#Healthdata

Carolanniecarolannie@c.im
2025-07-16

COVID levels are pretty low, but there is a slight uptick in ER visits due to COVID
#Covid19 #HealthData
peoplescdc.substack.com/p/peop

Luca ๐Ÿ‰ ๐Ÿ•Š๏ธ ๐Ÿ‡ฟ๐Ÿ‡ฆlucazampedri
2025-07-16
2025-07-08

As a first post I would like to not highlight my own research, but the research of my colleagues, since I really love the way how this research began: With a question many people have asked.

As our working group researches on topics on #anonymization and #deidentification of medical and health data, the risk of identifying people or their membership in certain groups (e.g. having a specific diagnosis) is always present. On one of our retreats they decided to research the question:

Who are those adversaries, trying to do re-identify people in health data sets, what are their motives and what could be the harm?

The results can be found in the #OpenAccess paper: Health Data Re-Identification: Assessing Adversaries and Potential Harms

doi.org/10.3233/SHTI240626

#data #adversary #healthdata #medicalinformatics #privacy #dataprotection

Luca ๐Ÿ‰ ๐Ÿ•Š๏ธ ๐Ÿ‡ฟ๐Ÿ‡ฆlucazampedri
2025-07-03

named by
amongst corporations profiteering from perpetrated against in and the
appears to have no issues in granting & Co. control over our very own
In the meantime, the equates to

?




Digital Research Academydigiresacademy
2025-07-03

๐ŸŽง The final episode of Research Data: Handle with Care is out now!

If youโ€™ve ever wondered how researchers responsibly handle health data, or how data protection and open science can work hand in hand, this series is for you.

๐Ÿ“– Learn more about the episodes: nfdi4health.de/en/news-eng/lat

Thanks to everyone who contributed their insights. This was a amazing collaboration with the NFDI4Health Consortium!

a hand holding a box of "data" with the title of the podcast and the NFDI4Health logo
Daniel Kuhl ๐Ÿ“ฏdaniel1820815@infosec.exchange
2025-06-25

๐Ÿ’ฝ Aflac Data Breach

American insurance giant #Aflac has suffered a data breach, carried out by attackers who may have stolen sensitive information, including customers' personal and health data, Social Security numbers, claims details, and other personal information. Millions of users across the US and Japan may be impacted by this breach involving a wide range of sensitive documents.

Click here to read the full Threat Intelligence Report: research.checkpoint.com/2025/2

#databreach #healthdata

Open Data InstituteODIHQ
2025-06-25

A new white paper from Sport England and The Open Data Institute shows how better access to physical activity data can help health care teams signpost people to trusted local options โ€“ and take pressure off the NHS.
theodi.org/news-and-events/new

2025-06-19
We caught 4 more states sharing personal health data with Big Tech
Healthcare exchanges in Nevada, Maine, Massachusetts and Rhode Island shared usersโ€™ sensitive health data with companies like Google and LinkedIn

Maineโ€™s exchange, CoverME.gov, sent information on drug prescriptions and dosages to Google through an analytics tool. It also sent the names of doctors and hospitals that people had previously visited.
Google is an illegal monopoly, losing three different antitrust cases in the US over the last few years. None of us should be sending them data anymore, let alone state-run services.

https://themarkup.org/pixel-hunt/2025/06/17/we-caught-4-more-states-sharing-personal-health-data-with-big-tech

#maine #surveillance #healthcare #HealthData #BigTech #IllegalMonopoly
Center for Health Data Scienceheads@datasci.social
2025-06-19

๐Ÿ“Š๐ŸงฌAre you a clinician doing research with real-world data? ๐Ÿ‘ฉโ€โš•๏ธ ๐Ÿ’Š

Let #SUNDDataLab at UCPH #HeaDS support your analysis needs!

From #StatisticalModeling to #DataVisualization and #Python/#R workflowsโ€”weโ€™ve got you covered๐Ÿ’ช

No time or coding experience? No problem.
On-demand, expert data help tailored for busy clinical researchers.

๐ŸŒ heads.ku.dk/datalab/
๐Ÿ“ง datalab@sund.ku.dk

#MedicalResearch #ClinicalResearch #DataScience #HealthData

Innovative Health InitiativeIHIEurope
2025-06-16

๐Ÿ“ข How can projects maximise the impact of their results? Together with the Critical Path Institute, we published a paper in Nature Reviews Drug Discovery that draws on our experience of managing consortia.
The key lessons? Projects need:
๐Ÿ“‘ A clear regulatory strategy
๐Ÿ‘ฉโ€๐Ÿ’ป A management plan aligned with regulatory goals
๐Ÿ“— A sustainability plan to ensure data availability after the project ends
๐Ÿ’ฌ Early engagement with regulators
Find out more ๐Ÿ‘‰ europa.eu/!nKyFyQ

2025-06-15

The Journalistโ€™s Resource: When health data disappears: 8 tips for finding whatโ€™s hidden from public view . โ€œAs the U.S. government continues to remove data and make radical changes to its websites, reporters are encountering health data thatโ€™s incomplete, altered or missing entirely. At the Association of Health Care Journalistsโ€™ annual conference in Los Angeles on May 30, a panel of [โ€ฆ]

https://rbfirehose.com/2025/06/15/when-health-data-disappears-8-tips-for-finding-whats-hidden-from-public-view-the-journalists-resource/

2025-06-12

CDT is proud to support the reintroduction of the My Body, My Data Act โ€” landmark legislation led by Ron Wyden to establish a national standard protecting reproductive & sexual #HealthData. wyden.senate.gov/news/press-re

2025-06-11

๐ŸšจNew research paper: Spatio-temporal patterns of #health service delivery and access to maternal, child, and outpatient healthcare in #Volta region, #Ghana

A new approach to monitoring service changes using #HealthData & #SpatialAnalysis - led by Dr Winfred Dotse-Gborgbortsi

๐Ÿ”— doi.org/10.1080/16549716.2025.

Map showing spatial distribution of health facility types and changes in services provided overlayed on 2022 population.
OpenScienceCommunityGroningenoscgroningen
2025-06-10

๐Ÿ“ข FAIR Data, FAIR Future Symposium @OpenScienceNL
๐Ÿ“… Sept 18, 2025 | ๐Ÿ•™ 10:00โ€“18:00
๐Ÿ“ UMCG, Groningen
๐Ÿ” Keynotes & workshops on AI, Data Protection, Transparency & more!

Join the conversation on building a FAIR future in academia & healthcare ๐ŸŒ
๐Ÿ”— Register: umcgresearch.org/w/fair-data-f

แด…ส€. แดแดแดกษชษดแด„แด‹แด‡สŸ'๊œฑDrmowinckels@fosstodon.org
2025-06-02

๐Ÿ“ New post: 'Unmasking Long Covid: PCA & Clustering Analysis of Symptom Syndromes'

๐Ÿง› See how data-driven and domain-knowledge approaches align to define distinct symptom clusters and inform management strategies.

๐Ÿ‘€ drmo.site/RmNDXg

#rstats #healthdata #longcovid

A Sankey diagram showing flows from Principal Components (PCs) on the left, to individual health trackers/symptoms in the middle, and then to four defined symptom clusters (Neurological, Menstruation, Exertion, Emotional) on the right. The thickness of the colored bands indicates the strength of the relationships.
Innovative Health InitiativeIHIEurope
2025-05-28

๐Ÿ’ก There are large knowledge gaps in . Our projects are investigating safe medicine use in ๐Ÿคฐ, advancing research into diseases that mainly affect ๐Ÿ‘ฉ & more.
โšก Research gaps still exist, in hormones, sex-based differences, & .
๐Ÿ‘‰ europa.eu/!mkNwyk

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