🗓️ Mark your calendars for 27 September! Join us at the next of our #ConsumerDebates to explore the exciting potential of heat pumps in Europe's climate action plans. Let's make the consumer switch to green heating a reality. https://www.beuc.eu/events/consumerdebate-consumer-switch-heat-pumps-how-turn-eus-plans-action

Join us and uncover the findings of our heat pump 'mystery shopping' project at the next instalment of our #ConsumerDebates on 27 September. After our study presentation, our panelists will address obstacles consumers encounter and brainstorm strategies to boost the adoption of eco-friendly heating solutions. https://www.beuc.eu/events/consumerdebate-consumer-switch-heat-pumps-how-turn-eus-plans-action

OK @beuc's #ConsumerDebates event on #EHDS is over.

tl;dr:

🤩 @TheProgressives MEP #PetarVitanov seems to have patients' right to #privacy front and centre. Kudos!

😖 The @EU_Commission seems to neither understand #bigdata nor their own #dataprotection law #GDPR. Sad!

💸 The #insurance #industry wants to milk us for more profits. Surprise!

🤔 And #BEUC defends #patients' rights but for some reason less so when it comes to the secondary use of #medical records by 3rd parties.

*** END ***

Of course the #insurance lobbyist gratefully jumps on that falsehood, throwing all the #innovation and medical advancement journey BS that the insurance industry allegedly provides at us. #EHDS #ConsumerDebates

It's mind-boggling how the @EU_Commission rep just says "don't worry, anonymised #medical records are not personal data" while ignoring a decade of #computer #science and re-identification #research.

Example: https://vimeo.com/91204492

#anonymisation #privacy #EHDS #ConsumerDebates

Oh my, #InsuranceEurope lobbyist pulls out the "data will cure #HIV" argument. And because data collection allegedly leads to lower insurance prices, it's really about #inclusion not #discrimination. 🤦

Sure.

#ConsumerDebates #EHDS

Great push-back from @beuc's #MoniqueGoyens against the insurance lobby: the whole idea of #insurance is the #mutualisation of #risk, so abusing medical records for individual premiums and prices breaks the entire system.

#ConsumerDebates

MEP #PetarVitanov points again at vulnerable folks 💪 Women in #Poland seeking abortion (abroad) need the protection provided by a #consent regime.

Abuse risks are all over the Commission's #EHDS proposal.

#ConsumerDebates

Lobby group #InsuranceEurope wants our medical records so they can be "competitive in the market", otherwise "higher prices", sorry folks.

Some people really have no shame.

#ConsumerDebates #EHDS #privacy #dataprotection

The #EHDS's entire secondary use regime for #medical records is so shaky that the European doctors' association #CPME calls to completely exempt doctors from it. 🤐

#ConsumerDebates #privacy #dataprotection #healthdata

So good to see MEP #PetarVitanov pushing back and emphasising the risks of #discrimination and abuse in particular for #marginalised people when medical records are shared without consent as foreseen by the #EHDS.

#ConsumerDebates

The Commission official continues to peddle the "the #EHDS gives patients more control over their data" nonsense. It doesn't.

#ConsumerDebates

I'm following @beuc's #EHDS #ConsumerDebates online and I still fail to understand this:

Their representative polls found that "the further away from the GP, the less people are willing to share their #HealthData" and yet BEUC concludes that while data use by medical profl's should require #OptIn consent, for secondary use by #BigPharma and #BigTech an #OptOut option is enough. ❓❓❓

Only 51% of consumers are willing to share their health data with healthcare practitioners across EU member states to secure good treatment when they are abroad.#EHDS

Join us on 4 May to join the #ConsumerDebates discussion: https://www.beuc.eu/events/consumerdebate-european-health-data-space-use-or-abuse-consumers-health-data

Don't miss out! George Veliotes (Insurance Europe) will be our final panelist for #ConsumerDebates on the European Health Data Space. Register now before it's too late and join us on 4 May: https://www.beuc.eu/events/consumerdebate-european-health-data-space-use-or-abuse-consumers-health-data

"European Health Data Space: use or abuse of consumers’ health data?" that is the question! #ConsumerDebates
Join us on 4 May for the results of our survey and an engaging panel discussion with MEP Petar Vitanov. Register now: https://www.beuc.eu/events/consumerdebate-european-health-data-space-use-or-abuse-consumers-health-data

Medical and health records aren't just useful for doctors. They're valuable to public health agencies, governments, researchers, and businesses across industries. But what are consumers comfortable with sharing?

Join the discussion with @SJMRoda (@CPME_EUROPA) at our next #ConsumerDebates. Register now: https://www.beuc.eu/events/consumerdebate-european-health-data-space-use-or-abuse-consumers-health-data

Next on our panel to discuss the European Health data space is Maria Roubtsova from our 🇫🇷 member group @UFCquechoisir. Register now to join the #ConsumerDebates conversation "European Health Data Space: use or abuse of consumers’ health data?" on 4 May: https://www.beuc.eu/events/consumerdebate-european-health-data-space-use-or-abuse-consumers-health-data

Join us and @FulviaRaffaelli (@EU_Health) on 4 May to discuss whether the EU health data space respects consumers’ preferences (or not). Don't miss out on this #ConsumerDebates: https://www.beuc.eu/events/consumerdebate-european-health-data-space-use-or-abuse-consumers-health-data

Curious about consumers' attitudes towards sharing their health data?
Find out more on 4 May during our online #ConsumerDebates. We'll be revealing the results of a survey conducted in 8 EU countries. Don't miss out: https://www.beuc.eu/events/consumerdebate-european-health-data-space-use-or-abuse-consumers-health-data