@tomkindlon @mecfs I LOVE seeing #LDN on this list. That stuff saved my life, I couldn’t tolerate being bedbound but Wide awake anymore, and that stuff saved my life.
Stimulants really help me with the #fatigue as well. I know lots of people are told to not use Adderall if they have MECFS because they might overdo it, and I totally get that. You have to get proper pacing into place first. When I couldn’t get myself out of a month-long crash I asked my doctor if I could have some prednisone. We had a long talk about the dangers of it, and how I couldn’t use it a lot, but one dose of 10 mg prednisone got me out of a crash that I couldn’t get out of. It helped me more than the Adderall (with fatigue, unfortunately I also have #ADHD and prednisone doesn’t do anything for that) and when I jumped for joy about it he started digging around to read studies, if there are any.
I would just like to add that it’s important to be cautious with the #gabapentin. Back when I took it I only took it at night but it still gave me massive daytime brain fog and fatigue. I really had no idea how bad it was for me until I stopped taking it and saw such a significant improvement. And honestly it didn’t really help with the nerve pain, it would help well the pill was active in my body, but once it wore off the next day the nerve pain would come right back. Totally not worth it for me.