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Tom Kindlontomkindlon@disabled.social
2024-04-28

Detailed report now available for free for:

Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: Proceedings of a Workshop

pubmed.ncbi.nlm.nih.gov/386483

@longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #PASC
#PTLDS #multiplesclerosis @mecfs
#Lyme
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: Proceedings of a Workshop National Academies of Sciences, Engineering, and Medicine; Health and Medicine Division; Board on Health Sciences Policy; Board on Global Health; Forum on Neuroscience and Nervous System Disorders; Forum on Microbial Threats Megan Snair, Julie Liao, Elizabeth Ashby, Claire Biffl , editors. Washington (DC): National Academies Press (US); 2024 Apr 3. The National Academies Collection: Reports funded by National Institutes of Health. PMID: 38648305 Bookshelf ID: NBK602977 DOI: 10.17226/27462 Free Books & Documents Excerpt The National Academies Forum on Microbial Threats and Forum on Neuroscience and Nervous System Disorders hosted a hybrid public workshop in June 2023 to explore opportunities to advance research and treatment of infection-associated chronic illnesses. The illnesses discussed in this workshop, including COVID-19, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), persistent or posttreatment Lyme disease syndrome (PTLDS), and multiple sclerosis (MS), share overlapping mechanisms and symptoms and have been inadequately researched. Recognizing these commonalities, speakers identified the need to advance research more comprehensively, translating to improved diagnostic and treatment options for patients across multiple conditions.
Tom Kindlontomkindlon@disabled.social
2024-01-10

From the Massachusetts #MECFS & FM Association e-newsletter:
(#Boston, #Massachusetts)

MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants including healthy controls

Links in image
talresearchgroup.mit.edu/mitma
intake.mit.edu/surveys/?s=WLPF

#longCOVID #Lyme #ChronicLyme #LongLyme #PTLDS #PwLC

MIT MAESTRO study of Long Covid and Post Lyme Recruiting Participants The Tal research group at MIT is recruiting people with Long COVID, chronic Lyme, as well as healthy controls, for the MIT MAESTRO (Mucosal And systEmic Signatures Triggered by Responses to infectious Organisms) study. This study will investigate incomplete recovery from infections by probing body samples (blood, urine, saliva) for immune response and pathogens, as well as studying eye movement, cognitive function and hypermobility to understand neurological symptoms. Participants need to be between 18 and 65 years old and able to travel to MIT. The first step is to fill out a brief survey to assess eligibility.
Tom Kindlontomkindlon@disabled.social
2023-06-19

New:
Posttreatment Lyme disease syndrome and #MyalgicEncephalomyelitis
/ #ChronicFatigueSyndrome : A systematic review and comparison of pathogenesis

"This study adds to the expanding literature on the post-active phase of infection syndromes, which suggests that chronic illnesses such as #PTLDS & ME/#CFS have similar pathogenesis despite different infectious origins"

Free fulltext:
onlinelibrary.wiley.com/doi/fu

#Lyme @lyme #MEcfs #CFS #MyalgicE #PwME @mecfs

Screenshot of abstract and key points
Irish ME/CFS AssociationIrishMECFSAssociation@mastodon.ie
2023-01-20

2/

It looks like this study may still recruiting people from the US

snyderlabs.stanford.edu/crashc

Researchers are recruiting ME/CFS, #ChronicLyme and #LongCovid patients for a study to better understand symptom flares such as post-exertional malaise (PEM), or “crashes”.

@longcovid #ptlds #longlyme #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme

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