#flare

2025-10-06

Stasera provo un nuovo client open source per mastodon su Android (ma c'è anche per desktop e per iOS). Si chiama #Flare e in realtà permette di gestire in un solo programma diversi account mastodon, Bluesky e persino l'abominevole X (non posso testare questa funzione... non ho più un account X da molto tempo). Il design è molto elegante e moderno, ma devo ancora studiarne le funzioni. Dalla pagina GitHub noto un sacco di features in roadmap. Interessante! github.com/DimensionDev/Flare

2025-10-04
More 1990s film photos, this time from a collection entitled "photographic memory". See the rest on Temporal Fragments, my own website, here: https://cosmicfuz.com/photo-memory/

cosmicfuz.com is a simple wordpress site on a hosting provider in Canada. There are no algorithms, ads, bots, trackers, newsletters, pop-ups, etc. that I know of. Promotion is limited to posting on pixelfed/mastodon and word of mouth. Any feedback is appreciated.

#photo #photography #blog #film #1990s #wordpress #hamont #hamilton #ontario #canada #cosmic #fuz #canon #kodak #industrial #smoke #flare #flame #chimneys #skyline #dystopia
colour photo of active industrial building skyline including several smokestacks with plumes. parking lot and trees in foreground
Tadonic the Flautulenttadonic@social.trom.tf
2025-10-03

Protest TONIGHT (October 3) 5:00 PM, Union Station, Washington, DC

social.trom.tf/display/dbc8dc4

5PM | OCTOBER 3

Columbus Circle D.C.

Fuel the FLARE PROTEST

155 days of nonviolent, lawful and permitted occupation at Union Station has been illegally shut down.

FLARE will not stop fighting to end this regime. Join us at Headquarters today.

FLARE: For Liberation And Resistance Everywhere
Tadonic the Flautulentubuntourist
2025-10-03

October 3, 2025.
Park Police tore down FLARE encampment at 5:00 AM this morning.
Protest at Union Station, Washington, DC this evening 5:00 PM
youtube.com/shorts/t8qtpbQS6Kk

5PM | OCTOBER 3

Columbus Circle D.C.

Fuel the FLARE PROTEST

155 days of nonviolent, lawful and permitted occupation at Union Station has been illegally shut down.

FLARE will not stop fighting to end this regime. Join us at Headquarters today.

FLARE: For Liberation And Resistance Everywhere
Luan Cremonacremona_lu
2025-09-23

the definition of "bad day".
I had no chance.

Oʂɯαʅԃσ Rσყҽƚƚoswaldosrm@hachyderm.io
2025-09-10

#Trump thought that they could enjoy dinner in #DC - #CODEPINK (inside) and #FLARE (outside) made sure they didn't

#WashingtonDC

AxSpA: What is a flair (up)?

Original post:

AxSpA flares, it turns out, are not well understood. It is widely recognised that AxSpA sufferers have periods where symptoms are worse. However, how and when the flair is expressed seems to vary from one person to another.

That’s not to say no work has been done on this topic. A lot of study and investigation has been going on but it is proving tricky to pin down. Here’s the NASS guide to flairs.

A flare can be defined as the acute worsening of symptoms. Flares are generally thought to be due to increased activity of the underlying disease although this cannot always be demonstrated objectively. In rheumatoid arthritis and systemic lupus erythematosus flares are accompanied by joint swelling, rashes, or lab abnormalities. Patients with peripheral spondyloarthritis may similarly develop swollen joints during a flare. On the other hand, the major symptoms of axial inflammation in spondyloarthritis (back pain, stiffness, fatigue) are experienced and cannot be assessed by physical examination. Inflammatory markers in the blood may be normal. This can make it difficult to clearly attribute a temporary worsening of symptoms to increased inflammatory activity. Magnetic resonance imaging (MRI) can demonstrate inflammation in the joints or spine. However, there are issues with access, cost and sensitivity that make it impractical to perform MRI scans on every spondyloarthritis patient with worsening of symptoms.

Examining Flares in Spondyloarthritis, Joerg Ermann, MD, Spondylistis Assosiation of America

In a paper titled “Understanding flare in axial spondyloarthritis: novel insights from daily self-reported flare experience” (available as a PDF here), Rosemarie Barnett, Stanley Ng, and Raj Sengupta reported “two clusters of participants were identified with distinct flare experiences but similar baseline clinical characteristics”. If I understood the paper correctly, people either had shorter but more severe flares or longer but relatively milder flares.

The study found that flares lasted a mean average of 4.3 days (about 4 days, 7ish hours), taking place every 35 days or so.

The longer flare sufferers had more smokers, and the short but more intense sufferers had fewer.

Due to the sample size, the authors of the paper recommend not attaching too much significance to the data.

TL;DR: Flares happen; we’re not sure why.

Managing flares

I’m no expert (aside from living with AxSpA flares), so you may want to grab the free booklet about flares from NASS.

Due to the variety of ways flares can manifest, there is no one-size-fits-all solution to flare management.

Most advice suggests the following:

  • Medication (talk to your doctor)
  • Gentle exercise (don’t overdo it)
  • Hot or cold packs on inflamed joints (inexpensive on Amazon BTW)
  • Relaxation, such as meditation or other techniques
  • Restful sleep (which is not always possible)

A note on heat and cold: Dr Ben Davies says that real heat or cold is generally better than chemical (creams and sprays) if you can get it. (Ben was our lead physio at the RUH program I was recently enrolled on).

I found a mix of anti-inflammatories, pain medication, heat/cold (depending on location and symptom), and CBD helps for me. There’s no strong evidence that CBD is (or is not) useful in this regard. I cannot tell you if CBD is right for anyone else other than me. That’s because I am not a doctor.

I also find that a nice cup of tea and a sit-down with some low-intensity activity can be a good way to get through it. I doubt it does much other than take my mind off of things for a bit. Still, that’s not a bad thing.

I can confirm that stretches help with some symptoms – mostly muscle stiffness, aches, and general tension. I’m pretty sure I saw off two or three flares while doing physio. I have a newfound respect for the power of therapeutic movement and stretching.

As for fatigue and other symptoms, I find that pills followed by chilling out is what I need to do. Maybe with a nice cuppa. I’m biased here as I think Tea Is Brill.

The best advice I can offer is to talk with your doctor or rheumatology team for advice tailored to your needs.

Talk with friends and family about your flare – do not isolate yourself

I found a paper – “The incidence of depression and anxiety in patients with ankylosing spondylitis: a systematic review and meta-analysis” – which suggests a link between flares (and general AxSpA) and increased chances of depression. As someone who fights depression on the regular, I can tell you that a flare makes it that much harder.

It also seems that AxSpA causes increased stress and issues for those in work, while being unemployed with AxSpA adds mental pressure that could lead to depression.

Results show significant differences between employed and unemployed patients with axSpA. Employed patients with axSpA endure many problems at work related to their condition, whereas unemployed patients present worse disease outcomes associated with greater psychological distress.

Understanding the Disease Burden of Unemployed Patients With Axial Spondyloarthritis: Results From the Spanish Atlas 2017 by Marco Garrido-Cumbrera, Eduardo Collantes-Estevez, Victoria Navarro-Compán, Pedro Zarco-Montejo, Carlos Sastre, José Correa-Fernández, Sergio Sanz-Gómez, Pedro Plazuelo-Ramos and Jordi Gratacos in The Journal of Rheumatology April 2022

Sleep can be a problem when fighting of depression. This can be a problem as AxSpA can make getting good sleep harder. A paper – “Sleep behaviour differs in women and men with psoriatic arthritis and axial spondyloarthritis with impact on quality of life and depressive symptoms” – found that AxSpA can cause “abnormal sleep behaviour with symptoms of insomnia and a reduced quality of life with significant differences between male and female patients”.

If depression is kicking your arse (especially during a flare), please reach out and seek help. You are not alone. I know it sucks, which is why support is so important.

Over to you

If you are an AxSpA sufferer, I’d love to hear how you handle flare-ups. Do you have a flare-up plan? Do you medicate or do you use other techniques? What do you do during a flair? How bad are your flares? Do you find stretches help?

Do you think I missed anything?

Anything else to add?

General thoughts, feelings, or reactions. Whatever you have to say, I’d like to hear it.

#AxSpA #flare #RajSengupta

I’m off to a slow start

I ache more than normal today.

Today I feel tired (fatigued), achy, and in some pain. I hope that today’s stretches will help.

My plan after coming home from two weeks of physio is to buy some lightish weights to do strength training. However, with this fatigue hanging over me, I do not feel I can make a good buying decision. I put it off yesterday and may put it off today, too.

I hope this generally heavy feeling is just from the intensity of the last few weeks. I’m hesitant to call it an AxSpA flare but…

#fatigue #flare

2025-09-02

Messengers

Currently, I primarily rely on XMPP/Jabber. Dino makes for a decent phone XMPP client and pretty much the only native one currently that supports most of what you would expect. Kaidan is coming along but still lacks MUC (multi-user chat) support. Otherwise, Movim is a solid webapp for it. I use JMP for my phone number over XMPP.

Dino: dino.im
Kaidan: kaidan.im
Movim: movim.eu
JMP: jmp.chat

For Signal, I use Flare. It is a solid Signal client, though doesn't have the most intuitive UI. For the longest time I didn't realize it supported reactions and replies until I accidentally long-pressed on a message. Otherwise, it works well for what I need, is very lightweight compared to the official Signal desktop client, and adapts well to mobile interfaces.

Flare: gitlab.com/schmiddi-on-mobile/

Briar desktop is unusable currently and kind of expects you to have an android device regardless for the mailbox feature, kind of defeating the point for me.

Briar Desktop: briarproject.org/download-bria

As for running these messengers over Tor, Dino mostly respects system-wide or environment proxy settings. However, it periodically makes DNS requests for whatever turn/stun service your account uses, and those requests leak out no matter the proxy setting as far as I can tell, even if you are not trying to make calls. Flare does not respect proxy settings whatsoever and does not work with torsocks.

#xmpp #signal #dino #movim #flare #tor

Briar not displaying correctly on the pinephonePhosh showing the apps currently running in the foreground, including Flare and Dino.

#AIP:
"
Solar Orbiter verfolgt superschnelle Elektronen zurück zur Sonne
"
"D. von d. Europäischen Weltraumorganisation geleitete Mission Solar Orbiter hat energiereichen Teilchen, die unsere Sonne ins All schleudert, in zwei Klassen eingeteilt und jeweils unterschiedlichen Arten von Eruptionen unseres Sterns zugeordnet. .."

aip.de/de/news/solar-orbiter-t

1.9.2025

#Beschleuniger #Elektronen #ESA #Flare #KMAS #Raumfahrt #Raumsonde #SEE #SolarOrbiter #SolO #Sonne #Sonnensystem #Teilchenbeschleuniger

2025-08-27

‪Here are some great shots from our #GREGORSolarTelescope observation campaign in July. Peering into the #photosphere and #chromosphere, we caught several emerging active regions – and a #flare! This will help us study the plasma dynamics in active regions and how energy builds up to create a flare.

#MPSGoettingen #SolarPhysics #ActiveRegion #Flare #SolarFlare

Emerging active region as seen by GREGOR. It's a black and white image of an area swarming with bundles of lines stacked in various orientations. Near center, one area appears especially dark compared to the surroundings.Emerging active region as seen by GREGOR. It's a black and white image of an area filled mostly with granulation pattern, a convection-cell structure looking simular to a very unorderly honeycomb pattern. Near center, that structure is broken up and one area appears especially dark compared to the surroundings.
2025-08-27

#ParkerSolarProbe was in the right place at the right time in September 2022: It passed through a magnetic reconnection region in the Sun's corona. #SolarOrbiter observed the event from a distance. Study led by #SwRI in @NatureAstronomy

See the #MPSGoettingen press release "Flying through “Magnetic Construction Site” in the Sun's Corona" at

mps.mpg.de/flying-through-magn

#NASA #Parker #SolarProbe #ESA #SolarOrbiter #Sun #SolarPhysics #Flare #SolarFlare #MagneticReconnection #Space #SouthwestResearchInstitute

EUI image of solar corona showing the flare on September 5th/6th, 2022. The image is split into one large frame to the left and two smaller frames on the top and bottom to the right. The left frame shows a full-scale image of the Sun, in predominantly yellow false-color images against a black background. The solar surface appears strongly structured, with a particularly bright region on its lower right part. The two smaller frames are zooms onto this region at different times, as indicated by the time stamps on the bottom left corners. Additional black arrows in those two insets point at six features in each of the two inset frames.

Client Info

Server: https://mastodon.social
Version: 2025.07
Repository: https://github.com/cyevgeniy/lmst