Lmst

How many morons are there in the world?From my bedroom they seem to be breeding! #ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk@bsky.brid.gy @longcovidsupport.bsky.social@bsky.brid.gy #Justice4ME @ashleydaltonmp.bsky.social@bsky.brid.gy @thelancet.com@bsky.brid.gy @nhsengland.bsky.social@bsky.brid.gy @georgemonbiot.bsky.social@bsky.brid.gy

The cartoon series is called - This Week in Disbelief...

This cartoon has 4 boxes

In box 1 an idiot doctor is saying ‘Eating dark chocolate could be a cure for Chronic
Fatigue’

In box 2 the orange egomaniac is saying ‘Drinking bleach could be a cure for Covid’

In box 3 Not-so-silly goose’ is asking “What do these stupid people sound like to the millions devastated by viral and post-viral' illnesses?”

In box 4 Wise Cat is replying “Compared to real scientists they sound like self-important bin liners!”

The cartoon maker is #FanningTheFlames

#NelASA hat einen festen Auftrag über mehr als 50 Millionen US-Dollar für #PEM-Elektrolyseure erhalten, den größten im PEM-Segment der Firmengeschichte.

Die Anlagen sollen in den norwegischen Projekten #HyFuel und Kaupanes #Hydrogen eingesetzt werden.

https://www.windbranche.de/news/ticker/nel-asa-profitiert-von-grossauftrag-nel-asa-mit-kursrueckgang-nach-starkem-anstieg-insider-kauf-sorgt-fuer-aufmerksamkeit-artikel7895

#Wasserstoff #Elektrolyse #H2 #Börse #CleanEnergy #Norwegen #energy #climatechange

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk@bsky.brid.gy @longcovidsupport.bsky.social@bsky.brid.gy #Justice4ME @ashleydaltonmp.bsky.social@bsky.brid.gy @decodemestudy.bsky.social@bsky.brid.gy @thelancet.com@bsky.brid.gy @nhsengland.bsky.social@bsky.brid.gy @georgemonbiot.bsky.social@bsky.brid.gy @profstevegriffin.bsky.social@bsky.brid.gy @davidjoffe64.bsky.social@bsky.brid.gy

The cartoon series is called ‘This Week in Disbelief’.

There are four boxes

In box one an anonymous doctor is saying “Eating dark chocolate could be a cure for Chronic Fatigue”

In box 2 Trump is saying “Drinking bleach could be a cure for Covid”

In box 3 a goose is saying “What do these people look like to the millions devastated by viral and post-viral illnesses?” This is new character called ‘Not-to-silly Goose’

In box 4 Wise Cat is saying “Compared to real scientists they look like self-important bin liners!”

The cartoon maker is #FanningTheFlames

Absolutely failing at pacing at the moment. Over my pacepoints daily and today I had to go to a Proper Shop so energy expenditure was sky-high. I hate this

#CFSME #ME #ChronicIllness #Visible #pacing #PacePoints #PEM

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk@bsky.brid.gy @longcovidsupport.bsky.social@bsky.brid.gy #Justice4ME @ashleydaltonmp.bsky.social@bsky.brid.gy @decodemestudy.bsky.social@bsky.brid.gy @thelancet.com@bsky.brid.gy @nhsengland.bsky.social@bsky.brid.gy @georgemonbiot.bsky.social@bsky.brid.gy @profstevegriffin.bsky.social@bsky.brid.gy @davidjoffe64.bsky.social@bsky.brid.gy

The cartoon series is called - This Week in Disbelief

There are four different people.

The first person has Breast Cancer and is asking “What are my choices?”

The second person has Heart Disease? They are asking “What are my choices?”

The third person has Multiple Sclerosis. They are asking “What are my choices?”

The last person has ME/cfs
She is asking “Is there a clinic in my country that won't torture me?”

Wise cat is replying “Nope, they'll all kill you and then blame you”

The cartoon maker is #FanningTheFlames

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk@bsky.brid.gy @longcovidsupport.bsky.social@bsky.brid.gy #Justice4ME @ashleydaltonmp.bsky.social@bsky.brid.gy @decodemestudy.bsky.social@bsky.brid.gy @thelancet.com@bsky.brid.gy @nhsengland.bsky.social@bsky.brid.gy @georgemonbiot.bsky.social@bsky.brid.gy @profstevegriffin.bsky.social@bsky.brid.gy @davidjoffe64.bsky.social@bsky.brid.gy

The cartoon series is called - This Week in Disbelief

The title says - Using Philosophical
Dross to Build Yourself an Empire

Two doctors are discussing #ME.

First doctor “So it's really the idea of illness that's at work here then?”

Second doctor “Yes, there's no evidence of real illness in this patient group and exercise needs to be encouraged to break the cycle of illness beliefs”

Wise Cat is saying “40 years of disability and death resulted from this unverifiable psychobabble...”

Goose replies “... and still no retraction or apology??

The author is leaving the page and saying “The infamous BPS Model that replaced biology with bigotry!” as she goes.

The cartoon maker is #FanningTheFlames

A virus may kill you quickly, but post-viral illness can destroy your family, your career, your bank balance, your trust in doctors,and ultimately it can take your life. #ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk@bsky.brid.gy @longcovidsupport.bsky.social@bsky.brid.gy #Justice4ME

The cartoon series is called - This Week in Disbelief...

Heading - Viral and post-viral illnesses can kill you

There is a picture of a young woman dead in bed. And a voice from her phone on the floor is saying “Hello? Hello...?”

The caption says ‘WEAR A MASK’

The cartoon maker is #FanningTheFlames

A virus might kill you quickly, post-viral illnesses can destroy your family, your career, your income and your life. BUY SOME FFP2 or FFP3 masks. #ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk@bsky.brid.gy @longcovidsupport.bsky.social@bsky.brid.gy #Justice4ME @ashleydaltonmp.bsky.social@bsky.brid.gy

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive #MS #Lupus #Parkinsons #Cancers @meassociation.org.uk@bsky.brid.gy @longcovidsupport.bsky.social@bsky.brid.gy #Justice4ME @ashleydaltonmp.bsky.social@bsky.brid.gy @georgemonbiot.bsky.social@bsky.brid.gy @davidjoffe64.bsky.social@bsky.brid.gy

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk@bsky.brid.gy @longcovidsupport.bsky.social@bsky.brid.gy #Justice4ME @ashleydaltonmp.bsky.social@bsky.brid.gy @decodemestudy.bsky.social@bsky.brid.gy @thelancet.com@bsky.brid.gy @nhsengland.bsky.social@bsky.brid.gy @georgemonbiot.bsky.social@bsky.brid.gy @profstevegriffin.bsky.social@bsky.brid.gy @davidjoffe64.bsky.social@bsky.brid.gy

The cartoon series is called - This Week in Disbelief

Title - Why is #ME also called 'Chronic Fatigue' & treated as a psychological illness?

A woman carrying a huge weight on her back labelled ‘PEM’ is saying “In the 1990s careerist psychiatrists said "ME is just laziness and depression...”

Wise Cat is saying “Then they simply blamed the patients or parents when people died from their graded exercise regimes”

Mouse is saying “Isn't that called
culpabable homicide?”

The cartoon maker is #FanningTheFlames

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk@bsky.brid.gy @longcovidsupport.bsky.social@bsky.brid.gy #Justice4ME @ashleydaltonmp.bsky.social@bsky.brid.gy @decodemestudy.bsky.social@bsky.brid.gy @thelancet.com@bsky.brid.gy @nhsengland.bsky.social@bsky.brid.gy @georgemonbiot.bsky.social@bsky.brid.gy @profstevegriffin.bsky.social@bsky.brid.gy @davidjoffe64.bsky.social@bsky.brid.gy

Title - This Week in Disbelief...

Heading - Are junior doctors badly treated?

There is an image of a wheelchair user facing a series of grim concrete steps. In trying to do so he has dropped his placard.

His placard says ‘HEATING OR EATING’

He is saying - “I guess that depends on who you compare them to!”

The cartoon maker is #FanningTheFlames

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk@bsky.brid.gy @longcovidsupport.bsky.social@bsky.brid.gy #Justice4ME @ashleydaltonmp.bsky.social@bsky.brid.gy @decodemestudy.bsky.social@bsky.brid.gy @thelancet.com@bsky.brid.gy @nhsengland.bsky.social@bsky.brid.gy @georgemonbiot.bsky.social@bsky.brid.gy @profstevegriffin.bsky.social@bsky.brid.gy @davidjoffe64.bsky.social@bsky.brid.gy

#ME #LongCovid #Lyme #POTS #PEM #LivesWeCannotLive @meassociation.org.uk@bsky.brid.gy @longcovidsupport.bsky.social@bsky.brid.gy #Justice4ME @ashleydaltonmp.bsky.social@bsky.brid.gy @decodemestudy.bsky.social@bsky.brid.gy @georgemonbiot.bsky.social@bsky.brid.gy @georgemonbiot.bsky.social@bsky.brid.gy @profstevegriffin.bsky.social@bsky.brid.gy @davidjoffe64.bsky.social@bsky.brid.gy #GMC

This Week in Disbelief

This is a cartoon in three boxes

Box one Heading - Are Junior Doctors really having a hard time?

Box two - a woman using a wheelchair is at the bottom of a flight of steps. She is holding a placard which says “#ME
#LONG COVID #DISABILITY #POVERTY” and is facing a staircase labelled
Heating or eating, Medical Abuse,
Motability Cuts, Millions Missing”

Box three - Wise Car is saying “I guess that really depends on who you compare them with”

The cartoon maker is #FanningTheFlames

Medscape, en global plattform för medicinska nyheter, rapporterar att det inte finns någon evidens som stödjer användandet av gradvis utökad träning (GET) vid ME. #medscape #läkare #GET #PEM #mecfs #postcovid #läkartidningen themeinquiryreport.com/2025/12/10/m...

Medscape: Ingen evidens för GE...

Well done & thanks to these healthcare professionals (PTs/similar) for this new e-letter 👏

"In the Long Run, Misleading Participants Will Harm More Than Help in Long COVID Research"

https://bmjopen.bmj.com/content/15/11/e102112.responses#in-the-long-run-misleading-participants-will-harm-more-than-help-in-long-covid-research

@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers
#PEM @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Published on: 9 December 2025
In the Long Run, Misleading Participants Will Harm More Than Help in Long COVID Research
Todd E. Davenport, Professor & Chair University of the Pacific, Workwell Foundation
Other Contributors:
Staci R. Stevens, Exercise Physiologist
Mark A. Faghy, Professor
Jessica DeMars, Respiratory Physiotherapist
J. Mark Van Ness, Professor & Chair
Respect for persons, beneficence, and justice are bedrock ethical principles in science. They are especially important when studying vulnerable populations. Billias et al. argue that deception is necessary to assure the internal validity of their exercise study involving people living with long COVID.[1] Here, we assert the use of deception is ethically indefensible and scientifically unnecessary in this population. It undermines informed consent, increases risks for harms, exploits the vulnerability of participants, and erodes trust in science and health care, all while exploring a question that already has been asked and answered satisfactorily enough to inform clinical recommendations.

'Verdovingsmiddel lidocaïne helpt tegen postcovid'

"Een behandeling op basis van een bekend verdovingsmiddel, lidocaïne, biedt verlichting bij mensen met langdurige klachten na Covid-19. Dat blijkt uit Nederlands onderzoek onder 103 patiënten die al 2,5 jaar kampten met postcovid. Bij driekwart van de deelnemers verbeterden de klachten in de loop van negen maanden, zestien mensen konden zelfs stoppen of afbouwen."

"Bij mensen met postcovid die voor de behandeling van zenuwpijn kwamen, verdween niet alleen die pijn, maar begonnen ook andere neurologische klachten duidelijk af te nemen, waaronder hersenmist, malaise na inspanning, overprikkeling en autonome klachten."

"In deze studie gebruikten artsen een speciale bereiding van het middel, waarbij het werd gekoppeld aan een groot suikermolecuul, cyclodextrine. Hierdoor konden patiënten het zelf thuis toedienen."

"Gemiddeld waren bij alle patiënten 28 van de 30 symptomen verbeterd – alleen haaruitval en misselijkheid niet. Bij geen van de opgeknapte patiënten was er een terugval te zien naar de ernstige klachten die ze voor de behandeling hadden."

https://www.nrc.nl/nieuws/2025/12/09/verdovingsmiddel-lidocaine-helpt-tegen-postcovid-a4914849

https://archive.ph/SFl7S

#gezondheid #PostCovid #LongCovid #PAIS #PEM

Note: PEM stands for post-exertional malaise, a hallmark of ME/CFS that is also found in some Long Covid patients. Many Long Covid patients meet the ME/CFS diagnostic criteria.

PEM fact sheet:

https://www.s4me.info/threads/science-for-me-fact-sheets.43310/#post-606969

#MEcfs #LongCovid #PEM

@herbster @mecfs

PEM (post exertional malaise) can be difficult to explain. But I think orthostatic intolerance is even harder to explain.

People wonder how just standing still - or even sitting upright but I can do that longer - can be a problem. I have a lot more trouble standing still for a few minutes than walking for a few minutes. I must sit down to shower or brush my teeth.

Two helpful videos:

https://www.youtube.com/watch?v=X3Ym8rnYk_4

https://www.youtube.com/watch?v=GIkS4w3tIg8

#MEcfs #PEM #OrthostaticIntolerance

Probably the best week I've had at least four years.

#MECFS #PEM #Pacing #Recovery2025

I think some of my pain is anticipatory. The pain is, and always has been, my body trying to convince me to slow down.

Yesterday, I had plenty of energy aside from what the pain drew away from me. So now I just have to convince my body that I really truly have gotten the message. I've lied to it so many times that it doesn't believe me.

Last night, I was still hurting after work, and while watching a thing, I decided to lay down (for ten minutes) after the thing was over. I immediately started to feel better, before the show was over!

BUT!!! I followed through anyway. I wanted my body to be rewarded for easing up, to let it know I don't need it screaming at me for me to listen.

#MECFS
#PEM
#Pacing
#Recovery2025

#PEM

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