A nice thing about getting a stem cell transplant is that after the procedure, you have to be revaccinated against everything. So I don't have to wonder whether I've been vaccinated against the measles.

"Are there other nice things about a stem cell transplant?"

Well.... there's the fact that it most likely saved you from death. That's a plus. Other than this, no. There's nothing else. It is a procedure that may kill you and which is replete with pain and misery.

#StemCellTransplant #cancer #vaccination #NiceThings #PainAndMisery

I‘m really not in the mood to read about the spread of Measles infections in the US and their probable global spread as my kid isn’t vaccined and still needs to wait another year to get the shot as a follow-up of her stem-cell transplant.
#measles #StemCellTransplant

One of the things that bring joy in my life is to cook and ferment foods. At the moment I have a couple of misos in progress plus my first batch of shoyu.

2 years ago I became a father of a kid with #HurlerSyndrome (MPS 1), a rare, poorly documented and treated degenerative sickness. She's been through a #StemCellTransplant and is spending a lot of time in the hospital. I will post about this topic too.

I boost toots a lot, so be ready to see a lot of posts by others when you follow me.

2/2

My 18 months old daughter, slowly in remission from her stem cell transplant of last October, just mastered crawling on her four legs and I think she desserves at least a gold medal for it.
#MPS #myMPSkid #stemcelltransplant

@adelinej

:headache:

Jesus H Fucking Christ on a pogo stick! The ignorance about Catherine's appearance is, indeed, appalling.

I got 8 rounds of methotrexate that went straight to my brain. This treatment was so hard on my body that I had to be hospitalized with every round. I puked. I shat my diapers.

Did I lose my hair?

Heck no!

Even when I had my stem cell transplant, I did not really "lose" my hair. I experienced a very partial loss, and then my hair merely stopped growing for a while.

Good for her if her treatment allows her to be in public, and to have a full head of hair.

The naysayers are worms, pure and simple! This is bullshit of the highest order.

:why:

#cancer #CancerSurvivor #chemo #StemCellTransplant #worms #bullshit

🔬 Bone marrow transplant is also known as stem cell transplant.

The process involves collecting and processing the stem cells 💉 , followed by conditioning chemotherapy and reinfusion.

Click here https://www.youtube.com/watch?v=MevXq-lNxNo to learn more.
#BoneMarrow #BloodCancer #BoneMarrowTransplant #stemcelltransplant

"Two-Time AML Leukemia Survivor & Stem Cell Transplant Recipient 🌟💪 My journey is a testament to resilience and the power of hope. #CancerSurvivor #AMLLeukemia #StemCellTransplant"

http://dlvr.it/T0DnLw

It is about this time three years ago that my oncologist told me that the tumor that was in my brain had been kicked out after two rounds of chemo.

My cancer was an PCNS lymphoma. It nearly killed me.

The tumor was gone, but it was just the beginning of my chemo. This chemo was going to be followed by a stem cell transplant.

Well, I'm still alive. :catjam:

#cancer #chemo #StemCellTransplant #tumor #CancerSurvivor

Genetic Findings of Potential Donor Origin following #Hematopoietic Cell Transplantation: Recommendations on #Donor Disclosure and Genetic Testing from the World Marrow Donor Association (WMDA)

#wmda #htc #hematopoietic #marrow #bethematch #genetictesting #ethics
#stemcelltransplant #stemcell #CellularTherapy
https://www.astctjournal.org/article/S2666-6367(23)01708-6/fulltext

#TheMetalDogArticleList
#BLABBERMOUTH
DEF LEPPARD's VIVIAN CAMPBELL Updates On Hodgkin's Lymphoma Fight
On "Lymphoma Voices" podcast, Vivian Campbell discusses his ongoing struggle with Hodgkin's lymphoma since 2013, sharing his experiences and current status.

https://blabbermouth.net/news/vivian-campbell-offers-update-on-his-ongoing-battle-with-hodgkins-lymphoma

#VivianCampbell
#HodgkinsLymphoma
#Cancer
#CancerTreatment
#StemCellTransplant
#LivingwithCancer

If you want to see me cry, narrate to me the story of a kid who had to deal with life-altering hardship.

Cancer stories are the hardest.

Yep, I'm crying. I watched the video I'm linking to below. I know some people will watch it and think "why the tears?" I'm crying because I've been there, and it was so bloody hard on me. I was 48 for most of my treatment. I cannot imagine how difficult it would be for younger folks, especially kids.

Charlotte had more or less the same treatment that I did. The chemo was probably done with a different agent. However, she did get a stem cell transplant (They call it bone marrow transplant in the video.) Mine was autologous. They gave me back my stem cells. Hers I think was allogeneic. From what I get of the video, her brother gave her the stem cells. The allogeneic process is much rougher on the body.

In her case, it sounds like she got the transplant when her cancer came back. In my case, they did not wait for the cancer to come back. The type of cancer that I had is pretty much guaranteed to come back if you don't do a transplant.

I've been there. It was so hard. That's why I cry when I see kids having to go through hardships like this.

#cancer #tears #crying #hardship #CancerSurvivor #chemo #StemCellTransplant #BoneMarrowTransplant

https://youtu.be/bdeXhYj2DN0?si=LqTero9DdXkfVF4F

@ICM very cool - wasn't aware of this as a thing at all!
#CriticalCare #ICU #sepsis #stemcelltransplant #EndothelialActivation

(PS. link doesn't work - needs copy paste)

Advice For People Dealing With Cancer, Or A Possible Diagnosis

How to go through this ordeal, without completely losing your mind.

@adelinej prompted me to write this one. It was written quickly. If you see spelling mistakes or other issues, please tell me.

May all sentient beings benefit from my own suffering!

#YourAutisticLife #ActuallyAutistic #AutisticWriters #cancer #chemo #SilverLinings #CancerDiagnosis #misdiagnosis #complaints #SecondOpinions #feelings #StemCellTransplant

https://open.substack.com/pub/yourautisticlife/p/advice-for-people-dealing-with-cancer?r=2hhuwi&utm_campaign=post&utm_medium=web

People with Basque heritage :

If you have a similar ethnicity to Leo shown below (Half Filipino and Half Jewish/English/French/Spanish/Basque), you could be a potential bone marrow/stem cell donor.

You can donate in over 54 countries and the team at Be The Match will be able to match you thanks to the Global Registry: https://wmda.info/become-a-donor/?src=mastodon
#wmdd #wmda #stemcelltransplant
#Euskadi

Cada año miles de personas necesitan un donante de #médulaósea para recuperar su salud y no cuentan con un donante compatible en su familia por lo que deben recurrir a un donante no emparentado. Por eso existen en el mundo los Registros de Donantes.

Aqui un video de #incucai en #argentina

#stemcell #stemcelltransplant #wmdd #wmda #THANKYOUDONOR #thankyoudonors
Full video https://youtu.be/D0ClzhEhpRY

I have a bit of a sore throat this morning. Nothing worrisome. I think that's the first infection I get after my stem cell transplant. I guess it is a sign that my immune system is working. 👍

It did keep me up last night for a while, however. Stupid sensory issues. 😩

#SoreThroat #Infection #StemCellTransplant #ImmuneSystem #cancer

FINALLY!!

I hope people listen.

"It may be time to break out the #Masks against Covid, some experts say"

...high-risk groups include people with:

#Diabetes
#Cancer
#ChronicLiverDisease
#ChronicKidneyDisease
#ChronicLungDisease
#OrganTransplant
#StemCellTransplant
#HIV or other immunocompromising conditions
P.S. #Covid causes #ImmuneSystem issues
#LongCovid
#HeartDisease
#Stroke
#Dementia
#MentalHealth issues
#Octogenarian
#Septuagenarian
#Sexagenarian
#President

https://www.cnn.com/2023/08/23/health/masks-covid-surge-wellness/index.html

Tomorrow, I'm going to be at Johns Hopkins for most of the day for some sort of psychiatric evaluation. It was ordered by my oncologist, so it is a cancer thing more than an #autism thing. The cancer, the brain biopsy, the chemo, and the stem cell transplant that I got can do a number on your brain.

Of course, I'm also going to surprise them with my self-diagnosed autism. I plan to go with my Chromebook in my backpack. (My laptop is just too cumbersome.) I have recorded in a document all the points that make me think that I'm #ActuallyAutistic.

If they want to fight me on this, I'm ready. Johns Hopkins saved my life. I'm grateful for this. However, it is also a business, and it is a business with blinders on sometimes.

#JohnHopkins #cancer #BrainBiopsy #chemo #StemCellTransplant #PhysicalHealth #MentalHealth

@missingbrighton @tanquist @google I got my first and only #Chromebook so far when I was in the hospital. I checked the dates and that was a few weeks before I started chemo.

I was in a really pitiful state, but I did not know that I had #cancer yet. Still, I knew that I was in bad shape and that I'd probably visit the hospital very often. My #Debian laptop is too bulky and heavy, especially in the weak state I was in.

So I decided to get a Chromebook. It is smaller than my laptop and much lighter. It served me well during my #chemo and my stem cell transplant. It allowed me to stay in contact with people, especially given that no visitors were allowed due to #COVID.

It is now my main workhorse, but my old laptop has given signs of wanting to kick the bucket. Maybe the new laptop will be my workhorse now.

(I still used the old laptop for compiling software or video editing, as these require more CPU.)

#StemCellTransplant