Lmst
Login

#FMS

Tom Kindlontomkindlon@disabled.social
2025-05-04

🧵
From Chronic Living Therapy e-newsletter:

"Round up of articles spotted online in March/April 2025 that focus on the experiences of people with ‘psychologised’ or hard to diagnose health conditions."

chroniclivingtherapy.com/1-els

@chronicillness
@spoonies @mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #PosturalOrthostaticTachycardiaSyndrome #POTS @pots #OI @longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM
#chronicillness #chroniclife #spoonie

1/

Spotted in the news / online Read any articles or research of interest to therapists and counsellors? Please share them with us! We've rounded recent ones up up and added them to our website. Here's what we have from March and April 2025: Physiology for Psychology by Emily Cochrane of POTSUK on how this physiological condition gets misinterpreted and treated as 'anxiety'. #ThereforME published a piece by Ella Barnard who is lost for words trying to describe the reality of ME/CFS. The Smithsonian published an excellent article about how mental illness has become a scapegoat diagnosis for many women with serious physical health problems. And a fantastic piece of research from Australia looking at young people with ME/CFS and exploring how they face challenges building independence and forming their own identities when their paths diverge so much from those of their peers. Can't recommend this one enough! Read our roundup of March/April publications: https://chroniclivingtherapy.com/1-elsewhere-web/
Tom Kindlontomkindlon@disabled.social
2025-05-04

From Canada:

The gut microbiota promotes pain in fibromyalgia

cell.com/neuron/fulltext/S0896

"Transplanting gut microbiota from women with fibromyalgia into mice induces pain. It also induces immune activation, metabolomic changes, and reduced skin innervation"

@fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #ChronicPain

Highlights • Transplanting gut microbiota from women with fibromyalgia into mice induces pain • It also induces immune activation, metabolomic changes, and reduced skin innervation • Gut microbiota promotes pain through several mechanisms Summary Fibromyalgia is a prevalent syndrome characterized by widespread pain in the absence of evident tissue injury or pathology, making it one of the most mysterious chronic pain conditions. The composition of the gut microbiota in individuals with fibromyalgia differs from that of healthy controls, but its functional role in the syndrome is unknown. Here, we show that fecal microbiota transplantation from fibromyalgia patients, but not from healthy controls, into germ-free mice induces pain and numerous molecular phenotypes that parallel known changes in fibromyalgia patients, including immune activation and metabolomic profile alterations. Replacing the fibromyalgia microbiota with a healthy microbiota substantially alleviated pain in mice. An open-label trial in women with fibromyalgia (Registry MOH_2021-11-04_010374) showed that transplantation of a healthy microbiota is associated with reduced pain and improved quality of life. We conclude that altered gut microbiota has a role in fibromyalgia pain, highlighting it as a promising target for therapeutic interventions.
defensedailydefensedaily@mstdn.social
2025-05-03

U.S. Approves $371M Sale of AIM-9X Sidewinder Missiles to Norway

defensemirror.com/news/39414/U

#Norway #Missiles #AIM9X #Sidewinder #USDefense #FMS #NATO #RTX #MilitarySale #DefenseNews #AirDefense #EuropeSecurity #DSCA #ArmsDeal #NationalSecurity

WorlddefensereportWorlddefensereport@mstdn.social
2025-05-03

U.S. Approves $371M Sale of AIM-9X Sidewinder Missiles to Norway

defensemirror.com/news/39414/U

#Norway #Missiles #AIM9X #Sidewinder #USDefense #FMS #NATO #RTX #MilitarySale #DefenseNews #AirDefense #EuropeSecurity #DSCA #ArmsDeal #NationalSecurity

Tom Kindlontomkindlon@disabled.social
2025-05-02

"'Twirl With Me, Mama!' by Melissa Beardall & Rebecca Nichols is a moving children’s book that shines a compassionate light on families living with #chronicillness ."

hazymaybooks.com/about-the-boo

See next post for more information on this book

@chronicillness
@spoonies #parenting #chroniclife #ChronicPain #Spoonielife
#hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #Spoonie
#ChronicallyIll @mecfs
#MEcfs @longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #POTS @pots

1/

Drawing of a young girl using a stethoscope on her mother who is in bed. Has the following text: "Mama says she sick. She doesn't look sick to me. She isn't coughing or sneezing like I do when I'm sick. "You need to go to the doctor so you can get better," I say. But mama isn't getting better.
Tom Kindlontomkindlon@disabled.social
2025-05-02

Recap of professionally-facilitated support group "Surviving Invalidating Relationships & Experiences"

batemanhornecenter.org/wp-cont

"by becoming sick with a #chronicillness we become a minority...based on the prevalence rate of these conditions"

#Spoonies @longcovid
#LongCovid @mecfs
#MEcfs #CFS #PwME @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #POTS @pots @chronicillness
@spoonies
#chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll

Bateman Horne Center logo "Support Group: Surviving Invalidating Relationships and Experiences March 11, 2025 "
PandaPanda@toot.blue
2025-04-26

x.com/Yokko08768212/status/191

コロナ罹患後から急に体調不良が続き2年以上寝たり起きたりです。身体の痛みも続き、このまま生きてていいのか戸惑いながら生きる毎日でした。少しずつ回復し少し前を向いて生きられる様になってきました。
#LongCovid #MECFS #FMS
#コロナ後遺症 へ理解と支援を
#PCR検査と治療薬の公費負担を求めます

Serenityfreaksoutserenityfreaksout4@squeet.me
2025-04-26

Interessanter Artikel über die Zusammenhänge des menschlichen Darmmikrobioms und Fibromyalgie

Klingt für mich nach einem vielversprechenden Ansatz, um Fibromyalgie besser diagnostizieren und behandeln zu können. 💪

While these are merely the first steps in understanding the role of the gut microbiome in chronic pain and specifically FM, one might envision exciting future perspectives for better mechanistic understanding of FM, for the development of objective diagnostic aids and potentially for new therapeutic modalities.


Der ganze Artikel hier kostenlos:

clinexprheumatol.org/abstract.…

#Fibromyalgie #Fibromyalgia #FMS

Hacker Newsh4ckernews
2025-04-25

New LLM jailbreak bypasses all major FMs

hiddenlayer.com/innovation-hub

Serenityfreaksoutserenityfreaksout4@squeet.me
2025-04-24

Neue Studie der Ruhr-Universität Bochum zu Wirkung von Placebos bei chronischen Schmerzen

Gesucht werden psychisch und körperlich gesunde Personen für die Kontrollgruppe und von Fibromyalgie betroffene Personen

medecon.ruhr/2025/02/neue-stud…

#Fibromyalgie #FMS #Studie #ChronischeSchmerzen

Tom Kindlontomkindlon@disabled.social
2025-04-22

New from Italy:
Case Report: The intersection of psychiatry and medicine: diagnostic and ethical insights from case studies

Free:
frontiersin.org/journals/psych

Looks look sympathetic and interesting on a quick skim

@chronicillness
@spoonies
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

1/

Screenshot of 1st paragraph
Tom Kindlontomkindlon@disabled.social
2025-04-16

I found this blog post interesting.

The research found 3 themes relating to loneliness in chronic illness.

It then mentions a writing exercise one can do to analyse these in your own situation.

psychologytoday.com/ie/blog/ch

#chronicillness #chroniclife #Spoonielife #hiddenillness #invisibleillness #Spoonies @chronicillness
@spoonies
@disability
@longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM #POTS @pots #dysautonomia @dysautonomia @mecfs
#MEcfs #CFS #PwME

1/

Psychology Today logo Katie Willard Virant MSW, JD, LCSW Katie Willard Virant MSW, JD, LCSW Chronically Me Chronic Illness The Link Between Loneliness and Chronic Illness A recent study explores the intersection between loneliness and chronic illness. Posted April 15, 2025 Reviewed by Margaret Foley Share on FacebookShare Share on TwitterTweet Share on BlueskyShare on Bluesky Share on LinkedInShare Share via EmailEmail Key points Heightened loneliness is linked with chronic illness. A recent study identifies three themes related to loneliness and chronic illness. Thinking about these themes in our own lives can help us identify how loneliness affects us.
techitechi_@mstdn.social
2025-04-16

Total Control, Infinite Scalability: Meili Robots Unveils Game-Changing Code License for Fleet Management

#FleetManagement #AutonomousRobots #MeiliRobots #WarehouseAutomation #CodeLicense #AMR #RoboticsIntegration #SmartLogistics #VendorAgnostic #FMS #IndustrialAutomation

Read Full Article here :-
techi.com/meili-robots-launche

defensedailydefensedaily@mstdn.social
2025-04-16

U.S. Approves Sale of TH-73A Training Helicopters to Philippines for $120M

defensemirror.com/news/39299/U

#TH73A #Philippines #Helicopters #USDefense #FMS #Leonardo #MilitaryTraining #AviationNews #DSCA #SoutheastAsia

WorlddefensereportWorlddefensereport@mstdn.social
2025-04-16

U.S. Approves Sale of TH-73A Training Helicopters to Philippines for $120M

defensemirror.com/news/39299/U

#TH73A #Philippines #Helicopters #USDefense #FMS #Leonardo #MilitaryTraining #AviationNews #DSCA #SoutheastAsia

Tom Kindlontomkindlon@disabled.social
2025-04-15

"Sleeping Well with Chronic Illness" by Ciara Breen. This was organised by the Irish ME Trust

Recording here:
youtu.be/15SuEe5UlUY

Slides here:
1drv.ms/p/s!AoHfldspRkWU14MZ3X

My informal notes:
1drv.ms/b/s!AoHfldspRkWU14MsVP

#Sleep #chronicillness @chronicillness
@spoonies
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

Sleep & Chronic Illness How to make them better bedfellows! THE BRÍ CLINIC Private Occupational Therapy Services
Tom Kindlontomkindlon@disabled.social
2025-04-13

@chronicillness
@spoonies
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#ChronicIllnessMemes
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

New doctor: can you give me a brief description of your medical history? Me: Photo of hundreds of computer wires in a tangle
Tom Kindlontomkindlon@disabled.social
2025-04-12

(Worcester, Massachusetts)
Healthy Controls and people aged 12+ with ME/CFS, #POTS, #EDS, long Covid, etc sought for research study

Image is from MassME April Newsletter

massmecfs.org/newsletters/922-

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
#PosturalOrthostaticTachycardiaSyndrome @pots @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

RECLAIM Study seeking participants RECLAIM is still recruiting participants — adults and children aged 12-17 — who self-report with ME/CFS, Long COVID, and other IACCIs. The Sluss Lab at UMass Chan Medical School is investigating how oxidative stress influences chronic conditions such as Ehlers-Danlos Syndrome (EDS), ME/CFS, and other IACCIs. Adult study participants can expect three 30-minute in-person visits, and child participants will have two in-person visits with the option to join a follow-up study.
Tom Kindlontomkindlon@disabled.social
2025-04-11

"Cards2Warriors has a special program called Happy Mail, where they send snail mail cards to those [who are ill] who need encouragement & cheer"

Links:
cards2warriors.org/
cards2warriors.org/happy-mail

Image from Institute for Neuro-Immune Medicine e-bulletin

#chronicillness @chronicillness
@spoonies
#chroniclife
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll @mecfs
#MEcfs @longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM

Chronic Illness Support Have you heard of Cards2Warriors? We want to highlight the special work this nonprofit does for those affected by rare or long-term illnesses —including patients, caregivers, siblings, and medical professionals. Cards2Warriors has a special program called Happy Mail, where they send snail mail cards to those who need encouragement and cheer. It doesn't matter which of the 7,000+ rare or long-term illnesses you've been diagnosed with —Cards2Warriors welcomes YOU and wants to shower you with some snail mail support! Open to warriors worldwide, with an option for digital cards. Learn more and sign-up here.
PandaPanda@toot.blue
2025-04-05

x.com/Yokko08768212/status/190

『リアル社会でコロナ後遺症と言わない方が上手く事が進む様な体験を幾度としました。まるで迫害にあっているかの様に口を噤み、足らずの不自由を静かに田舎に逃げ帰り生活してます。理解ある医療者の方々に心から感謝します
#LongCovid #MECFS #FMS
#コロナ後遺症
#PCR検査と治療薬の公費負担を求めます』

まるで被曝に苦しんでいる人と同じだ
意地悪社会を何度繰り返せば気が済むんだ、日本の人々

Client Info

Server: https://mastodon.social
Version: 2025.04
Repository: https://github.com/cyevgeniy/lmst