Ash 🐺 🌎 🌊

Feral Tree Hugging Dirt Worshipper watching our climate emergency in horror.
πŸ”₯🌎πŸ”₯

#pwME - 23 years of #MECFS #POTS #fibromyalgia #lyme #hEDS etc.
I'm one of the #millionsmissing

#Adoptee #AdopteeVoices #prochoiceadoptee #DomesticSupplyOfInfants

Whole truth, raw truth #neurodivergent Aspie

Ash 🐺 🌎 🌊 boosted:

It's all tied together
Preserving what's left of the animal kingdom.
Mitigating the climate crisis
Eliminating fossil fuels
Saving ourselves

We might as well start thinking of them all as one, instead of pretending they're separate issues.

This could be our finest hour

Ash 🐺 🌎 🌊 boosted:

RT @ValeBodi@twitter.com

The German Association for #MECFS now offers 32 professional photos for the use in media articles, which adequately depict the reality of people living with ME. #PwME
Often, photos used in articles about ME/CFS do not show the heavy burden of the disease mecfs.de/stockphotos/

πŸ¦πŸ”—: twitter.com/ValeBodi/status/16

Ash 🐺 🌎 🌊 boosted:
William Lindsey :toad:wdlindsy@toad.social
2022-12-05

(2) Mark Sumner:

"The disinformation campaign has tried to make it seem as if, in protecting ourselves from COVID-19, we somehow lowered our resistance to flu. This is 100% not true. In fact, the opposite is true. It was ending the steps being taken against COVID-19 that has created conditions for a bad flu season."

dailykos.com/stories/2022/12/3

Ash 🐺 🌎 🌊 boosted:
The Prehistoric SocietyPrehistoricSociety@mastodonapp.uk
2022-12-05

Don't forget to check out #StandingStoneSunday folks...

... and remember adding caption text to your image and capitalising each word in your # means a lot more people can appreciate your toots!! Thank you 😊

And from us, here's the stone circle that shows up more in our Facebook group than any other - Castlerigg in Cumbria (in the mist!)

#Archaeology #Prehistory

A foggy scene. The stone circle is viewed from the side with two larger, entrance,  stones and a gap in between prominent. There are about 30 stones that make up the circle.
Ash 🐺 🌎 🌊 boosted:

Something to remind you
It's a world worth saving

Ash 🐺 🌎 🌊AshWolf@mstdn.social
2022-11-26

@AltYelloNatPark I adore otters - great pics! 😍

Ash 🐺 🌎 🌊AshWolf@mstdn.social
2022-11-26

@AltYelloNatPark Beautiful!

Ash 🐺 🌎 🌊 boosted:
Dr. Lucky Tran :verified:luckytran@med-mastodon.com
2022-11-24

Looks like the NIH has set up a new website so that people in the US can finally report home test results: makemytestcount.org/

Hopefully these results will be made public soon, and are factored into policymaking, as current data may be undercounting by as much as 20x.

#COVID #COVID19 #PublicHealth

Ash 🐺 🌎 🌊AshWolf@mstdn.social
2022-11-23

@AltYelloNatPark Good Morning! 🐻 πŸ’•

Ash 🐺 🌎 🌊 boosted:
2022-11-20

What is the impact of #covid on #PwME in the post-Omicron, post-vaccine era?

Please boost vigorously!

I'll try to put a poll on the bird site as well - please don't respond to both.

@mecfs

If you had #mecfs pre-pandemic, and got #covid after Dec 2021, did it result in a significant functional reduction that:

Ash 🐺 🌎 🌊AshWolf@mstdn.social
2022-11-20

@AltYelloNatPark You should migrate your account to another server - yours is a small server that is "An antifa mostly-italian speaking mastodon instance based in Bologna"

Read:
cmswire.com/digital-experience

Might fit better:
ecoevo.social/about

Or one of the bigger ones:
mastodon.social
mastodon.online
mstdn.social

Keep in mind that most are glitching a bit now because of the mass exodus from the birdsite. Servers are overloaded.
They are doing their best.

Ash 🐺 🌎 🌊 boosted:

"On November 22nd, users can download the free Visible app (no wearable). The app will be available in β€˜Open Beta’, which means it will be available for anyone to download test, and use, as they continue to develop the Visible platform."
#pwME #LongCovid
healthrising.org/blog/2022/11/

Ash 🐺 🌎 🌊 boosted:
2022-11-19

πŸ”¬New study by Westermeier shows Endothelial Dysfunction in vitro in #MECFS

⬇️decreased production of nitric oxide by the endothelium cells when exposed to plasma from #pwME

πŸ”¬samples from the UK ME/CFS Biobank

#TeamClots

πŸ“–πŸ‘‡

sciencedirect.com/science/arti

Ash 🐺 🌎 🌊 boosted:
Longhauler Advocacy ProjectC19LAP@mastodon.world
2022-11-19

ABCNewsLive did a phenomenal 11 minute piece on #LongCovid featuring the COVID-19 Longhauler Advocacy Project's very own Dir of Education, Netia McCray, and Founder, Karyn Bishof! They discuss life before the pandemic and how dramatically it's changed living with #LongCovid. 1/2
youtu.be/lGGtXpSpiJY

#FBLC #longhauler #COVID #PASC #LongCovidAdvocacy #longcovidawareness #longcovidresearch #longcovidsupport #longcovideducation #longcovidrecovery #longcovidassociatedconditions #LC #LCAC

Ash 🐺 🌎 🌊AshWolf@mstdn.social
2022-11-19
Ash 🐺 🌎 🌊 boosted:
2022-11-19

A short video (just over 2 minutes) that describes ME/CFS :

youtube.com/watch?v=X6f4zCe2ZtA

Video by @brokenbattery

Please boost to help educate anyone who still thinks ME/CFS means "tired all the time" Thanks❀️

Ash 🐺 🌎 🌊 boosted:
Wes Ely MD :verified:WesElyMD@med-mastodon.com
2022-11-19

We need β€œForgotten Diseases” Clinics -

Seriously I’ve been thinking about the massive Venn-diagram overlap of this group of diseases that have such an ill characterized set of definitions, diagnostic testing, therapeutic trials.

Patients tell us…
πŸ“β€œWe feel left behind by,” say 1,000s of Long COVID pts
πŸ“Sadly, #MECFS, #LongLyme, fibromyalgia & #PICS patients tell us they hoped to β€œride the coattails” of #LongCOVID
πŸ“People say, β€œGet on w your life.”

They say, β€œWhat life?”

Ash 🐺 🌎 🌊AshWolf@mstdn.social
2022-11-19

@WesElyMD Thank you!
Yes, we do! Both for patients to attend for care and clinics for doctors to be brought up to speed.

I'm a #pwME also dx w/ #fibromyalgia #POTS #LongLyme etc etc
Like thousands of my fellow patients I have no doc familiar with these. I have to guide my own care and hope my PCP agrees - while 90% bedbound and thru brain fog.

Somebody needs to send the International Consensus Criteria for #MECFS practitioner primer to every PCP in the US.

ME/CFS had the lowest quality of life scores of any disease tested
Ash 🐺 🌎 🌊 boosted:
Wes Ely MD :verified:WesElyMD@med-mastodon.com
2022-11-19

This is an excellent piece on #MECFS and the realities of the suffering millions…

β€œUp to one-fifth of coronavirus infections result in long COVID, the CDC says. And roughly 10% of people sickened by a variety of other infections β€” mainly viruses such as Epstein-Barr or herpes virus 6 β€” develop ME/CFS, says the nonprofit #MEAction, which estimates that 1 in 4 of those patients is homebound or bedridden, like Dafoe.”

bit.ly/3Ap7Nzq

Ash 🐺 🌎 🌊AshWolf@mstdn.social
2022-11-18

Client Info

Server: https://mastodon.social
Version: 2025.04
Repository: https://github.com/cyevgeniy/lmst