Needed a cake at the weekend, so grabbed a tried & trusted @LowProConnect Victoria Sponge cake recipe - https://www.nutricia.co.uk/patients-carers/recipes/victoria-sponge.html
I added cocoa, and swapped out the cream & jam for Chocolate fudge icing.
Delicious!
Just bought these noodles from Amazon:
JAPANESE WHITE SHIRATAKI NOODLES
https://yutaka.london/products/noodles/japanese-white-shirataki-noodles/
and this is the result of the process (it was tasty, even though I clearly forgot soy sauce)
#pku #livingWithPKU #classicalPKU #phenylketonuria #lowProtein #vegan #food #ClassicalPKU #phe #vegetables #vegetarian #cooking
The best cooking life hack I can give is (if you can afford it) buy pre-prepped food (vs raw food - it is usually more expensive than raw food, which is why I say if you can afford it in the long run).
Chopped onions, chopped carrots, chopped mushrooms. Jars of pasta sauce. Saves *so* much time on dumb, boring prep-work that you can spend just cooking the food!
#pku #lowProtein #phenylketonuria #ClassicalPKU #phe #vegetables #vegetarian #cooking
Trying to get a #PCR #COVIDTest after the #PHE ended is impossible. Even if your insurance covers it, impossible.
#CovidIsntOver
It's honestly baffling how much having low phenylalanine has changed my life!
I used to have so much anxiety, be really indecisive about things, get incredibly frustrated when things didn't go the way I wanted to (and lets face it, when does life *ever* go exactly the way you want it?). And honestly, I was quite miserable to be around.
I got very serious about sorting out my knowledge about exchanges in my thirties, and it has made *such a difference*!!
Going to be seeing some old friends, and also planning on having some phe exchanges outside.
What are folks tips and tricks for managing phe for foods that you don’t know (e.g. restaurant food)? Mine is skipping either lunch exchanges or both lunch and dinner exchanges to ensure I stay in the green…
#phe #phenylketonuria #phenylcetonurie #pku #lowprotein #diet #health
Mega edition of #Coronavirus Tidbits, #245 https://www.drjudystone.com/coronavirus-tidbits-245-may-14-2023/ w end of #PHE, new #ventilation recs fr #ashrae, #LongCovidKids #antivax #labsafety #pipelines #Elsevier #immigration
by @ahandvanish @joeyfox85 @pjavidan @alisonannyoung @writermjs @DrJessTaylor @itscaitlinhd, @MarianLives, and many more
The federal requirements that private health plans cover clinical COVID-19 tests at no out-of-pocket costs and reimburse for 8 at-home tests will end with the public health emergency (#PHE) this week on May 11.
We look at cost for clinical #COVID tests among privately insured and self-pay rates (which apply to people without health insurance). We also scanned major retailer websites for rapid at-home test prices.
https://www.healthsystemtracker.org/brief/prices-for-covid-19-testing/
End of #PHE (05/11/2023), Ends the following.. a detailed timeline from @KFF
#pwME and #pwLC have started sharing the pillowcases they’re sending to the #MillionsMissing protest on May 12, the day after the #Covid Public Health Emergency ends in the US. These will be part of an #art installation of rows of empty cots at the Washington Monument.
I was not prepared for how strongly this would evoke the #AIDS quilt.
Not too late to send one—
https://millionsmissing.meaction.net/pillowcase-decoration-project/
Might be a good time to order a last batch of free COVID tests: https://www.covid.gov/tests
---
RT @jenkatesdc
NEW: The #COVID19 #PHE ends in less than two weeks. Here's a timeline of what ends with it, and what's coming down the pike. https://kff.org/coronavirus-covid-19/issue-brief/timeline-of-end-dates-for-key-health-related-flexibilities-provided-through-covid-19-emergency-declarations-legislation-and-administrative-actions/
https://twitter.com/jenkatesdc/status/1651933956323803137
@pcublogue That is an *incredibly* fascinating read. I'll be honest, I've seen your #Keto posts before and the diet has baffled me, but your blog post did a great job at breaking it down. Speaking of breaking it down, it's incredible how you've managed to master the #keto diet along with the #phe diet and still keep on track for both!
Question: how hard was it to do the #keto diet at the start? What would you change given what you know about #keto and #pku / #pcu diet?
(3/3) Biden administration flips, indicates
@POTUS
will sign the Republican-led effort to end #COVID national emergency https://thehill.com/homenews/house/3925090-house-democrats-vent-frustration-after-biden-reversal-on-covid-19-emergency-measure/ "a move that came less than two months after Democrats had opposed the same measure en masse at the administration’s request." #COVID #PublicHealth #PublicHealthEmergency #PHE
Special thanks to @CBSHE for this fun #StarTrek #StrangeNewWorlds delivery today -- guess the next convention cosplay is sorted out!
STRANGE NEW WORLDS Season 1 is out on DVD and Blu-ray now, with the special Steelbook as our favorite: https://www.amazon.com/Star-Trek-Strange-Limited-Steelbook/dp/B0BBY3SNRQ
RT: New #Coronavirus Tidbits newsletter is out https://www.drjudystone.com/coronavirus-tidbits-235-march-5-2023/ w clips abt #LongCovid #avianflu @JeremyFarrar #PHE #sildenafil #ventilation @1goodtern #Texas #abortion #Trans care #Florida #covid
and by @bielleogy @alexandraphelan @jeremyfaust @evan_greer @teamtrace @flexghost1
Thorough overview by @erictopol of the history of hospital-at-home, the impact that #COVID19 had on #HaH, and what the future might hold once the #PHE is discontinued soon. https://erictopol.substack.com/p/the-hospital-at-home-movement
Your Representative in Congressional District 2
Cliff Bentz Bend Oregon
Sunriver Oregon
H.R. 382 - #PandemicisOverAct
YES: This bill would end the active Public Health Emergency (#PHE) that was started by President Trump, and extended for the 12th time last September by President #Biden. The PHE has been repeatedly abused by President Biden to impose #vaccine and #mask mandates; the #eviction moratorium that was recently struck down by the Supreme Court; and to justify his cancellation of over $400 billion in student loan debt. President Biden stated that “the pandemic is over” on September 8, 2022, and I agree with him, however he does not plan to end the PHE until May 11th of this year. This bill will simply do it for us sooner.
I #voted to support this legislation and it passed the House 220 to 210.
[So, Representative #Bentz doesn't care if there are more spikes in Covid infections in the 2nd District of Oregon]
https://mail.aol.com/d/folders/1/messages/ANYDDAFIrEaDY-F8Lgy50AQzBYo
Tell Elected Officials - Maintain the Public Health Emergency!
Reject complacency. The pandemic is not over. Join us in telling Biden and Congress we need a robust public health approach.
Biden's announcement that he will end the state of emergency threatens to end healthcare and access to pandemic care for millions, especially for uninsured people. We need Universal Access to Free Tests, Masks, Ventilation Upgrades, Paid Sick Leave, Funding for Long COVID research and treatment -- not a marketized approach to public health.
Join the People's CDC in writing elected representatives in a call to Maintain the State of Emergency, and Maintain Healthcare Coverage. We need a robust Public Health Infrastructure. Now.
http://actionnetwork.org/letters/maintain-healthcare/
#peoplescdc #COVID #COVID19
#longcovid #pandemic #publichealthemergency #PHE
"Despite provisions expanding and stabilizing Medicaid and #CHIP coverage, the bill also sets a start date for the unwinding of #Medicaid continuous coverage policies tied to the #COVID19 #PublicHealthEmergency (PHE) that were put in place by the #Families First #Coronavirus Response Act in 2020. Specifically, the bill allows states to begin redetermining eligibility for Medicaid and CHIP enrollees starting 4/1/23, regardless of the status of the #PHE declaration."
