#RealWorldData

2025-04-25

#ActivityRecognition #research: I am looking for an outlet (peer reviewed) for a #tutorial paper on collecting #multimodal #data with #wearables and #IoT in #nursing homes. We learnt a lot in our pilot study in a #dementia #care ward and want to share our insights/mistakes with a broader audience (#Nursing, #Physiotherapy, #Psychology, #Neurology, #Gerontology) Anyone with a tip for an outlet that accepts a collection of practical considerations for collecting #realWorldData?

Medinfomedinfo
2025-03-27

-Chef über Pläne für Forschungsdateninfrastruktur, und mehr. Bald sollen verschiedene Daten gesetzlich Versicherter zu Forschungszwecken zur Verfügung stehen. Das BfArM freut sich und baut dafür die Infrastruktur auf. heise.de/news/BfArM-Chef-ueber

588 #ClimateSolutions #EV #RealWorldData

In the past year [2024] loads of mis/dis information was being published. Some obvious and some very devious and only disproved after a thorough research.
Like: a diesel or gas fueled car had a more efficient use of your energy. More powerful, and more efficient. Absolute bull ! [maybe the aggressive growl is a form of efficiency 🤬 🤣 🤮]
And very visual debunked at time stamp 2:22 and what does that prove: EV's are by far more energy efficient !
Please check out the other links in the description below the YT video.

"Are Electric Vehicles a MISTAKE?"
by Just Have a Think

youtube.com/watch?v=trepC6pbs0

Quote by JHaT:
"Dec 15, 2024
Are electric vehicles a mistake? Well, to listen to certain sections of the mainstream press and social media, you'd be forgiven for thinking that they're a disastrous concept and their sales are tanking fast. But does that tally up with the real-world data?"

link to Electric Vehicles UK: -> electricvehicles.uk/ <-

#TakeCareForLife #TakeCareForEarth
#StopBurningThings #StopEcoside
#ClimateBreakDown

BVMI e.V.BVMI_eV
2024-09-30

Am Mittwoch den 9.10.2024 ist wieder : „Möglichkeiten und Herausforderungen für mit “ von 17:00-17:45 Uhr. Mit Frau Johanna Apfel-Starke. Anmelden wie immer bei geschaeftsstelle@bvmi.de .

2024-02-20

📣 New paper: Using the present on admission (POA) indicator we explored acute #kidney injuries and sex #disparities It's an explorative analysis showing how the POA flag can help to analyse #routinedata more deeply. #realworlddata #openaccess

@nursingresearch

bmjpublichealth.bmj.com/conten

Screenshot of BMJ Public Health acrticle: Acute kidney injury, the present on admission (POA) indicator and sex disparities: observational study of inpatient real-world data in a Swiss tertiary healthcare system. Explorative analysis.
2023-11-30

A developer of medical monitoring systems with data from wearable devices will soon start asking individuals with epilepsy to offer data for an algorithm that predicts seizures.

sciencebusiness.technewslit.co

#News #Press #Science #Business #Epilepsy #Seizures #Neuroscience #Wearable #SmartWatch #Algorithm #MachineLearning #ArtificialIntelligence #Forecast #RealWorldData

2023-10-10

A group of managed care organizations is examining the value of real world data from Europe and the U.S. to help FDA review alternative biologic drugs.

sciencebusiness.technewslit.co

#News #Press #Science #Business #Biologics #Biosimilars #Pharmaceuticals #FDA #Regulations #Grant #RealWorldData #HealthRecords #InsuranceClaims #ManagedCare #DataScience

2023-10-07

On the @motoringpodcast this week we talk about real world data from companies actually controlling vehicles, which indicates that EVs do need tyre changes sooner than ICE. More to investigate, which it will be because this is costing companies money.

More of this please. Using facts and data not ideology.

#Podcast #AutomotiveNews #Podcasting #EV #Tyres #RealWorldData

To 👂 via streaming click 👉 motoringpodcast.com/episodes/2
To 👂 via Apple/Google click 👉 buff.ly/2ZvyyAo

The Motoring Podcast logo of a black alloy wheel with one quarter being representation of blue sound waves, with the text "The Motoring Podcast" and a white background.
2023-07-31

Many companies, even EU-based, buy patient's #realworlddata from proprietary data providers. Many data providers, even EU-based, sell patients' data for profit. But patients often don't even get their data to be used for their own health decisions, as the data is anonymized before it is licensed out.

That's why I don't volunteer my de-identified medical records for research

2023-07-05

Looking forward to #osf2023de panel 2 on #RealWorldData !

Stage with speaker and presentation on a screen
EU Medicines AgencyEMA_News@respublicae.eu
2023-06-25

What experience have we gained so far in conducting studies with real-world data to support EMA's regulatory decision making? 📊📉⚕️
Check out our new report to find out ⬇️ ema.europa.eu/en/news/use-real
#RealWorldData #BigData t.co/KBdAmqQwGh

🐦🔗: n.respublicae.eu/EMA_News/stat

Innovative Health InitiativeIHI@social.network.europa.eu
2023-03-24

It's #DIAEurope2023 Day 3 and we are there!
➡️ Catch IHI Scientific Project Manager Nathalie Seigneuret in a panel on #regulatory issues.
➡️ @IMI_EHDEN@twitter.com is part of a session on #RealWorldData in safety signal assessments
Details: bit.ly/41xcinq

2023-03-07

@rkbw @maikek

Für bestimmte Aufgaben können Beobachtungsdaten (wenn sie gut strukturiert erhoben werden) einen wertvollen Beitrag leisten. 👍

Die Autorin und die Autoren sprechen #Beobachtungsstudien ihren Wert ja nicht ab. Aber für #Nutzenbewertungen sind Nicht-RCTs hoch problematisch wegen der potenziellen Verzerrungen.

Der Weg, den sie empfehlen: "Effiziente RCTs *mit* #RealWorldData für Nutzenbewertungen".

iqwig.de/presse/pressemitteilu

2023-03-02

Unsere #Pressemitteilung zum #BMJ-Paper von Wieseler et al.

"Effiziente RCTs mit #RealWorldData für Nutzenbewertungen: evidenzbasierte Versorgung beschleunigen!"

Gemeinsam mit Kollegen der belgischen HTA-Agentur KCE werben drei Mitarbeiterinnen und Mitarbeiter des IQWiG im BMJ für effizient geplante und durchgeführte #RCTs auch auf vermeintlich schwierigem Terrain.

iqwig.de/presse/pressemitteilu

Links ein Porträt von Erstautorin Beate Wieseler, rechts ein Zitat aus der PM: "Eine effiziente Evidenzgenerierung sollte die Anforderungen sowohl der Zulassungsbehörden als auch der HTA-Einrichtungen bzw. Kostenträger erfüllen. So ließe sich der Zugang zu einer evidenz-basierten Patientenversorgung wirklich beschleunigen."
2023-03-02

3/

Investigating new drugs in routine practice after marketing authorisation (i.e. using #RealWorldData has been an integral part of accelerated approval concepts.

Recently, the debate was fuelled by availability of large data sets from electronic sources, e.g. electronic health records, claims data or patient registries.

In addition, there is the narrative of #RCTs becoming more and more difficult due to small patient populations or high costs.

2023-02-20

q-centrix.com/service-lines/re

Interested in #healthanalytics #realworlddata? #ClinicalResearch? Join us for this #webinar on taking control of your facilities clinical data for research! Please retoot for greater exposure!

Flyer for QC webinar: Research Week Webinar: How hospitals can take control of their clinical data for research Tuesday, February 28th, 12-1pm EST Not sure what real world data means for your facility? Empower your understanding of how clinical and real world data are advancing modern research and get actionable next steps to create an ideal RWD model.
EU Medicines AgencyEMA_News@respublicae.eu
2023-02-15

#RealWorldData on the #Mpox vaccine show that it is effective, especially after 2⃣ doses.

Discussions are ongoing with developers of other vaccines for Mpox and other viruses of the same type.

#EMAPresser

🐦🔗: n.respublicae.eu/EMA_News/stat

2023-02-09

Data Support Placebo Group Alternatives in Rare Disease Trials

Findings from a review of medical #data and #records indicate matched #genetic control groups may not be needed in clinical trials testing treatments for Duchenne muscular dystrophy.

sciencebusiness.technewslit.co

#News #Science #Business #ClinicalTrials #DuchenneMuscularDystrophy #Neuroscience #Neurology #ControlGroup #Placebo #Statistics #RareDisease #InheritedDisease #RealWorldData

Illustration of DNA double-helix as a puzzle with missing pieces
2022-11-14

💡 Created by ANSM (French health Authority) and CNAM (French Health Insurance), EPI-PHARE carries out, pilots and coordinates pharmaco-epidemiological studies using complex and massive data from the French National Health Data System to enlighten public authorities in their decision-making.

💡 EPI-PHARE aims to produce new knowledge on the use, misuse, benefits and risks of medicines and health products in real life.

👉 epi-phare.fr/en/who-are-we/

#EpiVerse #RealWorldData #PharmacoEpidemiolgy

2022-11-13

My #introduction:

I repurpose observational #RealWorldData into scientific evidence for the prevention and treatment of human disease. At #CAUSALab, we often do so by explicitly emulating a #TargetTrial. Other times we analyze #RandomizedTrials.

I teach #causalinference methods at the #Harvard T.H. Chan School of #PublicHealth. My online course #CausalDiagrams and “Causal Inference" #WhatIfBook (with James Robins) are free. See my profile.

#epidemiology #epiverse
#statistics
#datascience
#AI

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