#Biobank

Joshua James Abblettanonymousabblett
2025-06-10

THIS IS WHY MY DNA WAS STOLEN!

2025-05-20

#23andMe Sale Shows Your #Genetic Data Is Worth $17

#Regeneron is a drug company that “intends to acquire 23andMe’s Personal #Genome Service (PGS), Total Health and Research Services business lines, together with its #Biobank and associated assets, for $256 million and for 23andMe to continue all consumer genome services uninterrupted,”
#privacy #dna #genetics

404media.co/23andme-sale-shows

2025-04-15

My word assumes biobank can be hyphenated as bi-obank.

Hello, all my fellow bi-obanks.

#word #obank #biobank #hyphenation

John Vaccaro (johniac)johniac
2025-03-18
2024-11-19

Professor Chris Ponting on “Replicated Blood-Based Biomarkers” for ME in Big Data Pre-Print Study

By David Tuller, DrPH

Along with several colleagues, Professor Chris Ponting, a geneticist at the University of Edinburgh and a leading ME/CFS researcher, recently posted a pre-print called “Replicated blood-based biomarkers for Myalgic Encephalomyelitis not explicable by inactivity.”  (A pre-print is a paper that has not yet been formally peer-reviewed.) For this analysis, the investigators examined data for more than 3,000 molecular and cellular traits in samples from the UK Biobank, including from 1,455 ME cases and 131,303 controls. They found 116 traits that were significant among both female and male ME patients.

Earlier today, I spoke about the study with Professor Ponting, who is also the lead investigator for DecodeME, a major genome-wide association study of ME/CFS.

#biobank

Teresita Porter 🙋🏻‍♀️DNAdataPhile@ecoevo.social
2024-10-24

Canada set to lose irreplaceable 'treasure trove' of fungi

cbc.ca/news/science/fungus-bio

#mycology #biobank #fungi #canada

Lukas VFN 🇪🇺animalculum@scholar.social
2024-10-15

Biobanking #Corals: One Woman’s Mission to Save Coral Genetics in #TurksAndCaicos to Rebuild #Reefs of the Future insideclimatenews.org/news/151

"Alizee Zimmermann saw corals dying en masse and built a living bank to hold corals on land... Nearly 200 coral colonies are housed in this lab serving as a #biobank for some of the most vulnerable reef-building species at-risk of extinction due to #ClimateChange and disease in the #Atlantic Ocean and the #Caribbean."

many different types of corals in a shallow aquarium
2024-08-20

Scientists want to send endangered species’ cells to the moon - The ‘lunar ark’ would preserve samples from animals and other organisms #LunarArk #moon #EndangeredSpecies #biobank
sciencenews.org/article/endang

2024-06-25

Australia:

If you’re living with ME/CFS, Long COVID or want to volunteer as a ‘healthy control’ for medical research studies, signing up and becoming an AusME Registry participant is the single easiest way to become involved in research! Learn more today

vist.ly/3b4pb #mecfs

#chronicillness #myalgicencphalopmyelitis #chronicfatiguesyndrome #invisibleillness #chronicfatigue #mecfsawarenss #me #longcovid #biobank #registry #AusME
@mecfs @longcovid @auscovid19 #auscovid19

NOBODY KNOWS
ME/CFS BETTER
THAN THOSE WHO
LIVE WITH IT.
Sign up and participate in the
Australian ME/CFS & Long
COVID (AusME) Registry.
It's the single easiest way to
get involved in Australian
ME/CFS research.
emerge
australia
ME/CFS RESEARCH CAN ONLY GO SO FAR WITHOUT YOUR HELP
Innovative Health InitiativeIHI@social.network.europa.eu
2024-04-15

🗓️Save the date! Join us on 15 May at 14:15 CET for an online conversation with the EBISC2 project, and find out how they made a stem cell line #biobank self-sustaining. More 👉europa.eu/!vDM374 #iPSC #StemCell #HealthResearch #MedicalResearch #IHITransformingHealth #EUResearch #EU #HorizonEU

2024-03-18

Nach 10 Jahren steht der German #Biobank Node so gut da wie nie – mit akademischen humanen Biobanken an 36 Uni-Standorten. Jetzt muss dessen langfristige Finanzierung gesichert werden … — Karin Lauschke berichtet mehr: laborjournal.de/editorials/296

Foto von fünf Reagenzgläsern mit verscheidenen Proben und Beschriftung. Rechts daneben Überschrift und Vorspann des im Post verlinkten Artikels.
Prof. Joy Y. ZhangDrJoyZhang@sciences.social
2023-12-18

We are hosting the #EASST4S2024 open panel Public Participation and Health Equality in Future Biobanking

Link: nomadit.co.uk/conference/easst

This is where art, bioscience and sociology meet!

Send us your ideas by 12 Feb. We welcome research papers, visual and interactive exhibits.

#biobank #HealthInequalities #BAME #PublicEngagment #sciencecommunication #ethnicminority #RacialEquality

2023-12-13

🔭 #LegislativeObservatory: The position of the #EUCouncil on the #EHDS (European Health #DataSpace) is now also available:

data.consilium.europa.eu/doc/d

Key differences from the Parliament's position on secondary use of #HealthData are 1) no required opt-in for "genetic" data, but member states may impose additional restrictions [Art. 33 (5)]; 2) "other human molecular data" (Omics data) [Art. 33 (1) lit. ea] are treated equally to "genetic" data and need opt-in and 3) no opt-in for #Biobank data.

2023-12-13

🔭 #LegislativeObservatory: #EuropeanParliament has just voted in favor of the #EHDS (European Health #DataSpace) compromise version of #ENVI and #LIBE , rejecting further amendments (ex. 555):

europarl.europa.eu/doceo/docum

Relevant changes for secondary use of #HealthData are 1) an opt-in requirement for sharing of genetic and #biobank data (Art. 33 (5a), Rec. 39a) and 2) allowing member states to impose further restrictions on data falling within Art. 9 #GDPR (Rec. 3a). #Trilog will start tomorrow!

2023-12-01

#Genetic data on 500,000 volunteers in #UK to be released for scientific study | #Genetics | The Guardian

UK #Biobank offers up biggest ever cache of whole-genome sequences for medical research
#dna #genome

theguardian.com/science/2023/n

2023-11-12

@Techmeme
Everyone who approved this on the #Biobank side should be sacked immediately. The damage this does to the public trust in biomedical data collection is immense, not to mention the discrimination this allows the insurers to inflict.

2023-11-12

»Sensitive #health information donated for #medical #research by half a million UK citizens has been shared with #insurance companies despite a pledge that it would not be.

[…] #UK #Biobank opened up its vast biomedical database to insurance sector firms several times between 2020 and 2023. The data was provided to insurance consultancy and tech firms for projects to create digital tools that help insurers predict a person’s risk of getting a chronic disease.«

#privacy

theguardian.com/technology/202

2023-10-09

What a fabulous resource this will be, linking high throughput #proteomics with #genomic and #disease information in large populations.

#biobank #genetics #infectiousdiseases

Large-scale plasma proteomics comparisons through genetics and disease associations - Nature nature.com/articles/s41586-023

Victoria Stuart 🇨🇦 🏳️‍⚧️persagen
2023-10-05

Ancestral genetic components are consistently associated with the complex trait landscape in European biobanks
biorxiv.org/content/10.1101/20

The genetic structure in Europe was mostly shaped by admixture between the Western Hunter-Gatherer
...
Heart rate, platelet count, monocyte percentage and many other traits show stratification similar to height and pigmentation traits, likely targets of selection and divergence across ancestral groups.
...

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