Evening, Toots! Well, my day started badly- really been battling the #TrigeminalNeuralgia lately, and had a #Migraine on top this morning. But I made it to Art Therapy, and even though the usual person wasn’t taking the class, it was good to catch up with some friends, and the work we dd in class was helpful. And when I got home my birthday present I ordered for myself from Finland had arrived! I might have to wear these fabulous guillotine earrings tomorrow. Thanks to @sinituulia who inspired me to get them - I love them!

From a recent visit to an ENT (ear, nose, throat) physician, it appears I have a painful condition known as trigeminal neuralgia aka tic douloureux. It is resulting in it being very painful to eat, drink, swallow, brush teeth, smile, sleep, and even breathe sometimes, and has been intense for a few weeks now.

And a first-line treatment (the drug Trileptal, -- oxcarbazepine) that I am taking for a mental health condition could instead be doing the opposite reaction and exacerbating the condition.

Does anyone have any stories you can share about the condition and possibly treatment that worked for you or someone you know? It seems to be less discussed in the non-clinical setting.

#AskFedi #TrigeminalNeuralgia #Oxcarbazepine #Trileptal

I have discovered that in my journey to learn ASL with my family, in order to deal with my selective mutism, my children and I have learned *So Many* ways to swear.

I'm not sure if we should be proud or not 🤔🫠

#TNWARRIOR #TrigeminalNeuralgia #parenting #NEISVOID #chronicpain

Shout out to my friends, who when trying to communicate with me via #ASL, notepads, and a few slurred words, will continue conversation without missing a beat as if I was speaking all out loud and clear.

My tribe brings me strength.

#TNWARRIOR #TrigeminalNeuralgia #chronicpain #mute
#NEISVOID

Also (Gah, Caity, you’re talkative today!) strange side effect of new medication that I’m noticing - maybe? The neurologist started me on #Gabapentin 300mg 3 times a day for #TrigeminalNeuralgia. I’ve been on that dose for a couple of weeks now.
I trained as a classical/concert band musician, my ambition was to be an orchestral flute player, went all the way through AMEB for flute and theory/musicianship (5th grade piano.) All the going to music camps (thanks, heard the jokes). Did the usual choirs, (alto) etc. Got a bit derailed and didn’t go further, but did play in concert bands later. Then, long period where music was pretty dormant. I stopped enjoying it somehow. It’s been starting to come back. Then Gaba, & POW, I’ve GOT music again, I can HEAR the orchestra, I can SEE the notation (not completely, it’s like, coming back in bits, like a rushed exam, writing down a score?) So either I’m going psychotic or something’s waking back up? Anyone else? I don’t mind it, just… hmmm.

It's been raining, snowing & sleeting for like three days straight. My joints hurt so bad. Sour weather & cold air trigger my trigeminal neuralgia too. My face burns like a cut with lemon juice & peroxide & my teeth hurt like they're being drilled 😩 I haven't been able to eat all day cuz of my face & teeth hurting. I can't lie down & sleep cuz I hurt too much & I'm hungry.
#disabled #NEISvoid #TrigeminalNeuralgia #disabled #NEISvoid #TrigeminalNeuralgia

📰 पुढारी मध्ये प्रकाशित – 'ट्रायजेमिनल न्युराल्जिया: लक्षणे व उपचार'
💡 डॉ. रवींद्र पाटील यांनी ट्रायजेमिनल न्युराल्जिया या विकाराविषयी महत्त्वपूर्ण माहिती दिली आहे. चेहऱ्यात अचानक येणाऱ्या तीव्र वेदना आणि त्यावरील आधुनिक उपचार पद्धतींबाबत जाणून घ्या
📍 समर्थ न्यूरो आणि ट्रॉमा हॉस्पिटल, मिरज-सांगली रोड, मिरज
📞 संपर्क: 0233-2212600 / 73786 12600
#TrigeminalNeuralgia #HealthAwareness #ravindrapatilneuro #Pudhari #NervePain #HealthFirst #samarthneuro #superspecialityhospital #miraj #maharashtra

An update about online classes this month. You're going to need support with all the migraines we're going to have the next 4 years, so get on this! :) ko-fi.com/post/Class-U... #MigrainTreatment #TMJ #TrigeminalNeuralgia #Headache #selfcare

Class Update for this month!

Arvo, Toots! Mental Health Nurse Skype complete, I’m off for a fiercely competitive (but fun) round of Trivia later today at the mental health place. Always a treat, because the players are all autistic, and we tend to argue the answers! 🤣
And in new, fun, #TrigeminalNeuralgia news, I have been deaf in my left ear since yesterday arvo. (Maybe it’s not TN but something else, and I am not going to look at Dr Google.)

Registration for 12/07 is now over. We need 1 more signup for 12/10's self care class at 7pm-9pm to host it. Mailing list gets tickets for $35. otherwise it's $55 to learn my tried & true #IntraOral and other advanced Oralfacial techniques for #TrigeminalNeuralgia, #TMJD, #MigraineTreatment

Outside in the cold air for less than ten minutes and my face has been hurting for hours since 😭 I haven't eaten dinner yet and am drinking tepid water bcuz eating and cold drinks can make it worse. This sucks. #TrigeminalNeuralgia #ChronicPain #NEISvoid

Ugh, my face started hurting after taking my sister's trash out 😭 late fall & winter is always so hard cuz cold air is my biggest trigger. I was only outside for like 45 seconds too.

#TrigeminalNeuralgia #RareDisease #NEISvoid

#TrigeminalNeuralgia #TNWarriors #chronicpain

#TrigeminalNeuralgia #TNWarriors #chronicpain

At what point does the literal definition of insanity outweigh the benefits of trying again and again?

Much like an addict, I understand that tools and techniques like this work. But, when they stop, a similar to "falling off the wagon" mentality kicks in, and theoretically, I should start over and try again 🧵

#chronicpain #TNWarriors #TrigeminalNeuralgia #cbtechnique

ट्रायजेमिनल नर्व्हच्या इरिटेशनमुळे चेहऱ्यावर असह्य वेदना होतात. औषधांनी उपचार होऊ शकतो; नसल्यास शस्त्रक्रिया आवश्यक आहे.

Trigeminal nerve irritation causes severe facial pain. Medication can help; if not, surgery is needed.

#trigeminalneuralgia #nerve #brain #neuro #neurosurgeon #drravindrapatil #superspecialityhospital #miraj #maharashtra

Trigeminal neuralgia means trigeminal nerve pain.
In it, there is excruciating pain on one side of the face. The pain can be unbearable even with minor procedures such as brushing teeth or eating.

#trigeminalneuralgia #neuro #pain #neurosurgeon #drravindrapatil #samarthneuro #superspecialityhospital #miraj #maharashtra