Got hit with the physical therapy insurance paradox. Need to keep going to PT to keep & increase improvement, but improvement leads to insurance declaring it "medically unnecessary", & lack of improvement as "medically worthless". I've been deemed medically unnecessary today #disability #NEISvoid

To whomever it may concern….

-Allēna

#disabilities #NEISvoid #madstudies #queer #trans #disabled #dissociativeidentitydisorder #strokesurvivor #queerart

#disabilities #Disabled #dissociativeidentitydisorder #MadStudies #NEISvoid #queer #queerart #strokesurvivor #trans

Here's how much one year (12 doses) of *one* of my medications costs in the US. :ThisIsFine: :Luigi: :Guillotine:

#ChronicIllness #autoimmune #NEISvoid #UShealthcare

A new excellent submission has arrived.

#InsomniaJam2025 has a new submission. @1veetvoojagig.bsky.social submitted the incredible and deeply relatable perzine “Sleep Is Hard” and I absolutely love it. Read it here: https://itch.io/jam/insomnia-jam/rate/3566630 -Allēna #zine #perzine #insomnia #NEISvoid #disability #disabilities

#disabilities #disability #insomnia #InsomniaJam2025 #NEISvoid #perzine #zine

Yesterday I got an email from a disability rights org responding to my intake form.

I never filled out an intake form. An unnamed person filled it out in my name without my consent or knowledge.

They copied text from a locked venting post. They were wrong about my insurance and my health. They put all this on a form asking for accommodations like ramps or durable medical equipment.

They claimed to be asking for help for me because I'm unable to advocate for myself.

#NEISVoid #Ableism

I was just too freaking tired and I’m feeling too unwell to advocate for myself #NEISVoid

having to cancel an in person meeting bc my gut required me to be near the bathroom, was so disappointing and frustrating and I feel like retreating back into my safe cave. but I miss being with other humans so much. this group offered to mask (before I even had to ask) and UGH the hurdles #NEISVoid

forgot #NEISVoid to reach more people who really understand

When you're severely ill, your suicidal thoughts are seen as completely reasonable, and are called nice things like "assisted dying" by healthy people while completely brushing over the fact we never got assistance to live, or even survive. Never say you didn't know. #PwME #SevereME #NEISvoid

Ironiskt nog hör inte journalisterna av sig om detta, men WoA däremot är värt att skriva om? Inte för att det inte var ett jävla fiasko, men detta är en ren katastrof och bokstavligt talat livsfarligt. Det går emot all högkvalitativ forskning och är bevisat skadligt för patienter. #PwME #NEISvoid

RE: https://bsky.app/profile/did:plc:nakhuqdzwi4yb3yb75yajhrs/post/3loyfwzarjk2j

New thing to add to the list of shit I’m not allowed to do until my POTS meds kick in: cut a loaf of sourdough.
#POTS #NEISVoid

Migraine again.

Again.

Again Again Again.

#chronicmigraine #NEISvoid

why am I like this?

Eeeeepy. I went to bed at about 4:30-5 AM after a very long Gossip Girl binge, insomnia, executive dysfunction, gut pain, and simply…vibing. Now to reckon with the consequences of my actions. [unhinged screaming begins in my brainhole] -Allēna #eepy #ActuallyAutistic #gutpain #IBS #NEISvoid

#ActuallyAutistic #eepy #gutpain #ibs #NEISvoid

During migraine days, or high pain/low energy days, where I'm essentially stuck in bed with very little to occupy me beyond my own lewd thoughts, my YouTube Watch Later playlist has become somewhat of a life saver.

My Watch Later hit up to 50+ videos recently.

Scrolling my subs and recs feeds, adding videos to the list because they've interested me, but I didn't quite want to watch them right then.

I arrange the list by video length (a sorting option I wish they'd add so I didn't have to do it manually).

I now only have 4 videos on my list.

The silver lining of my inability to leave my bed and/or look at anything brighter than a low-light phone screen, is that I can hit "Play All," flip my phone over so the screen is hidden, and just listen to the videos while I lay in darkness.

Just in case anybody wanted a small tip for ways to survive being bed bound for long periods.

#NEISvoid #Spoonie #Fibromyalgia #MECFS #ChronicMigraine

hey #neisvoid folks, how different are your “pushing through” days compared w your “listen to my body” days? (I know some days there’s not a choice!)

I felt inspired this morning because I couldn’t sleep way too early, as usual.

Made some art based off of this post: https://opensorceryy.co/inevitability/ #TTRPG #poetry #poetrygame #digitalart #collage #queerpoet #cptsd #NEISvoid # cripplepunk -Allēna

#Collage #cptsd #CripplePunk #digitalart #NEISvoid #poetry #poetrygame #queerpoet #TTRPG

Inspiration…

How the eff it feels sometimes. I’m too tired to know where half of my ideas even COME from, they just hit me over the head with the poetic bonk stick and I compulsively HAVE to write them down. -Allēna #poetry #inspiration #channeling #amwriting #manifestation #automaticwriting #NEISvoid

#amWriting #automaticwriting #channeling #inspiration #manifestation #meme #NEISvoid #poetry #Shitpost

I love having chronic, untreatable vertigo, I love literally not being able to walk straight because I didn't sleep enough combined with incoming rain, this is great, this is perfect, fuck my need to eat or do anything today. And I need FOOD but nobody cares. #disability #NEISvoid