Lmst

New Sifillis Halloween #Zine! A scary ghost story called THE CURSE OF KLYMYDYA! #halloweenspecial #zineフェス東京 #zines #fanzine #zineフェス京都 #ZINEフェス吉祥寺 #book #books #bookboost #fart #farts #farting #cleaver #colostomy #colostomybag #ostomy
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I was just reminded that today it is two years ago I left the hospital following a bladder removal and receiving my #ostomy.

I could barely walk at the time, and had no idea if I could ever get used to that bag on my stomach.

It was not two weeks ago that during a 6km “quick” walk, my wife had to ask if I could please walk a little slower as she had a hard time keeping up 🫣
The bag and taking care of the ostomy is so natural now, I don’t even think about it!

#urostoma #ostomates

Current status: Relaxing by the window, sipping stool softener, and wearing a dress. Truly living the dream.

This week's adventure is recovering from a twofer surgery (number 9 since 2020), to repair some consequences of the last #cancer surgery in Feb/2024.

The softball size hernia and tennis ball size hydroseal I have been living with for the last year-ish seem to be on the mend ("your tummy is flat again!" -my lovely bride).

Oscar (my #ostomy), is back to making inappropriate noises and so the docs are advancing me to semi-solid foods today. After the ileus (and subsequent NG tube), last time I pushed back on the team and slowed them down to avoid a repeat.

Today's goal is to shower with actual warm water - very exciting.

If things continue as they have, Frankie the Foley should come out tomorrow and home Tuesday to start mentally and physically preparing for three weeks of radiation to try and shrink the pelvic tumors first week of July.

#CancerSucks #FuckCancer

View northwest from upper floors of SF building with two red construction cranes and a foggy SF city in background

I normally don't feed the trolls, but this one was too good to pass up #ostomy #crohns

Commenter makes joke about my rectum. Joke's on him, I don't have one!

TIL: I am supposed to use my bed bags for more than one night.

#urostomy #ostomy

As we head into my birthday tomorrow, I feel it’s fitting to share that I have a featured article in the Ostomy Canada Society magazine’s #Fall2024 edition!

I was asked to share my #BladderCancer &#Urostomy experience with my fellow Canadian #ostomates. Without my #ostomy, I would not be alive to see 49. I might now have lived to see 41 even. ...

Liz Hiles with the Ostomy Canada magazine Fall 2024 cover

Ostomy Canada magazine Fall 2024 table of contents. My feature is on page 48 - Too Young for Bladder Cancer.

Liz Hiles with her feature article on pages 48 & 49 in the Ostomy Canada magazine Fall 2024 issue.

I’ve discovered “intimate comedy night” may be the most anxiety-inducing social activity with IBD. Luckily, Helen Hong had us laughing from minute one, and got intimate with her own cancer story #CrohnsLife #ostomy #SunsetCenter

View of the stage at the sunset center in Carmel

3 Ways to Dress with an Ostomy #howto #diy #Ostomy

#KnowYourRisk #BladderCanAware #BladderCancerAware #SpotTheDrop #BladderCancerMonth24 #BCAM24 #BladderCancerAwarenessMonth #BladderCancerAwareness #UnsureIcon #urostomy #ostomy #ostomylife #urostomylife #urostomate #ostomate #ostomatelife #urostomatelife #AskMeAnything #AMA
World Bladder Cancer Patient Coalition
Bladder Cancer Advocacy Network (BCAN)

Happy New Year, 2023 was good to me, health-wise. I pray 2024 may be good for you, especially if you suffer from chronic health issues! #ibd #ostomy #crohns #HappyNewYear

My #Morning #Pathway 🍂🍁🍂

#goodmorning #sunrise #MN #Minnesota #fall #autumn #leaves #chilly #windy #coffeetime #coffeewithJR #longroadahead #cancer #cancersucks #chemo #radiation #surgery #CRC #ostomy #ostomate #palliativecare #hospice #weekend #Sunday 🎗️

My #Morning #Pathway 🍂🍁🍂

#goodmorning #sunrise #MN #Minnesota #fall #autumn #leaves #chilly #windy #coffeetime #coffeewithJR #longroadahead #cancer #cancersucks #chemo #radiation #surgery #CRC #ostomy #ostomate #palliativecare #hospice #weekend #Saturday 🎗️

ANOTHER Hollister urostomy pouch splitting open near the ring, with over a day of necessary usage left! (I need them to last a week & change on Sunday.) I used these for literally years without problems but this past year they keep tearing apart at the seal in the exact same manner. Different lots! Different boxes! Why is this happening all of a sudden? Why are Hollister pouches suddenly such sh*t? I have enough trouble just getting my medical supplier to fill my orders or else buy out of pocket on Amazon, I can't request replacements over & over & over. 😞 #ostomy

My #Morning #Pathway 🍂🍁🍂

#goodmorning #sunrise #MN #Minnesota #fall #autumn #leaves #chilly #windy #coffeetime #coffeewithJR #longroadahead #cancer #cancersucks #chemo #radiation #surgery #CRC #ostomy #ostomate #palliativecare #hospice #weekend #Friday 🎗️