Lmst

It's going good, but it would be nice if some more jumped on, especially since Emi just open international shipping:
Hotzone, a heist skirmish board game in the Hc Svnt Dracones universe by Emily Fraser, via https://www.kickstarter.com/projects/wgfproductions/hotzone-a-heist-skirmish-board-game-0

#Kickstarter #HSD #HcSvntDracones

Knobbly thumb joint got more obvious last night. Distinctly stiffer than the other thumb and a bit painful too. They weren’t painful before (the other knobble is my middle finger, both left hand). The other one is worse than I remember too.

At least it doesn’t affect typing. I couldn’t think which fingers I use to type and now I see it’s the middle of each hand, at least on the iPad. Don’t need to bend my fingers to type 🤷🏻‍♀️

#arthritis #joints #hypermobility #HSD

Favorite sleeping position with EDS/hEDS/Marfan.
Seen on FB (ehlersdanlosboy).

#eds #hsd #heds #marfan

The image depicts a simple line drawing of a person sleeping in bed, lying on their side. One leg is extended straight, while the other is bent and drawn up toward the chest. The arms are tucked close to the body, with hands curled inward in a "T-rex" pose. The figure appears relaxed and cozy

06.2013 #instalegacy
17 Hippies in Erfurt
#17hippies #ontour #viewfromstage #audience #hsd #erfurt

Diagnosis: Hypermobile Ehlers-Danlos Syndrome

After self-diagnosing, I got an official diagnosis. The victory of the official diagnosis was upstaged by the foot trauma two days previously, which I now know is a broken bone. However, at lest it’s in the same limb as all my other orthopedic trauma and severe arthritis. That’s really my saving grace right now — it’s a familiar injury. Adding another new mystery set of symptoms would be less welcome than rehatching an old burden.

Anyway, back to the art. I love some of the light interactive properties here that are hard to capture in a scan so:

Reflective properties close up, gold paint in the eyes, green metallic reflection for the dark around and in the eyes. The shimmer (ultra fine glittering particles) in the green ink are vibrant blue, and in the blue zebra stripes are color shifting, right now a rose.

Metallic version of the hardware in my leg — I looked at my own x-rays for reference!

Final close up.

https://www.illmarks.com/diagnosis-hypermobile-ehlers-danlos-syndrome/

#art #bodyHorror #bodyMapping #chronicIllness #connectivetissue #connectivetissuedisease #eds #ehlersDanlosSyndrome #ehlersdanlossyndrome #heds #hsd #hypermobile #hypermobileEhlersDanlosSyndrome #hypermobileehlersdanlossyndrome #hypermobility #hypermobilitySpectrum #hypermobilityspectrum #hypermobilityspectrumdisorder #longCovid #longcovid #medicalArt #MillionsMissing #pwLC #pwme

the figure in the manila bookmark has iridescent blue zebra stripes, which like a real zebra are smaller and tighter on the limbs and larger on the torso. Within the zebra's white spaces are green ink with blue sparkles, representing points of injury or trauma which have healed 'imperfectly' or had lasting trauma due to the connective tissue disorder -- the left (mirrored) leg, right inner knee, inner thighs and outer hips, some on the hands/fingers, and a splotch on the chest. The bottom leg which is very dark green has golden reconstructive hardware drawn on

I Am Me ‼️🇳🇬✅👍♥️

🌼 #Sunday, #November2, 2025 ✨🙌
Happy 1st Sunday in #November2025 💙
“Always remember that your own resolution to succeed is more important than any one thing.” ✅♥️ #quoteoftheday #sundayfunday #NewMonth #SundayService #HSD #BahdlexEmpire #bahdlex

Symptom: Arthralgia and Arthritis

I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

Health & Care Advocacy Designer
Mast Cell Artist Syndrome
Chronically ill-ustrating Health Advocacy
Plague Artist

Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

Notorious Self-Diagnoser
Health Insurance Reform Enthusiast
Creatinine-level Checking Creative
Medical System Subverter
Bruh They’re a Totally Sick Designer
Mario’s Brother Appreciator

https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

#art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

there is a manila bookmark and the figure in the center is a human , with their joints in orange, like a ball-jointed doll or a crash dummy. The details on the joints are red. the components of the body are made out of purple-grey, and the parts of the body are lighter purple-grey. the figure has no face or fatures, just the fibrant orange red joints , of which there are many, more than we think of for an average human, two at each knee, two at each elbow, the shoulders and hips are large, the abdomen has 3 large joints going all the way across to give a range of motion, the neck, ankles, and wrists are also jointed. areas of the body including below the knees and over the neck also have grey lavender lines depicting the components of this doll person. it's hard to see in the scan, but the grey purple has iridescent shimmering particles in it irl, giving a somewhat ephemeral otherworld ly nature to this being. these components have a power to them and a kinetic energy, a life force. and yet by the colors, they burn.

Être handicapé et/ou malade chronique, c'est parfois revenir de vacances dans un état moins bon qu'avant notre départ.
En effet, même si je suis restée sur un rythme lent, ça restait plus intensif que ce que je fais chez moi où je suis alitée entre 20h à 22h par jour.
En plus, mon frère m'a offert un massage qui certes sur le coup, était très agréable mais qui a provoqué plusieurs subluxations douloureuses.
Souvent les médecins et/ou l'entourage nous exortent à nous reposer et nous détendre mais c'est loin d'être si simple que ça.
#hsd #emsfc

#hsd

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