given task, without threat of significant harm to themselves and/or others around them.
It’s a similar case with rest for me. I don’t rest typically. My mind requires near constant stimulation, either by means of something like watching TV that makes me think, daydreaming, researching, writing, building this website, or by external means involving trusted people when I’m able to participate and they are also able and willing, like fun conversations, adventures, or performing poetry. If I get bored, that’s ALSO not a good time for anyone. I wouldn’t find relaxing on a beach somewhere any sort of rejuvenating at all, unfortunately. My brain has to be engaged in something I’m passionate about for me to feel like I’m resting, ironically.
Given the complicated intersections between my mental needs and physical disabilities, I find a lot of my community and stimulation online. I have since at least 2017. Hell, many of the people I know and love in person now I initially met online, because as I’ve worked through my agoraphobia and even worse physical pain and fatigue than this, it was one of the only ways I could meet people and keep in touch with them at all.
I suppose all of this is to say thank fuck for the Internet. It’s given gremlins like me a voice and a community and opportunities to have some semblance of a life that we wouldn’t have had before it came about. The Internet isn’t perfect and a lot of things are shit about the state of the world today, but I love my people. Thank you to everyone who takes the time to read this. Y’all make my life a little brighter every day.
How do y’all rest? How do you find community? What do you think it means to be reasonably able to do something?
You don’t have to be disabled and/or neurodivergent to answer, but I’m very curious to hear from disabled, neurodivergent, and other marginalized people especially. Let me know in the comments 💛
-Allēna
#backPain #community #contemplation #disabilities #NEISvoid #rest
I saw this post yesterday.
I have some things to say about it.
Fuck the hardliners, as long as you’re doing your best to be a decent human being, all progress is good progress and the best praxis is to start right now with exactly what you have. There is no single definition of what being a “good leftist” looks like, and even if there WERE, there would need to be accommodations made for disabled people, Mad people, poor people, cultural nuances, etc..
Additionally, as an ex Mormon and a cripple punk, I wish leftists who talk like rebranded Christians would understand how nonsensical their takes sound. Nothing will get fixed without real progress and real work from real people, and that involves being patient when people fuck up, working together in community, and actively building a better world together, however we all can contribute, no matter how small. There will be no Revolution without progress made in the first place ffs.
So if all you could do is survive and take care of yourself today, I think that’s good praxis. Self care is community care, and I’m glad as fuck you’re still here. If all you can do is share memes and news, that’s a form of activism in and of itself, and I think that’s good praxis. If you’re making art, writing things, being a performer or creative in any way, even if you’re only sharing it with your friends, partner(s), and/or family? Art is political. This, too, is good praxis. If you can do more? Badass. That’s also good praxis. Please don’t let anyone tell you otherwise.
-Allēna
#anarchy #buildingABetterWorld #CripplePunk #disabilities #exChristian #exMormon #leftism #NEISvoid #Politics #progress #USPol
I tried (another) experiment today.
I took half a magnesium supplement again and my body had a… typical reaction?
I did this because I noticed that my heart was hurting last night for some strange reason, and in most people, magnesium evens out heart rate and calms them down. I’ve been worried about having another cardiac event since my last seizure in the wee hours of July 7 of this year when my heart rate shot through the roof after smoking weed to manage severe lower back pain, which triggered a chain reaction.
Thirty minutes later, I was on the floor convulsing for some 25 minutes and I don’t remember most of July. I would not like to repeat that incident, thank you very much. So I’ve stopped the weed since then and attempted the magnesium again today (which I last took when I was smoking weed like a motherfucker, so that might have had something to do with my strange initial reaction to it). The initial reaction in question was a strong spike in blood pressure and heart rate that induced the migraines it was supposed to prevent. I hadn’t begun my vitamin B experiment or my ibuprofen experiment yet that I can recall, either, which may have contributed, as well. Hell yeah, science in my brainhole!
Anyway, shortly after I took the magnesium supplement, I fell BACK to sleep for around another much needed 4 hours. I went to sleep at around 4 AM last night and woke up at 9 AM initially, took my meds, and after hanging out with my partner Zelda for a bit before they went to work, I fell back asleep and frankly don’t quite remember passing out. It was nice. So I think I might take the magnesium at night tomorrow since it appears to help with sleep when I’m not literally high on life, lol. My heart feels better and I do feel calmer.
I have no clue what I’m going to do for the rest of the day. More sleep, since I’m effectively nocturnal at this point? Possibly.. that sounds nice.
-Allēna
#calm #ibuprofenExperiment #magnesiumExperiment #nap #NEISvoid #rest #vitaminB100Experiment #Zelda
like an inkblot
I attended St John’s College in Annapolis, MD for my freshman year of college. My dad died at the beginning of second semester. I was a young eighteen, already struggling deeply with depression. I didn’t think I would live to see my eighteenth year, and losing him fucking gutted me. I spent the remainder of the year an angry, lonely ghost. It broke me to such a degree that my headmate Eight took over as host for the first time in my system’s life, setting off a power struggle that would persist for many years to come.
I would later write of that period in my life around a year later:
"my father
they say
i had a father once
i can’t forget his eyes
green olives from the top down
and this man i do not know
may have created me
but i hope he won’t keep me
for his own
i am not even my own
and i keep telling the same
old stories to new people
i wish i could make myself new
i wish i could bring him back
i wish none of this shit would
have ever happened
i wish that the olives had never
gone
oh, stranger
take this cup from me
will i die if i drink?
blessed are the poor in spirit
for they will inherit a life i
do not want
nonetheless
not my will but yours"
Now, the interesting thing about the way they do things at St John’s College is that there aren’t any final exams. Instead, all your instructors gather in a room at the end of the year and tell you what you did wrong and what you did well. They call this unique form of humiliation the “Don Rag”. It was fair to say that I was absolutely not a good student, especially considering the circumstances, and they did not go easy on me. That being said, my seminar instructors said something that’s stuck with me for the past decade. It was something to the effect of, “even if they can’t make it through a full class or can do nothing else, they show up.” Many of my instructors echoed the same thing, including my Greek instructor, who had told me earlier that year that I show up even when I look like I want to be blotted off the face of the earth.
That’s something I take a lot of pride in. I do my utmost to show the fuck up, no matter what shape I’m in. I don’t give a flying fuck if I have to come up with 17,000 workarounds in the process, if I want something, I show the fuck up, I put in the work and I get it. And I love a challenge.
Many people thought I would kill myself that year and in the years to come. My writing and my friends saved my life. I hated myself, and that was apparent in nearly everything I did. But I lived, despite not wanting to. My depression is much better now that I’ve gotten out of Texas, stopped pushing myself so damn hard, and I have better medical care. I’m tremendously thankful for that.
So here’s to showing up, again and again.
-Allēna
Did you miss this new free article that just dropped?
#SignalBoost #NeisVoid
RE: https://bsky.app/profile/did:plc:7iiwula3x5szgkwvn74376iy/post/3lxnlmtyry22m
