Valwen 😷🏳️‍🌈

♿️ Naval Architect & Marine Engineer. I’ll never shut up if I think something is unfair or deeply wrong. I’m annoying, I know 😘.

#pwME #MECFS #ME #EDS #Endometriosis #OI #Dysautonomia #ADHD #Dyscalculia (yes, and an engineer, I’m THAT stubborn!) #NEISVoid #COVIDisAirborne #COVIDIsNotOver
Twitter immigrant, as many others.

Already a big fan of #MonDog and I have decided to commit to spam you every Monday! 🐶

[Also as @valwen because I still don't know how Mastodon works!]

Valwen 😷🏳️‍🌈 boosted:

Have you heard of the “‘Covid Collaborative”? No?

What do they want?

They want the pandemic to end by having people “make the courageous decision” to expose themselves to the Covid virus

They’re a big group of committed vocal minimizers like Gounder & Ghandi and 2nd generation minimizers like Slavitt and Frieden

Plus many many Democrat and Republican former governors, chiefs of staff, congressmen, White House staff, NSC-types

Plus hedge fund and investment types

You get the idea—people with access, $$$

An interesting member is their VP for Science & Strategy, Steven Phillips MD, MPH

He used to be the Medical Director for Global Projects at EXXON

He’s spoken repeatedly about the need to have courage and expose yourself, thereby ending the “Covid divide” (see photo below, from August)

How can so many people have signed on to this, and be willing to promote a basically eugenicist approach to this #pandemic?

Their ideas have flooded the world—scientists and doctors at some of the world’s leading universities are preaching against masks, in favor of “hybrid immunity,” even against vaccines

Signs on public transit say, “forget the mask” 😬

The president himself says I’m taking off my mask🦧

#whatishappening #COVID_19 #SARSCoV2
@novid

Valwen 😷🏳️‍🌈 boosted:

As of today the #documentary #film #Unrest, which tells the story of Jen Brea and her experience with #MECFS, is free through this link on #YouTube to stream legally.

It's a #SundanceFilmFestival winner.

#pwME #NEISvoid #longCOVID #PostViralIllness #MedMastodon
#UnrestFilm

@mecfs

m.youtube.com/watch?v=XOpyLTyV

Screenshot of the cover image of the documentary film Unrest on YouTube. The image is of a woman laying in a bed looking up at a camera with electrodes on her head. In the upper right corner is a logo noting the film as a winner at the Sundance Film Festival
Valwen 😷🏳️‍🌈 boosted:
ME/CFS Medical EducationMECFSMedEd@med-mastodon.com
2023-06-14

In honor of this year’s ME Awareness day we’re sharing a very simple message: for patients with long Covid or ME/CFS, exercise can be dangerous.

#MedTwitter #MedEd #MedicalEducation #Clinical #MECFS #MyalgicEncephalomyelitis #MEAwarenessDay #WorldMEDay #MedMastodon #LongCovid

Valwen 😷🏳️‍🌈 boosted:
2023-06-14

“Today, progress we achieved is at risk of reversing,” Guterres said. Disabled people “are often hit first and worst” when crisis strikes. “In every emergency – natural disasters, pandemics, armed conflicts – persons with disabilities lose lives at vastly higher rates.”

Disabled workers are often the first to lose jobs and the last to be re-hired. Disabled women and girls are more likely to suffer violence and abuse, face discrimination, and remain trapped in poverty.

news.un.org/en/story/2023/06/1

Valwen 😷🏳️‍🌈 boosted:
Irish ME/CFS AssociationIrishMECFSAssociation@mastodon.ie
2023-05-19

19/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retooting this @MEAssociation video.

"A wonderfully illustrated comic to explain M.E also known as #ChronicFatigueSyndrome (#CFS) to other people" (2 minutes)
youtu.be/G4Rijt8jtZg

Day 19
#PwME #MEcfs

@mecfs @cfs

Valwen 😷🏳️‍🌈 boosted:
Irish ME/CFS AssociationIrishMECFSAssociation@mastodon.ie
2023-05-19

19/

May is Myalgic Encephalomyelitis (M.E.) Awareness Month.

You can help by retooting this image.

Day 19

#MyalgicE #MyalgicEncephalomyelitis

@mecfs @cfs

Myalgic encephalomyelitis doesn't affect only adults: children become ill too and they can be very severely affected In terms of ME, being very severely affected means that the person is completely bedbound and/or paralyzed, tubefed, suffers with a myriad of severe symptoms and requires round the clock care. This is unimaginable suffering.
Valwen 😷🏳️‍🌈 boosted:
Ron Chusid :verified:rchusid@med-mastodon.com
2023-05-19

Denials of health-insurance claims are rising, and getting weirder.
We need Medicare for All.

washingtonpost.com/opinions/20

Valwen 😷🏳️‍🌈 boosted:
ME/CFS Medical EducationMECFSMedEd@med-mastodon.com
2023-05-19

This illustration by Kornelia Paulsen shows beautifully how ME/CFS, as an energy-limiting illness, restricts the lives of those who suffer from it.
#MedEd #MedicalEducation #MedMastodon #MECFS #MyalgicEncephalomyelitis #PatientExperience

Comic-style drawing. Title: M.E. How it can shrink one's world bits by bits. 

Panel 1: Before M.E. Ground, sky, tree, work, cafe, party with cake and balloons, air travel, mountains, tent and campfire, gym, house with bush and flowers. 

Panel 2: "Mild M.E." The ground has shrunk to a narrow cliff, there is only work, house and two flowers. In the background are rocks labeled 'PEM'.

Panel 3: "Moderate M.E." The cliff is even narrower, on it is just the house and one wilting flower.

Panel 4: "Severe M.E." The cliff is now impossibly narrow, and on it rests just a person lying in a bed. The background is darker.
Valwen 😷🏳️‍🌈 boosted:

“It is important to advise rest during the acute phase of the disease or during relapses. Patients require sympathy, understanding and reassurance and must be encouraged to accept the limitations imposed upon them and to 'come to terms' with the disease. Admonitions to 'snap out of it' are totally misplaced.”

/Ramsay & Emond, "Benign myalgic encephalomyelitis or epidemic neuromyasthenia", Infectious Diseases, 1978.

#pwME #MEcfs #histmed @historyofmedicine #HistoryOfMedicine #histodons

Valwen 😷🏳️‍🌈 boosted:

@evel Yep.

If you think that is early. I also have this quote about ME and rest from 1956.

“Premature activity should be avoided because of the danger that relapse might be provoked.”

/Compston, Epidemic at Royal Free Hospital, 1956.

#MEcfs #pwME

Valwen 😷🏳️‍🌈 boosted:
2023-03-28

We also have a German version.

Valwen 😷🏳️‍🌈 boosted:
2023-03-28

In NL zitten we nog middenin de heftigste corona-uitbraak sinds de omikron begin 2022, de "carnavalsgolf", terwijl een nieuwe, nóg gevaarlijker, nóg besmettelijker en meer immuunontwijkende variant al een vliegende start beleeft in India en enkele staten in de VS. Jawel, XBB.1.16 "Arcturus".

De eerste gevallen zijn al in Nederland gesignaleerd. We zouden nu in de hoogste alarmfase moeten zijn, maar RIVM, OMT en VWS hebben besloten dat we rustig kunnen gaan slapen.

alleburgers.nl

Valwen 😷🏳️‍🌈 boosted:
Julie Webgirl - Just Your Luckjustyourluck@masto.ai
2023-03-28

Intelligent? #CovidCautious? Unwilling to accept the "new normal"?

Then you too, may have #Coronaphobia!

Coming to a DSM-5 near you.

THIS IS NOT A MENTAL DISORDER!

Where are the studies of people who ignore their own safety and are hell-bent on exposing others to a deadly or lifetime disabling disease because they are *tired* of being cautious?

Why isn't there a diagnosis for the corona foolish?

#CovidIsNotOver #MassDisablingEvent #NewNormal

ncbi.nlm.nih.gov/pmc/articles/

Diagram showing the psychological, cognitive, and behavioral symptoms of "Coronaphobia" ("Fear of contracting SARS-Cov-2")
Valwen 😷🏳️‍🌈 boosted:
2023-03-15

"One BBC insider said: “Particularly on the website, our headlines have been determined by calls from Downing Street on a very regular basis.”"
#BBCImpartiality
theguardian.com/media/2023/mar

Valwen 😷🏳️‍🌈 boosted:
Joop #LoCovid #NoPlanetBjoopdelfijn@mstdn.social
2023-03-15

Ik heb gestemd! Ik zag er enorm tegenop, omdat na het besluit van Kuipers mensen die zichzelf (moeten) beschermen tegen besmetting vogelvrij zijn verklaard: "Het is tenslotte toch maar een griepje". Ik vreesde dus gevraagd te worden mijn ffp2 mondneusmasker af te moeten zetten voor de identificatie. Wat ik dus zou weigeren, alleen als het buiten zou kunnen.
Er werd me niet gevraagd het masker af te zetten! Pfff... Ik hoop dat jullie allemaal net zoveel geluk hebben, want stemmen is cruciaal!

Valwen 😷🏳️‍🌈 boosted:
Hanneke van ZijlHannekevanZijl
2023-03-15

@joopdelfijn
Zojuist precies dezelfde ervaring Joop! In het stembureau werd er niets van gezegd en zowel identificatie al stemmen mocht gewoon mét ffp2.
Dus iedereen met een mondneusmasker... Laat je hierdoor niet tegenhouden en breng je stem uit!

Valwen 😷🏳️‍🌈 boosted:

Laat ze niet winnen.' zei de VVD afgelopen vrijdag bij een filmpje waarin je klimaatdemonstranten zag demonstreren. Maar na tien jaar Rutte is inmiddels wel duidelijk wie er wint en verliest in dit land. Terwijl alle prijzen stijgen en lonen achterblijven maken de grootste bedrijven recordwinsten. Na tien jaar Rutte heeft 10% van de Nederlanders tweederde van al het vermogen in handen. Na tien jaar Rutte is het meeste nieuwe werk onderbetaald flexwerk. En in tien jaar Rutte werden toeslagenouders vermorzeld en Groningers een rad voor de ogen gedraaid.

Het is de hoogste tijd dat VVD nu niet wint. De hoogste tijd dat kiezers de partij zien voor wat het is: de uitbuiting van mens en milieu om de rijksten nog rijker te maken. Daarom wilde ik je vragen of je deze anti-vvd meme op je Twitter/Insta wilt plaatsen zondagmiddag met de #LaatZeNietWinnen.

Valwen 😷🏳️‍🌈 boosted:
Kim Crawley (she/her) 😷🍉crowgirl@hachyderm.io
2023-02-06

Share this far and wide, #COVIDisAirborne crew, @trendless , etc.

This is why hospitals push leaky baggy blues. This is why the people who are trying but don't do their research think surgical masks are good.

This is the origin of countless deaths and LC disabilities. (Full alt text is provided.) #CovidIsNotOver

Maarten de Cock tweet:

"Shocking blogpost (27 Febr. 2020) by Prof. Andreas Voss (@AVIPNL) , member of @WHO’s IPC group.

He openly says he will have to LIE to healthcare workers. 

‘[…] soon we will have a shortage of FFP2 and will have to tell our HCWs that FFP1 and surgical masks are “equally save”’."

Image inside tweet is of the February 2020 blog from a WHO official saying surgical masks aren't good but they should say they are because of a lack of N95/FFP2 mask supply.
Valwen 😷🏳️‍🌈 boosted:
Kristen Stuppy, MD, FAAP 🦄pediatricskc@med-mastodon.com
2023-01-23
Valwen 😷🏳️‍🌈 boosted:
Dr. Brandy Schillacebschillace
2023-01-09

Listen, if you are feeling like it’s too late to follow your dreams or to change things, recall that the very first LIFE ON EARTH film by David Attenborough came out in the 70s when David was 53. Think of every amazing thing he has done since to change the world and promote the environment; these happened in his 50s, 60s, 70s, 80s, and now at 96 he is working on a new documentary in Scotland. I’m 45. It’s like I haven’t been born yet in David years.

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