#mastCell

Deer Witch Nyxmoss@kind.social
2025-10-08
2025-10-01

Symptom: Arthralgia and Arthritis

I need to pick a “job title” to describe the work I do here. I initially tried to make a poll with a plug in, but alas it didn’t work the way I hoped.

Here are some of the options I’m considering. Feel free to reply/comment with any or suggest your own!:

  • Health & Care Advocacy Designer
  • Mast Cell Artist Syndrome
  • Chronically ill-ustrating Health Advocacy
  • Plague Artist

Rejected (not great for professional use) options that I’ll share with you because I love you, but don’t tell my PCP about any of these, k?

  • Notorious Self-Diagnoser
  • Health Insurance Reform Enthusiast
  • Creatinine-level Checking Creative
  • Medical System Subverter
  • Bruh They’re a Totally Sick Designer
  • Mario’s Brother Appreciator

https://www.illmarks.com/symptom-arthralgia-and-arthritis-and-a-poll/

#art #arthralgia #autoimmune #bodyHorror #bodyMapping #chronicIllness #eds #heds #hsd #hypermobility #hypermobilityspectrum #longCovid #longcovid #mastCell #mastcell #mcas #medicalArt #MillionsMissing #osteoarthritis #pwLC #pwme #spondylitis #symptom #symptomVisualization #symptomtracking

there is a manila bookmark and the figure in the center is a human , with their joints in orange, like a ball-jointed doll or a crash dummy. The details on the joints are red. the components of the body are made out of purple-grey, and the parts of the body are lighter purple-grey. the figure has no face or fatures, just the fibrant orange red joints , of which there are many, more than we think of for an average human, two at each knee, two at each elbow, the shoulders and hips are large, the abdomen has 3 large joints going all the way across to give a range of motion, the neck, ankles, and wrists are also jointed. areas of the body including below the knees and over the neck also have grey lavender lines depicting the components of this doll person. it's hard to see in the scan, but the grey purple has iridescent shimmering particles in it irl, giving a somewhat ephemeral otherworld ly nature to this being. these components have a power to them and a kinetic energy, a life force. and yet by the colors, they burn.
2025-09-17

2025_8_19 The symptoms are coming from inside the house.

We are in a severe Covid surge right now thanks to Late Summer/Back To School, and it will also probably worsen significantly again for the winter holidays. Because your risk for Long Covid increases with each infection, here are some steps you can take during the acute infection to lower your risk of Long Covid, or lower the severity of how a reinfection will worsen your existing Long Covid.

This is not medical advice, this is a summary of things I have read from various studies, journalists, and newsletters, and what I try to prioritize for myself. I send this to loved ones who accept my offer for it when they or someone they know gets infected, and I figured I should make it more broadly accessible.

Ways to Lower Your Risk of Long Covid &
Lower The Severity of A Reinfection’s Worsening Your Long Covid

Medicines, Vitamins, and Supplements

  • Increase Vitamin D ASAP and sustain it for at least a month. It’s a reserve vitamin so you can’t cram it all in 2 days, and should not. It is possible to have too much Vitamins A & D, so please be mindful of dosing.
  • Increase Iron ASAP and sustain it, similarly to above.
  • Zinc, like Vitamin D, is key to our immune system’s functioning & signaling. Zinc can help boost underactive immune features, calm overactive immune features, and reduce inflammation. Additionally, studies have found Zinc levels are significantly reduced during Covid infection, and reduced in relationship to severity of infection, so it makes sense to combat this.
  • Metformin has LOTS of evidence of decreasing Long Covid risk with typically few side effects, but it does require a prescription.
    If you’re asking your doctor, I recommend supplying a trusted source: This 2023 Quadruple Blind RCT Study is a Gold Standard for clinical trials. If relevant, additionally add 2025 Study found added efficacy in Fat Folks, 2023 BMJ Blog, 2025 RECOVER Blog.
  • H1 Antihistamines have preliminary research to support them decreasing LC risk and SIGNIFICANT research supporting them as treatments in Covid-19 infections, plus ways to lower your Covid infection risk overall. All H1 antihistamines have shown in vitro benefits, however the ones I’ve seen most studied in humans are cetirizine/zyrtec, ebastine, azelastine, and loratadine. Most trials in humans used modern antihistamines, which I agree with. I do not generally suggest any first generation antihistamines including Dramamine, Benadryl, NyQuil, or their generic versions unless you have a medical reason for choosing them & their adverse anticholinergic effects. H1 antihistamines are typically available without a prescription in the US.
  • A recent study from Germany found a Nasal H1 Antihistamine, Azelastine Nasal Spray reduced covid infections by 69% (nice). More research is needed, but a 2x a day dose of Azelastine, or 3x a day dose of German Azelastine is extrapolated to be beneficial from a long covid precaution perspective, similarly to other H1 medications above. This is typically available without a prescription, and is inexpensive in the US.
  • H2 Antihistamines, especially Famotidine/Pepcid, reduce both symptom severity and viral load, leading to an earlier resolution of infection. These are available without a prescription in the US, and typically inexpensive.
  • Paxlovid is less effective at decreasing Long Covid risk in the acute phase, but does have other benefits, even if started late. It is additionally showing progress as part of a combination therapy. Stock up on mints and cough drops though.
  • Magnesium, Vitamin C and other immune-boosters can be very beneficial IF you are not autoimmune/don’t have other relevant considerations.
  • If you are on trans masculine HRT or similar medications please continue. Men & NB people with similar levels of hormones have lower risk and sometimes lower symptom burden than women & NB folks with similar hormone levels. We aren’t sure why yet.
     

Other OTC items which might help lower the viral load or otherwise make the acute infection less impactful:

  • A mouth wash containing PVP-I [povidone-iodine] or CPC [cetylpyridinium chloride]. This can be used multiple times a day.
  • Green tea (ECGC)
  • Hibiscus tea (ACE2)
  • Antioxidants and omega-3 fatty acids (including flaxseed oil, fish oil) help remove oxidative stress, which is helpful in both acute Covid (infection and replication causes OS) and in multiple forms of Long Covid. I’ve read . Antioxidants are vitamins A, C, E, Selenium (Se), and Zinc (Zn). Vitamin A is possible to overdo, so please be mindful of dosing.
  • Nicotine, surprisingly to some, though Indigenous People of Turtle Island know Traditional Tobacco as Medicine. If you are already using nicotine (including patches), you can keep it up during the acute phase to hopefully lower some risk. It is also being investigated as a Long Covid treatment, I had a positive experience with my experiment.
     

Transmission Precautions (how to protect people you live with, etc):

COVID is most often transmitted via the air, not droplets like we thought early in the pandemic. As such:

  • Fresh air will be your easiest and most effective option, assuming climate safety. Even a slightly open window will be MUCH better than closed windows.
  • Masks are extremely effective, especially when both parties wear them. Respirators (aka a mask with a safety rating such as N95, KN95, KF94, P2, FFP2, DS) are best, but anything is better than none. Try to get as good of a seal as you can/minimize air leaks.
  • Air filtering with HEPA filters is great if you have access and funds. Try to make sure the filter(s) you use are sufficient for the square footage of the space. Earlier variants had a filter goal of 6 air changes per hour (ACH), but anything is better than nothing, especially when combined with opened windows, etc. If the filters are insufficient for the square footage/meterage or ACH, place them for largest impact: for example close to the sick person, in areas with poor ventilation, or areas of high social contact.
  • If HEPA filters are too expensive or unavailable, try to make a Corsi-Rosenthal Box (a DIY air filter alternative using MERV13+ filters and a box fan, free directions abound online). Same strategies as above.
  • Last home air filter precaution: most climate control systems have a filter, and if that filter is already or can easily be changed to a MERV13+ filter, that will be an additional help.
  • If you must run errands/go to work/etc, please prioritize one of the rated respirators above. Try to do curbside or other distanced, outdoor pickup options where available.
  • There are nasal precaution options including the aforementioned OTC H1 Antihistamine Azelastine and Profi Spray (which is highly effective, but their science was measured with nasal swab application, not spray).
  • It doesn’t take a lot: We have stopped the acute spread of Covid in our home two times (that we know of!–the real number is probably much higher) by using only a couple strategically placed HEPAs and window cracking.
  • When in doubt, think Swiss Cheese:
     

Please Take Care:

  • If you feel any sustained exhaustion or fatigue, please rest and do not push yourself for at least two-three months after infection, including physical and mental exertion. A lot of us long haulers had an inkling early on that something was off but we pushed ourselves to be “back to normal” and that caused immense lasting harm. It might sound like a long time now, but a few months is a short time in comparison to the rest of your life. Trust me.
    I wish I had read this earlier: Indefinitely Ill – Post-Covid Fatigue
  • Pacing is the most helpful tool I have found for my health, and has been practiced by people with post-viral illness for a long time.
    Intro to pacing: ME Action’s Stop Rest Pace
  • Scheduling breaks with reminder alerts is how I do it, and by having specific things I look forward to about downtime (slowed audiobooks, a nature soundscape, etc). Some people are better at remembering on their own.
  • Lastly, I recommend using a symptom tracker even for initial infection (and that couple month period after). Hopefully before too long there won’t be many symptoms to track and things’ll be mostly a-ok, and it won’t be needed, but the way covid makes the brain all squiggly, IMO tracking symptoms is super important for understanding what your body needs to have your best chance at maintaining your current health!
  • The app Visible is popular in some LC communities, but a journal or calendar is a-ok too. It helps to check in with your body and see how much feels safe to do and what to prioritize. (Visible is free for symptom tracking and I recommend the free version short-term. If you end up needing long term pacing help and want to include the paid wearable, though here’s my coupon code: https://join.makevisible.com/68284299c4dc3e )
     
     
    Thank you for taking care of yourself and your communities. We need all the precautions, kindness, and care we can get right now.

    Additional Covid Safety info from someone else’s patreon:
    https://www.patreon.com/posts/huge-free-covid-86871700
     
    My other Long Covid & related topics info:
    Illmarks Resources Page

https://www.illmarks.com/symptoms-are-coming-long-covid-prevention-tips/

#allergy #art #backToSchool #backtoschool #besafe #bodyHorror #bodyMapping #cdc #chronicIllness #covid #covidIsAirborne #covidIsNotOver #covid19 #covid19 #covidcompetent #CovidIsntOver #environmental #health #healthcare #longCovid #longcovid #maskUp #maskup #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mcas #medArt #medart #medblog #medicalArt #MillionsMissing #pwme #SaltingTheVibes #SaltingTheVibes #sarsCov2 #sars2 #sciArt #SciArt #WearAMask #WearARespirator

the figure on the bookmark is silhouetted in outline vs the shape of a house, outlined in red and filled with purpley blue textures. the head of the figure, angled to the side, is attacked from all angles with dark rough textures of inky depths with red/rust particles, and purple angular lines pointing inwards, and breaking past the lines of the house. the figure stands on a square of purple ink as well, which balances the composition
2025-09-14

Symptom: MCAS Brain Fog

This post comes to you with a reminder that while “Brain Fog,” is an apt descriptor, it should not be used to undermine the severity of the condition.

“These are fairly identical functional symptoms that people with Long COVID have, to the symptoms that people within a traumatic brain injury have,” says Dr James C Jackson, psychologist specializing on cognitive rehabilitation and Long Covid.

“Strictly speaking, this is not a traumatic brain injury (TBI) because there’s no external trauma. Which is why if we go down deep, this will be not a TBI that people experience. It would be something called an ABI, the lesser-known cousin of a TBI. Acquired Brain Injuries (ABI) happen often due to internal processes, not external medical processes, inflammation, the 101 other mechanisms that drive these injuries. And when we look at the brains of some Long COVID patients, we see brain damage on MRIs, we see indicators that are not dissimilar from those of people with mild cognitive impairment or a mild TBI.

Dr Jackson is the author of Clearing the Fog: a book on navigating life with the cognitive and mental health impairments that often accompany Long Covid.

Quotes from Dr Jackson’s appearance on the Me Myself & TBI podcast, edited for clarity & brevity.

https://www.illmarks.com/symptom-mcas-brain-fog/

#abi #allergy #art #autoimmune #bodyHorror #bodyMapping #brainFog #brainfog #chemicallySensitive #chronicIllness #cognitive #cognitiveImpairment #cognitiveImpairments #longCovid #longcovid #mastCell #mastcell #medArt #medart #medical #medicalArt #MillionsMissing #neuro #neurology #neuropsych #psychiatry #Psychology #pwLC #pwme #tbi

the figure in the center of the bookmark is stretched and elongated, long limbs dripping in many layers. the center of the body and up over the head is obfsucated by smudgy dark ink with rust-colored particles inside it. Behind the figure are tall angular geometric shapes set in dramatic perspective.
Deer Witch Nyxmoss@kind.social
2025-09-06
Deer Witch Nyxmoss@kind.social
2025-09-05
2025-09-01

2025-8-9 Is this MCAS anaphylaxis, anxiety, or anaphylaxis from anxiety?

I almost didn’t want to share this one, because I’m in a bit of a nervous state, and I was worried about the people who think people with Long Covid are psychological malingerers, etc. When I had to leave work, and filed for US Social Security Disability, I kept my Generalized Anxiety Disorder out of my initial application, afraid of getting the dreaded “just anxiety,” dismissal that many complex chronic illness kin are familiar with. (I was later told this was a bad move, and to definitely include all mental health and neurodivergence things, which I did for the ongoing process.)

Even as I’m having less anaphylaxis risk, it’s taking time to recover psychologically. I told my therapist how I felt like I backslid over a decade in mental health work overnight from the first recent anaphylaxis episode. She kindly said that while I might feel as scared and threatened as I often did back then, that the trigger was different. I was not feeling that anxious about an email, I was feeling that way about a literal life and death situation, one which I still don’t fully understand the triggers of.

A decade ago, de-stigmatizing mental healthcare was really important to me too. Now, I’m especially aware of how much these issues intersect, so heck yeah, publishing the medical art about anxiety.

Lastly, I wanted to include few examples of the ways in which these issues intersect. These are absolutely the tip of the iceberg.

  • Postural Orthostatic Tachycardia Syndrome, or POTS, is a form of autonomic dysfuntction (when things your body normally does automatically stop behaving normally), and is a part of my Long Covid. It involves a high heart rate, and often symptoms like room spinning or lightheadedness, trembling or shaking, shortness of breath, and poor bloodflow. POTS is often misdiagnosed as anxiety, and The Disabled Ginger wrote about it here.

Theories that diseases are caused by mental states and can be cured by will power are always an index of how much is not understood about the physical terrain of a disease.

Moreover, there is a peculiarly modern predilection for psychological explanations of a disease, as of everything else. Psychologizing seems to provide control over the experiences and events (like grave illnesses) over which people have in fact little or no control. Psychological understanding undermines the ‘reality’ of a disease. That reality has to be explained.

Susan Sontag, illness as metaphor (New York: Farrar, Straus and Giroux, 1977), p. 55.

p.s. mental health is physical health and physical health is mental health. you got a literal brain in your body and all of your body is involved in everything that you do. please take care of yourselves and each other. <3

https://www.illmarks.com/2025-8-9-is-this-mcas-anaphylaxis/

#allergy #anaphylaxis #anxiety #art #autoimmune #bodyHorror #bodyMapping #chronicIllness #gad #generalizedAnxiety #immune #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastCellDisease #mastcell #mcas #medart #medblog #medicalArt #medwriting #mentalHealth #MillionsMissing #pwLC #pwme #SciArt #sciblog #sciwriting #symptom

the figure in the center of the bookmark is made up of layers of three different inks. a thin lined red ink roughly evokes the circulatory system of the body, and in the face makes concentric pulsing rings. a chiseled dark teal ink starts with jagged reflection of a high heart pounding, bursting, exploding, almost tearing through the paper. the lines echo throughout the body, slowly becoming thinner, slowly further more spread apart. lastly a dark green of varying thicknesss. there's a screwed up face, and then all around the body, flicking up and down around off of it in a frantic are thin thin pale lines almost like the feeling of bugs or something that can't be chased away the feeling the something's there it's all around and from multiple angles what is going on what the fuck is it
2025-08-18

Symptom: MCAS Bucket Explosion
Triggers Include: Drinking Water, Brushing Teeth, Being Inside

Seattle area folks who can attend IRL events:
I will be teaching a respirator-required art workshop related to this project, Bookmarks on the Body, at QTBIPOC Arts Space The Fishbowl on August 27, 6-9pm. I would love to see you there.

While this is not a hybrid event, I am creating virtual-only and disability-focused workshops! I will be using what I learn from this first workshop to improve the format, structure, and content.

If you have any questions, please feel free to reach out to me illmarks @ nyx mir dot com

https://www.illmarks.com/symptom-mcas-bucket-explosion/

#allergy #art #autoimmune #bodyHorror #bodyMapping #chronicIllness #chronicPain #longCovid #longcovid #mastCell #mastCellActivationSyndrome #mastcell #mcas #medart #medicalArt #migraine #MillionsMissing #pwLC #pwme #SciArt #seatac #seattle

the manila bookmark has a figure of a human on it, and their body is full of blues and greens, including sludgy/bubbling textures and toxic colors. An eruption comes out of the top of their head, and rains down around them. The inks are simultaneously dry and overworked, scratchy and bleeding in the paper, unclean outlines and discomfortable body shapes.
2025-05-30

Even after decades of knowing, I forget how much a mast cell/allergic reaction degrades my mood and mental state until well into the depression. #depression #mastcell #ehlersdanlos

Deer Witch Nyxmoss@kind.social
2025-03-15
2025-02-22

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