Lmst

But, seriously. We do need this kind of art activism, and we need to evolve it in ways which make it accessible for our communities, including bedlife kin.

If the idea of forming "a band of individuals united in anger and dedicated to exploiting the power of art to end the [Long Covid & Post-Acute Infection Syndromes] crisis" is exciting to you, hit me up illmarks @ nyx mir . com
And, if you or anyone else is doing this work, yes please let me know!

#LongCovid #MECFS #MCAS #POTS

Ich lese vermehrt, dass Vulnerable/bereits Erkrankte sich nicht trauen, in der Öffentlichkeit Maske zu tragen, weil sie Angst vor Anfeindung und Übergriffen haben.
Deshalb mein Aufruf an alle: Tragt Maske! Aktuell gibt es für #MEcfs, #MCAS, #POTS, #SFN, #CCI usw keine Heilung! Es gibt Remissionen, aber viele, viele bleiben krank! Auch mit #LongCovid! Ihr wollt den Scheiß nicht haben! Und ihr schützt euch damit nicht nur selbst, sondern solidarisiert euch mit anderen.
♥️

That creeping feeling of fatigue accompanied by suspicion that the cheese you thought was classed as a fresh cheese was not indeed a fresh cheese but a mature cheese. A moment on the lips, a week in the mitochondrial energy packets
#mcas #mecfs #HistamineIntolerance

I hate when I get an allergic reaction to my own anxiety #chronicillness #mcas

I made nomato sauce! I'm continuing on my #MCAS journey and this is my first time trying it. It tastes a lot like tomato soup, and looks bright red, despite no tomatoes. It's mostly carrots, onions, celery, with some beets for colour, and fresh herbs from the garden. Pictured next to jarred tomato sauce for comparison. We're having chicken "parmesan" spaghetti pie, and my son needed a separate casserole anyway because I can't eat the vegan "chicken", and he can't have the meat (he's vegetarian).

A casserole covered with tomato sauce on the left, and a larger casserole covered with nomato sauce on the right. The nomato sauce is a brighter, orangier red, but is still definitely red.

#SaltingTheVibes watching the @dysautonomia@beta.mstdn.cf @dysautonomia@bird.makeup conference panels on livestream, IKYK!

Another year of excellent clinician lectures and support for patients with #POTS #OI #NCS #MECFS #MCAS #EDS and more

Miss out registering? Get conference recordings here: https://dysautonomiainternational.salsalabs.org/2025conferencerecordings/index.html

A picture of an orange bowl of edamame with a glass bowl of soy sauce resting inside of it, next to a .9% sodium chloride IV bag hooked up to a home infusion pump, on top of a brown and blue and orange and cream floral patterned bedsheet.

2025-6-22 my new medication has been recharging, but I also have big joint pain.

https://www.illmarks.com/2025-6-22-my-new-medication-has-been-recharging-but-i-also-have-big-joint-pain/

#bodyHorror #chronicIllness #longCovid #longcovid #mcas #mecfs #medArt #medart #medicalArt #MillionsMissing #POTS #pwLC #pwme #sciArt #SciArt

The figure on the manila bookmark is split down the middle in two sections. The left side, showing the back of a human with back rolls. long, wavy, small arrows wrap them, running upward, along the sides of their arm and body, and continuing off the head. On the right half is the figure's skeleton, drawn in green. small arrow heads are seen pinching in on their joints

Hat jemand in Österreich mit #LongCOVID #MEcfs #MCAS #SmallFiberNeuropathie Erfahrung mit Kassa Bewilligungen für Ketotifen Kapseln?

Ich kaufe sie derzeit privat, weil das Medikament für mich ein sehr stabilisierendes Effekt hat. Mehrere Versuchen bei der Kassa seit 2 Jahren würden abgelehnt. Aber das Medikament steht auf der Med Uni Wien Indikations-Medikamentenliste für PAIS und ME/CFS in Österreich, und ich habe Befunde sowie Rezepte von einem Neurologen dafür… ich versuche gerade zu ermitteln, wo genau das Problem steht, bevor mein Geld komplett aus ist.

Med Uni Wien Liste
https://www.meduniwien.ac.at/web/fileadmin/content/auftritte/referenzzentrum_postvirale_syndrome/pdf-Dateien/PAIS_MECFS_Medikas_IND_off-label_Version_21.02.2025.pdf

Make a Terrible Comic Day, 2025

It’s nice to see how I’ve grown and made peace.

https://www.illmarks.com/make-a-terrible-comic-day/

https://www.illmarks.com/make-a-terrible-comic-day-2025/

#chronicIllness #chronicPain #longcovid #makeATerribleComicDay #MakeATerribleComicDay #mcas #mecfs #MillionsMissing #pwLC #pwme

The figure on the bookmark is divided into sections with horizontal lines. Reading from the top down, the first panel reads "Lasy year's comic was on accepting indefinite illness" the word illness is written in thick green letters, and the head of the figure is filled with tendrils from the same pen and ink. The next panel reads, "Now, that feels less heavy." feels is written in pink, and there is an anatomical heart next to it. Less and Heavy are in gren. The green tendrils continue from the head down into the neck and shoulders. Smooth pink lines but up against them. The next section has the hands of the figure, including a clenched fist. The body is mostly filled with the pink. "I know no matter what tides may come", the last section contains most of the legs and water flowing over and down the ankles. "I will find" and each written on a leg "Joy" and "Connection". The water that flows past has gold sparkles in it. Radiating outward from the pink-filled legs into the world are concentric thin pink lines.

I've recently decided I likely have #MCAS (I got a BAD migraine from eating tomato sauce, and I'm hypermobile, AuDHD), and I'm learning to eat a low histamine diet. We're having make your own pizza night. I made a baking powder instead of yeast crust (though I love baking bread and I want to try bringing back yeast bread later), and I'm having beet pesto, kale, and goat cheese pizza. There are definitey things I miss, but I'm starting to feel this might be doable long term.

My beet pesto, kale, goat cheese pizza, pre baking. It has a purple sauce on the bottom, and then is piled high with kale, which will bake down, and then on top of the kale is mozza and a small amount of goat cheese. It looks more salad than pizza, but I've made it before and I know it'll be tasty.

It’s my birthday, but I now view time by different measures

I crashed so this is belated, but for my birthday/Stonewall anniversary ask, I received over 40 pro-mask messages of people wearing N95 or similar respirators! I think there are even more, I lost count a few times. Thank you SO much to everyone who participated and helped take care of themselves and their communities.

https://www.illmarks.com/2025-6-28-its-my-birthday-but-i-now-view-time-by-different-measures/

#art #chronicIllness #CleanAir #CleanIndoorAir #covid #covidIsNotOver #fibro #longCovid #mcas #mecfs #MillionsMissing #POTS #pwLC #pwme #WearAMask #WearARespirator

A human figure on a manila bookmark wears a party hat and an N95 respirator (mask). There are three squares hovering over the body, one at the shoulder with pink and purple is labeled 2.5 Years & Infection 1. One over the lower abdomen in darker purple, shows a partial GI system, labeled 1.8 Years & Dx (diagnosed) Long Covid, the third one is over the leg and knee, is in purple-green shows soft curving green-blue lines between the body and the edge of a purple virus. It is labeled 1.75 Years & "How long I have kept myself safe from Covid infections which will further degrade my health." Their body is outlined in a mix of pink and blue green, and they have a tattoo on their forearm, and wear a prosthetic-orthotic. Metal screws and plates are drawn on them as well.

I'm finding perimenopause with MCAS, Ehlers-Danlos (just hypermobile), and AuDHD hard as fuck. Anyone got survival tips? #perimenopause #ActuallyAutistic #ADHD #MCAS #EhlersDanlosSyndromes

New weird MCAS symptom? Food that isn't actually spicy tastes "spicy", kinda like the sensation in the mouth after eating something peppery or with chili in it.

It's very weird. Like, I just ate a Twix (chocolate can trigger MCAS attacks) and after eating, I had the sensation of something peppery on my tongue.

But gosh damn I really wanted a chocolate bar.

#MCAS #HistamineIntolerance

Symptom: it feels like Cranial Pressure?

https://www.illmarks.com/symptom-it-feels-like-cranial-pressure/

#art #bodyHorror #cfs #chronicIllness #chronicPain #chronicIllness #chronicPain #Dysautonomia #headache #longCovid #mcas #me #mecfs #medicalArt #migraine #MillionsMissing #pwLC #pwme

The figure's body is full of blue-green and gold shimmer sweeping lines, adorned with small arrowheads. they all sweep upward to the head, which is atypically tiny and filled with pink ink. Surrounding the head is a pattern made of Vs all pointing in at the tiny head, pushing it in and making it smaller.

Having a major attack of likely MCAS which involved tonnes of mucus coming from nose & throat, tightness in the throat, near vomiting, uncontrollable shaking and a temperature spike — the only way I could calm was by somehow grabbing my shower head and running icy cold water over my head until my temperature dropped to 35c / 95f

And now I've tonnes of flatulence and other stomach stuff. I'm still producing mucus and coughing, my muscles are all tight.

Why? Because I dared eat some food which wouldn't normally trigger an attack but did today because I've had to have my windows open due to heat & humidity inside and other reasons.

Will probably have other issues later. Can't take my strong medication because I don't have enough of it & need to conserve it.

Guess I won't be getting much work done today.

#MCAS #HistamineIntolerance

Just finished another rabbit hole... #NEISVOID #MCAS #HistamineIntolerance #DAO #Genetics pmc.ncbi.nlm.nih.gov/articles/PMC...

Histamine Intolerance—The More...

2/
"Sign Up for INIM’s Nutrition Series"
https://forms.gle/yHHfg6bjFLmus8ew6

People can take part either online or in person (in Davie, FL)

Launches Friday, June 27

#MEcfs #LongCovid #POTS #MCAS @mecfs @longcovid @pots @mcas #MEcfs #LongCovid #POTS #MCAS

Neuroimmune Nutrition Series:
Education + Recipes
THEMES
Sodium Support: When You Need More Salt
• Focus: POTS, adrenal dysfunction, hyponatremia
Power Up with Potassium & Magnesium
HOSTED BY:
Irina Rozenfeld, DNP, MSHS, MBA, MSN, APRN, ANP-BC
Annie Lin, D.C.N., CNS, LDN, IFMCP
Violetta E. Renesca, DNP, MBA, APRN, ANP-C, IFMCP
LOCATION:
Center for Collaborative Research Room 245
7595 SW 33rd Street
• Focus: Nerve conduction. muscle relaxation, mitochondrial Davie, FL 33314 function
Low-Histamine Diet Demystified
• Focus: MCAS, migraines, skin flares
Fiber First: Healing the Gut-Brain Axis
• Focus: SCFAs, microbiome diversity, motility
Gentle Detox: Supporting Natural Pathways
• Focus: Liver phase I/II, lymphatics, glutathione support Low-Glycemic Made Delicious
• Focus: Blood sugar balance, neuroinflammation
The Anti-Inflammatory Plate
• Focus: Polyphenols. omega-3s, antioxidants
*Zoom option available if needed. Email mcarr1@nova.edu
START DATE:
June 27, 2025 | 4:00-5:00 PM EST
Flavors that Heal: The Low-Oxalate Approach
• Focus: Kidney health, pain syndromes, bioavailability
Low Glutamate and Feel Great
• Focus: Excitotoxicity, seizures, ADHD
EXPERIENCE thermomix
Low-Purine Pleasures: Recipes for Relief
• Focus: Uric acid, joint inflammation, mood swings
Dessert Without Guilt: Nourishing Treats
• Focus: Blood sugar, cravings, emotional eating

Just posting the science today. Dysautonomias, mast cell disorders, B6 dysregulation, iron trapping and mitochondrial dysfunction are all linked.

#Iron #B6 #Zinc #Copper
#Dysautonomia #MECFS #MCAS
content://media/external_primary/downloads/1000262000

Die, die mir schon länger folgen, wissen, dass ich mit 40 Jahren 8/23 schwer an #MEcfs erkrankt bin, inkl. #POTS, #MCAS und #SFN (ME kommt selten allein). Aber nicht genug: Ich habe binnen weniger als einem Jahr eine CCI (craniozervikale Instabilität, instabile HWS) entwickelt, und auch der Rest meiner Wirbelsäule fällt sprichwörtlich auseinander. Gestern am Spätabend nun stolperte ich über eine aktuelle Studie und bin mir zu 100% sicher:
Ich gehöre zu Cluster 1:
1/ https://www.healthrising.org/blog/2025/06/15/craniocervical-instability-chronic-fatigue-syndrome/

#MCAS

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