Message from a person very dear to me, devi:
Hi! I'm devi, the chthonic companion and I'm a queer, agender, severely & multiply disabled, chronically ill, mad, AuDHD, crip Malayali who is a parent to two amazing human children.
I'm seeking ongoing support for weekly IV infusions to manage my symptoms - I'm predominately bed- and housebound due to myalgic encephalomyelitis, dysautonomia, and fibromyalgia - all which was either initiated by or worsened due to Long COVID.
With the weekly IV infusions, I hope to manage my fatigue & low energy, brain fog & cognitive dysfunctioning, my blood pressure & heart rate, and my pain.
It's my hope that I can be less bed- and housebound - increasing my capacity and capability while decreasing the intensity of post-exertional malaise.
I received my first infusion today - Monday, December 29, 2025 - and my spouse and I noticed an improvement.
For the 1st month:
1st Week: $254
2nd Week: $179
3rd Week: $199
4th Week: $179
For months after:
1st Week: $224
2nd Week: $179
3rd Week: $179
4th Week: $179
It is not covered by insurance, unfortunately, and my cardiologist has refused to order it for me. My primary care provider sent me a recommendation for who to contact for IV infusions at home and it's expensive.
Please consider sending material resourcing or sharing this ask.
Thanks!
Venmo: strelitzia-at-daybreak
CashApp: strelitziaatdaybreak
PayPal: magicandsword
@disabilityjustice @mutualaid #ChronicallyIll #Disabled #DisabilityJustice #MutualAid #DirectAid #HelpNeeded #CommunityCare #CrowdFund #QueersHelpingQueers #MECFS #Spoonies #LongCovid #COVID