Sonjo

They/them

A queer disabled lil pastel sparkly thing.
Event coordinator.
Really into video games + sewing + burlesque.
AutDHD, ME/CFS, POTS

2023-12-02

@Cal yes! And they do it year-round, not just for the holidays! They're basically constantly filming something.

2023-12-01

Merry Holiday Month, butts.

Me and some of my humans have an annual tradition of watching bad holiday movies a few times during December. Every year the selection process evolves to further help us choose the best of the newly released Hallmark Holiday Trash.

This year I put in a lot of work to make a spreadsheet of this year's releases so noone else has to sift through listings and track down trailers!

Please enjoy.

docs.google.com/spreadsheets/d

Sonjo boosted:
2023-07-02

ME conference Oct. 11-12th organised by the patient organisations in Sweden, Norway, Finland and Denmark. It takes place in Stockholm, Göteborg and online. Speakers are: Dr Bhupesh K. Prusty, Dr. Eirini Apostolou, Dr Amy Proal, Professor Diane O´Leary, Dr Nigel Speight, Dr Anne Kielland.

rme.nu/forskning/konferenser/

#mecfs @mecfs #MyalgicEncephalomyelitis #cfs #ChronicFatigueSyndrome #cfsme #pwme #PwMEs

2023-03-07

Judith Heumann passed away a few days ago.

I have a lot of feelings about it and if you aren't familiar with her work as a disability rights activist, it'd be really neat if you went and learned about her today.

I highly recommend the documentary 'Crip Camp' which follows a small group of disabled peers at a summer camp, Judy included, that eventually grew into a huge disability rights movement and ultimately led to the creation of the ADA in the US.

judithheumann.com/the-world-mo

2023-03-07

Been doing some vet visits with Smaug lately. Please enjoy skelenoodle.

#snek #snake #IMGboa #pets

An x ray of a boa constrictor from above. His skull and the top quarter of his body are visible, arranged in a squiggle shape like snakes do.
Sonjo boosted:
Irish ME/CFS AssociationIrishMECFSAssociation@mastodon.ie
2023-03-06

ME Association:

Severe ME Week (August 2022): “I was locked inside a shell that was too weak to protect me but too strong to escape…” - TW: Upsetting Content.

Kathryn describes the impact severe ME/CFS has had on her life.

meassociation.org.uk/2022/08/i

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #SevereME #VerySevereME #SevereMEWeek2022 @mecfs @severeme

2023-03-06

There was snow here for about a wk which triggered a physical crash, interrupting my routine of gentle daily exercise. Now my heart rate is back to being ridiculous again. It’s amazing how much a 10 day break from a little bit of daily stretching has thrown me backwards!

Over the previous 6wks it was really nice to focus on managing just fatigue without having to also worry about how my heart was doing in response to sitting upright. Back to the routine I go!

#POTS #MECFS #Spoonie #Disability

Sonja is looking tired but cute. On the wall behind them is an activity tracker sheet. Across the middle of it is written “DON’T. PUSH.YOURSELF.TOO.HARD!”
2023-02-21

Hi it’s me, feeling more and more comfy with dressing up and wearing makeup on a regular basis again 🖤

#selfie #disability #ME/CFS #DressingUp #nonbinary #QueerCutie

It’s a bathroom selfie! Sonja is blonde and wearing sparkly translucent cateye glasses; their eye makeup is dark but understated and their lipstick is black. They’re wearing a long sleeved dark purple bodycon dress with a low horseshoe neckline. They’re standing against the tiled background of a nice looking bathroom; the corner of a lightbox featuring xray panels can be seen behind them. 

It’s a soft goth vibe and Sonja is cute.
2023-02-17

@NilaJones Thank you 💜 After putting a disclaimer like that I just assume everyone has the best intentions when responding (unless it's very obviously a case of them missing the point, but that's not the case here 😊)

2023-02-17

@artcollisions

So weirdly I actually started with knits! I found them to be a lot more forgiving when I was learning.

Maybe start with regular straight stitches to get a feel for how much you can stretch your fabric while sewing without warping them. Zigzag stitch is good too; anything that's easy to rip out. I started with stretch stitch, where you have to *not* stretch your fabric while sewing, and I warped the fabric a lot *and* it was way harder to rip out the stitches.

2023-02-10

Good compression-y outfit featuring my first hand-sewn leggings.

I wrote things about exercise and chronic illness and it's on cohost because I was too wordy to fit it into a single post on here.

cohost.org/SonjoLasagno/post/1

#POTS #MECFS #ChronicIllness #NEISVoid #Disability #Exercise #Sewing #Spoonie

Sonja stands in a creatively chaotic living room strewn with sewing supplies and purple decor; they are taking their photo in a large mirror, and they’re wearing teal compression leggings with a pink compression tank top. Their hair is blonde and short.
Sonjo boosted:
2023-02-07

I do not speak for all #queer people with this, but for me personally, my request is not that you don't play the #HarryPotter game. There are reasons people are making that request and they should be listened to, but my ask is a bit different.

My ask is in many ways much, much harder: Don't engage with it at all.

This means: Don't read reviews. Don't watch ads for it. Don't watch streamers who are doing lets plays. Tell youtube to not recommend channels that discuss it. Nothing.

2023-01-31

So at my cardiologist today I was informed that I am not just supposed to be wearing compression socks, I need compression garments all the way up to my waist?!

I've officially been prescribed leggings by a medical professional. Guess I really do have to start sewing all of my patterns for them soon.

#POTS #ChronicIllness #Spoonie #NEISVoid #Disability #SewingWhileSpoonie #CompressionSocks #CompressionGarments

2023-01-30

Yesterday’s hot chocolate festival run to Laduree with a friend! I had a Saint Honore Vanilla Caramel, a tasty arrangement of dark chocolate, caramel, vanilla, almonds, and tiny choux!

She had a Plaisir Sucre, a dream of dark chocolate, hazelnuts and (vegan?!) Chantilly. I did not try it but it sounded delicious!

Is good hot chocolate stop this year.

#HotChocolateFestival #HotChocolate #FriendOutings #FancyFood #Fancy #Tasty

This is a fancy hot chocolate on a fancy green patio table in a fancy green Laduree to-go cup, topped with chocolate Chantilly and caramelised hazelnuts and dark chocolate flakes and a fancy chocolate letter L. It looks real good.This is another fancy hot chocolate on a fancy green patio table in a fancy green to-go cup. It’s topped with vanilla Chantilly, caramel sauce, a dark chocolate letter L, AND some cute timy choux pastries.

A fancy eclair and macaron can be seen nearby.A woman poses at a green patio table holding a fancy lil hot chocolate in a green cup. She has short brown hair and red lipstick and her eyes are closed because I am terrible at taking pictures but she said she was okay with me posting this.Sonja is blonde and wearing all black and sitting outside holding a fancy lil hot chocolate in a green to go cup up to their face. They are smiling!
2023-01-28

Took a little trip to Victoria this week and we just had to do afternoon tea at the Empress 💜

#Tea #Fancy #Friends #AfternoonTea #MiniVacation

Sonja is sitting in a fancy hotel dining room in the daytime with a fancy teapot and teacup in front of them. They’re wearing a black dress and wearing light purple lipstick.Two blonde casual-goth femmes are sitting at a fancy table with an afternoon tea set in front of them. They are holding cute teacups and smiling.It’s a Sandra, with the big open dining room visible behind them and a teapot in front of them. They have a playful happy look.Two afternoon tea trays full of tasty treats. Some highlights are a blackberry macaron brushed with gold and some green pistachio cakes topped with pink icing and whole raspberries.

All of it was delicious.
2023-01-19

It’s Hot Chocolate Festival time again yay!

This year I have started a few days late because I am very limited physically rn, but this is my favourite annual event and I will not be prevented from enjoying tasty chocolate drinks over the next few wks!

Starting strong with Sasha Velour at The Federal Store - rose and cardomom hot chocolate with a rose marshmallow and a teeny chocolate cupcake! V tasty and I recommend if you like rose flavoured things. Or marshmallows 🥰🌹

#HotChocolate #Yum

A fancy hot chocolate in a glass cup on a saucer. It has a sugar rim, a square pink marshmallow floating in the centre, and rose petals sprinkled in a neat line across the centre.A slightly further away shot of the hot chocolate; a tiny pink chocolate cupcake with pink icing sits beside it on the saucer.
2023-01-19

No photos this time, I was going to take some today but we had a mishap where she was undersedated so she was such a screaming nightmare cyclone of claws at the vet that they couldn't do any of the examination.

So now I have even more drugs on hand to figure out what size the dose has to be to be effective. And once we've figured that out I can reschedule the appointment.

CATS.

#DoctorCat #cat #cats #catsofmastodon

2023-01-18

I had to give Doctor Cat her first of two doses of kitty sedative to prepare for tmrw's vet appointment and now she is a pile of jello awkwardly splayed across the bottom of my closet. I feel guilty but also she's so freaking cute and purry with giant saucer pupils, my poor stoned baby. 💜

#DoctorCat #cat #cats #catsofmastodon

2023-01-08

Happy #Caturday, here’s just a few of Doctor Cat’s poses from assorted points today.

Sometimes it might look like I'm manhandling her but I am not the one in control here; these are the ways that she insists on being held. 😅

#RussianBlue #GreyCat #kitty #KittyCroissant #pets #DoctorCat #cats

Doctor Cat is lying in croissant shape with one extended chimken leg on a pink blanket. She is dimly lit by pink light so the contrast between her and the blanket is considerable.Doctor Cat is lying on the pink blanket, wedged between two legs that are under the blanket. She kind of looks like a hot dog besides her two back legs that are lazy extended into the air.Doctor Cat is sitting on her human's lap upright like a human child. Her front legs are extended and hanging over their elbow. You can't tell from the photo, but she is purring happily and sagging further and further into this position.
Sonjo boosted:
2023-01-08

If you’re at the right place at the right time, with the right equipment, this is possible.

Last night, with guidance from transit-finder.com/, I positioned myself along the narrow line where the International #SpaceStation would pass between me and the nearly full moon.

I used a Fujifilm X-T4 shooting 4K video through a Celestron 8” SCT to capture the pass. Then, back at the computer this morning, put together these views with PIPP, Registax, and GIMP.

Quite pleased. My best yet.

Closeup view of ISS just above Tycho crater. Edge of moon visible I’m lower right of photo. ISS appears just larger than Tycho crater.Wider view showing about 2/3 diameter of the moon. Line of just over a dozen ISS silhouette images stretches from top right to lower left. Saturation boosted to show mineral colors on surface of moon.Even wider view showing full diameter of moon left to tight, but top and bottom cut off due to landscape image scale. Line of just over a dozen ISS silhouette images stretches from center right to lower left. Saturation boosted to show mineral colors on surface of moon.

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